Hello everyone, It has been a long time since I have chatted. I had my spinal stimulator put in about 5 1/2 weeks ago and there have been a couple of little complications but overall it has been like...
White Beard, Yes, this is the permanent implant and they are going to try to reschedule the surgery in two weeks. I have to call them on Mon. and we will try to figure out something. Nurse2...
Murphy's Law states that anything that can go wrong, usually will. Well, so was my case in trying to get my SNS implanted. For those of you who have one of these things, you know how tough the...
Dear Family, Thanks for all of the comments. It is most likely the steroids. They do have a way of changing my personality. I was on them for 9mon. straight once and I'm not sure what kept me from...
I don't know what in the world is going on with me!! My last two Duragesic patches have not attached well no matter what precautions I take. I'm so miserable and so horribly sleep deprived that I...
Hi everyone, My computer has been in the shop for some time so I haven't checked in for a while. I got the O.K. from the insurance to do the spinal nerve stimulator implant. I held my breath for 2...
My appt. for the insertion of the SCS is set for Sept. 16. I'm a little nervous which is weird since I've had so many surgeries and this is not even a "surgery" per say. Anyway, I'm anxious to see...
Dear Friends, I got news today in the mail from my ins. company and they reversed the denial!!!!! I just can't believe it. I figured I was in for a fight like everything else I've had to fight for. I...
We met with with the physician again yesterday who will do the proceedure and I really like him. He is very kind and explains everything. I've had my psych eval now so they have resubmitted the info...
Dear Monty's Mom, Reading your script is like reading a chapter out of my biography. Wanting so desperately to take care of your family like you want to but having a body that refuses to allow you to...
Dear Momto6boys, God love you....having twins! How old are your other children? I have twin daughters and they are 28yrs. old now. The pregnancy is tough, for sure. Nothing like carrying a single...
Dear Family, Today I got my first rejection from the insurance concerning the spinal stimulator. I was very ill and had to reschedule my psych eval and that was what they were upset about. My rheumy...
Hello, I know that I've been missing for a couple of weeks. This running to all of these appts. three times a week to doctors or for PT is getting a little rough. Especially since each of these are 2...
I've just finished my 4th week of physical therapy again and I have made a 40 degree improvement when the therapist measured my arm movement. Yeah me! While this is a great step it has caused a lot...
Hello Jay, It's nice to talk to you. Like Dani and Becky have both said, you have come to a group of people who are understanding and compasionate and listen without any judgement. We all laugh and...
Well, there has been no word from the doctors office about the referral so when I was at my physical therapy appt. last Fri. my husband went to talk to my pain doc's office about it. They couldn't...
Dear Shann75, Welcome! I'm sorry that you are having so many problems but you have definately found the right group of people to talk to. They are so understanding and supporting that I feel blessed...
Dear Fatherjohn, I started my physical therapy yesterday and while it is minor to another other human on the planet, I feel like I've been run over by a car tonight. I can't sleep. My skin is sore....
I had an appt. with my pain doctor yesterday and we were supposed to discuss my options of what to do with this Complex Regional Pain Syndrome that has been my unwanted best friend since Aug. The...
Well, how are the rest of you doing? I've had a rough two days. My arm feels like it's a chicken leg at a picnic and someone noticed that I'm the last piece.That's the best way I can describe it. It...
Well there's a big storm thunderstorm brewing outside and my body feels like it's beeing electricuted (sp?). Every hair on my body is standing on edge. The pain level is high tonight so I just took...
Thank you for your suggestions. Right now I'm riding on that steroid bobsled to hell and it hit really fast this time. I just got my injection yesterday afternoon. Well, I guess it isn't too soon. My...
Hi Wonderful Friends, I want you all to sit down because when I got this I almost fainted. Last Sat. I got an envelopein the mail from the government that I had been fighting for for only 6 years! I...
How has everyone been? I haven't checked in for a while because the steroid treatments have me on the merry-go-round that you are all too aware of..... This week will be my third and last treatment....
Just a quick "Hello" and hope that everyone is having a good day. My husband and I went on our trip to Branson, Missouri and had a wonderful time. The entertainment there is just wonderful! We've...
I can't thank you enough for all of your prayers for me through all of this because when things where so bad that I had hit bottom I couldn't remember the words to the Lord's prayer. I tried and...
Well, first off, I have to say that the Oxycotin has changed my personality (I'll apologize for all of the spelling errors right now as my thinking stinks) drastically because the 10mg. was not...
Well, my transition went straight into the toilet on day two. I have paced the floor for 4 days, crying and having muscle spasms. I had to ride 2 1/2 hours each way to get my shoulder injected with...
Hi Guys, I'm happy to say that so far, so good. I started the Oxycotin at 8:30a.m. yesterday and I'm doing O.K. I was sure to take a Baclofen with it as I continue to have a rough time with the...
I saw my doctor today and he had no problem changing me off of my patches but he did tell me that I had better not forget to take the pill because if I thought the withdrawl from the Duragesic patch...
I can't tell you how much you all mean to me. I know that I have not been on this ride alone. I see my internist tomorrow and we will discuss how to get off the patches. The pain Dr. said that I need...
we planned a wonderful party for my Mother the day before Easter because it was her 79th birthday. We decorated with balloons and streamers and signs.....the whole works. The grandbabies had an...
Oh, thank heavens someone brought this up! And right now is just perfect for me. This is a perfect subject for those of who chronically have to take pain medications to have some sort of life. I'm in...
Skeye, This is wonderful news and such a little sliver of hope for the rest of us who are still fighting for attorneys to hear something concerning our cases. Bravo! Nurse2...
Hi everyone. I'm just checking in. The past couple of weeks have been horrible! If I could have jumped out of my body and given it to a pack of wolves I would have done it in a heart beat. My arm...
I can't wait to talk to the surgeon tomorrow about the idea of having my shoulder injected with steroids. This afternoon my arm was fairly well one minute and then the next it became a deep...
Dear Friends, I went to see the doctor at the pain management place and I really liked him. So did my husband. I had a good feeling about him when he walked in the door. He was very interested in my...
Dear Screaming Eagle and Mrs. Eagle, I hope that by the time you get this that your situation has much improved! Lots of prayers said for the both of you. When I had my first cervical fusion with...
Hi Friends, I have decided to follow the suggestions of not getting myself into a mess before our trip to the doctor tomorrow. I was sick all night last night. I was fine one minute and then BAM I...
Hello Bob, Welcome and thank you for sharing your story. My hat is off to you. I can't imagine what it was to go through the process of having one's leg amputated. I joke that I'd like to cut off my...
Thanks to everyone for their kind words and especially the prayers. I am feeling a little better this am. I have decided to go shopping with my best gal pal today. I am packing my heating pad and my...
Sorry about the error in my note. I meant to say that the pain has now migrated to the right shoulder and arm,too. The left arm and shoulder is so painful that I can think of nothing else. Nurse2...
Dear Stella I'm so sorry to hear about your dog. They are like children to us. When I was in nursing school we had to put down our dog. You would have thought that we had put down my father or...
I have spent the last several days in almost unbearable pain. The pain radiates from my left shoulder down the the palm of my hand. The right shoulder and arm are also having the same symptoms. Today...
Oh, thank you, thank you for responding to my post. It is so good to know that I am not alone. I don't mean that I'm glad that you feel the same way it's just that someone spoke up and said that they...
Hello Everyone.....I'm not a very vain person as a rule. I like people for WHO they are and not WHAT they look like. (Today I'm having a bad fibro day so forgive the spelling or typing errors.) This...
skeye, about all I can do is say I'm very sorry to say the least. Everyone else has said it all. I know how frustrated you are and the best I can do is say a prayer that things will turn around for...
Hi Guys......I've had a bad couple of days so I haven't been able to use the computer. To answer some questions...The Baclofen, if I keep it in my system around the clock, helps reduce the spasms...
Thanks for all of the kind comments and advice. I do take Baclofen (muscle relaxer) every 6 hr. so that I can keep it in my system and this has seemed to help. I am going to keep the pain patch on...
I received a letter the other day from the Social Security Disability board and yet again I was denied! What do these people want anyway? In their letter they said that I was highly trained and that...