Lineni- I was diagnosed with TMJ issues long before I was Dx'd with fibro. Yes, in some cases people have found relief of this symptom, with various methods. IMHO surgery would be a very last option....
dbac- Smurfy had me laughing too, only because I have been to the ER twice only to be diagnosed with muscle spasms. Once was in the center of my chest and once in my left shoulder. Embarrassing. I...
Thanks again for more info! I wonder why gallstones would not show up initially then show up later. I did have an ultrasound and she was pretty thorough. But I will keep this in mind. I have heard of...
I have been wondering about meds, I have heard that even if you have been taking a med for a long time you can have a different/bad reaction happen. I did stop the HRT I recently added after reading...
Thanks for sharing...I really doubt an ulcer because I can eat things that are acidic and nothing happens (unless it's a 2-3 hour delayed reaction?). Most of the time my stomach is empty when it...
Lyrica - I remember trying that after a lot of pressure from people who had seen the ads, this was 2 years ago. I didn't want to try it - new drugs are scary and I know the FDA approves meds that...
Just wondered if other fibromites have experienced this. For the past 2 weeks about every other day, usually late afternoon, I have been getting excruciating stomach pains, above the belly button and...
This is what I love about this forum! I lose things ALL the time. Blame it on the pixies. Turn around three times and ask for my stuff back. Eventually I get it back, but there are a couple important...
Frances- I don't know what has happened but I second the opinion that you call the pastor. That is what they do...serve people, help to give solace and hope. It sure can't hurt. I can hear your pain...
It is amazing how much I learn everytime I get on healingwell! And I am really thrilled to be able to help my friend with suggestions from here :) NANA I will be in touch! I should update my...
Tink-You can get the pig Thyroid from a compounding pharmacy (Wellness Pharmacy is where I get mine). To everyone else thanks for the advice! I always know I can come here and get great ideas that...
For a friend who has fibro, cannot take narcotics, the Lyrica's or other anti-epileptic meds, antidepressants (Celexa, etc) or NSAIDs. Doesn't know what to do, docs are not much help. She's saving up...
I have constant back pain. Sometimes with pain shooting down my legs or across to hip bones. This could be nerve impingement (sciatic or other nerve) so since it came on suddenly for you I would see...
Funny how we are all in different places. I have been working full time with fibro + other issues and finally am on STD, with the likelihood of LTD in 6 months through company benefits. Would I try...
DonniesGirl- I would not be surprised if the tramadol may be affecting your depression, I am also on max dosage (8 a day) and just had Percoset added because of the tolerance I built up with the...
A big thank you to everyone who responded. As I thought, this is one of those things that helps some and not others. And makes some people worse. As for it being a diagnostic procedure, I have read...
Hi~ I usually post on the fibro forum but I think this question might get more responses here (I could be wrong)! The Pain Management Center (PMC) wants to try facet injections on me, cervical and...
I like your advice Akjak-even though repeatedly trying different doctors feels a little wierd to me (after all, they are "godlike" and usually not questioned AND I begin to feel like a hypochondriac...
Oh Joie- yes, there is an explanation. Don't let anyone who doesn't have fibro try to convince you this is "normal" for everyone...I have heard that and get so frustrated! Actually, it is "normal"...
I try to do the same...tell myself not to let things bother me...and it's just not always possible. ADs help prevent that tape from running over and over. Some other meds do too. But I would like to...
This is a topic that has been on my mind lately...the link between stress, depression and fibro. I think for most it is hard to say which came first, like the chicken or the egg question. For me...
Oh the fog! I do some of the things mentioned by others. My biggest help is lists and post it notes. Sometimes I have to sit down and combine my lists and cross things off, and I go nuts when I can't...
Cathy- If you can get a good PT it may help some. I have been dealing with severe neck, shoulder and upper back pain for a long time (a couple of years?). It never goes away, but some days are not as...
Bella- I got a handicap placard about 2 months ago and it has been such an energy saver! Yes, I get funny looks sometimes but no one has actually said anything to me. I only use it on the days I...
I tried Lyrica about[b] a year ago. Started on the 75 mg and moved up to the 150mg 2xper day. I eventually quit because 1) it was not helping with pain and 2) I felt drunk, uncoordinated, dumb,...
I get swollen glands too, they come and go and last varying durations. I don't know if it is a symptom of fibro but my guess id that it probably could be. The glands swell in response to activation...
Just a word about Lyrica, in my experience it caused my short term memory loss to worsen. Have been off it for a year but still have memeory loss. Maybe just the fibro fog, but I do know Lyrica made...
Thanks for all of the new inputs! I may change to the other PMC that is not as close, is related to the same hospital, but does have a different protocol, including from what I hear the option of...
Thank you lucky 113. I have been considering searching for the type of doc you descriibe. That takes time and energy and I have little of both but it would be work it. I, too, like many others I am...
I found an ad in my local paper for acupuncturist who lists various "qualifications", one being the above and one being a "certified addiciton specialist". He specializes in "Pain and Addictive...
Ed- As I understand it everyone is denied the first time applying for SSDI. You have to immediately reapply. Other comments above are absolutely true re: documenting everthing. The system is awful....
Thanks to everyone for your responses. Rich-no, I am not union, I am a first line office manager. HR is not helpful, they are less understanding than my boss. I may go to the omhudsperson because I...
Hi everyone! I am sure this topic has been covered by my search did not seem to find what I was looking for. I am in a tough spot. I am at the max daily dose of Ultram, which used to work very well...
Hi- I'm back after a long time away from this forum. I just recently went to my fave phsycial therapist who said I had a rib out of alignment, she could see it poking out by my shoulder blade. Tried...
Thanks for your responses! I am slowly getting better, enough that I spent some time in the garden yesterday. Still can't hear out of my left ear and still coughing at night, and having trouble with...
Hi folks! Anyone lucky enough to get the flu recently? Not swine, just plain old "flu". I ask because I have had what seems like the worst flu ever over the past week and I just don't ever remember...
Donna-Thanks and hugs! Taking over my post is really very interesting for me, it brought out a lot of different issues people with FM have had with others, be they doctors, friends, or others. You...
Thanks Marlee, I needed that kind of advice, I think. For some reason I am driven to make others understand me (and not just the fibro), it's probably a psychological issue! I know, in my head, that...
I certainly feel lucky that I don't have MS, as that is what I had feared. I also feel lucky that I can work with fibro; many cannot. I could not do it if I had to go to the office everyday. So, in...
Thanks for your replies, I decided overnight I will do 2 things (I am a glutton for pushishment apparently): 1) I will start a list and 2) I will write my own story. I did ask that people in my group...
I thought I once found a list on the internet of the worst things people could say to someone with FM (or anyone in chronic pain) and after a long time searching I can't find it. It may have even...
I had a similar "headache" for the past two days, but instead of "landing" in my eye, it landed in my ear. Left side. Pain like an ear infection. Have had these before and after going to doc and...
Yes, starting about 4 years ago. Before I knew I had fibro. Ended up with a hysterectomy when they found endometriosis and adenomyosis in 2006. Just over a year ago I had really bad pelvic pain and...
Those are both great ideas. I have a 7 day pill planner thing with 4 compartments per day. Each day can be pulled out separately. I use these for the many supplements I take, not for my meds, but if...
Sarabeth- I am glad to hear you took some action, and I know how hard that can be in itself, but once we do take action, that in itself shows we are helping to help ourselves and is a mood-booster!...
Sarabeth- I bet a lot of us have been where you are now. Years ago, before I was diagnosed, my primary would not give me more pain medication, and told me if I hurt that bad to go to the ER. I never...
Thanks for everyone's concern and suggestions. One of the problems with talking to my pharmacist is that LDN is compounded by a special pharmacy, so I doubt my regular Rite Aid pharmacist(s) there...
Hi all- I am usually one of those people that research any new "protocol" my doc wants to try, but the past 2 weeks have been a disaster because I did not do my research and trust my instincts....
I have been trying to work with Lyrica on and off for about a year. Initially started at 50mg 2per day and worked up to 100mg twice a day. I stopped after a month primarily because of memory problems...
Yes, I will admit that more horror stories are found than good ones on the internet, and if you seek it you will find it on the web! And also, everyone does have different reactions, tolerances,...