Thanks for all the responses, glad to know that by far I'm not alone in this. PBZ0652 I have experienced sensations similar to this at other times. For instance sometimes when I'm meditating I will...
Yes I guess so. Well if indeed it is a fibro symptom, at least it's one of the less troubling ones....
For the past couple of days I've been experiencing coldness in my left knee. It comes and goes, and when it comes, it feels as though someone has an air conditioner pointed directly at my knee. It...
Well I've had a handicapped placard for awhile now. I got it before I was even diagnosed with fibro. Back when I was in college, I was having a lot of trouble carrying all my school books up the...
Well quite tired here. I'm pretty sure I got a decent amount of sleep, but still exhausted anyway. I'm really dreading dragging myself into work this afternoon....
Before my diagnosis of fibro, I got tested so many times for other conditions. I was mostly tested for lyme disease over and over again but also got tested for other things as well such as lupus and...
Well I'm currently in the process of applying for disability. I got rejected for it once before and that was actually before I got my fibro diagnosis. Now that I have my diagnosis the social security...
I understand your loneliness. I go through that a lot myself. I actually don't really have any friends at all, at least not ones that live near me. I have one best friend that lives out of state, and...
Thanks for the suggestion Karen, but I'd rather not go on prescription meds of any kind. I know that I did mention before that I was sensitive to sedating meds, but I tend not to tolerate medication...
Thanks for your response Yankee girl, No I'm not on any sleep meds. In the past, I found out that I'm super sensitive to anything sedating and even if I take it at night, it will still effect me...
Well for me, I often have a hard time watching medical shows. I love watching House, I really do, but a lot of times when I watch, I find myself getting really achy, and when I get up after the show,...
Hi, I haven't posted here in quite awhile, but I'm suddenly finding myself in need of some feedback. For several months my fibro symptoms were pretty mild due to the fact that I left the house as...
Unfortunately a face mask wouldn't work. I've tried them for other situations and I can't breathe in them. I have a hard time breathing hot humid air and it gets very hot and humid inside a face mask...
Unfortunately that part of the house is hard to avoid. The downstairs bathroom is by the front door and I also have to walk through that hallway if I want to go from the living room to the kitchen or...
Aurora the hairspray is not aerosol but it does leave a definite lingering smell around both my mother and the general area where she sprayed it. The hairspray is marked as unscented, but anyone who...
Oh I know exactly what you mean there. I simply cannot concentrate on what I need to do when there's people around me talking or other noises. I also have a problem doing things like dictation...
Noise is also a problem for me when trying to sleep. My mother coughing on the other side of the house is enough to wake me up, or keep me awake if I haven't fallen asleep yet. I use ear plugs at...
Hmm I never looked at it that way before. I guess it doesn't matter if I over reacted or not, my feelings are still valid. I'm trying to distract myself so it doesn't ruin the whole day but it's...
Well it's not just her words but her actions that hurt me. I try to let it go, and after awhile my hurt and anger fades. But as I said, this keeps happening over and over again. It's not a one time...
I'm so upset right now I'm crying as I type this. I woke up this morning and I saw that my mother was in the bathroom and I was waiting for her to to get out so I could use it. Then I heard the...
Actually Marlee it's pretty fairly cold here but not as cold as where you are. I think the high is 40 degrees today. Still kind of nippy for yard work though. I can so relate to how you feel about...
Well I did say at the end of my post I was going to try music. I've got my headphones on now. It doesn't drown out all the noise, if I wanted to do that I'd have to play the music louder than I could...
Like many of you I have a low tolerance for noise. It simply drives me up the wall when I can hear noises from outside such as dogs barking or lawns being mowed. I swear the houses in my neighborhood...
That's an interesting theory, but I agree with Jeannie that it may be hard to tell which problem causes which. It might be helpful to use a brainwave entrainment CD that focuses on delta waves while...
Hmm well I couldn't find any brand that was called jellies when I googled it. However I did find something interesting called sleep phones. They are flat speakers that are inside of a headband. Seems...
Well I'd always found earbuds to be very uncomfortable in general, not to mention the fact that I couldn't get them to stay in my ears. I haven't tried gel ones though. Was there a specific brand...
Does anyone know of any headphones that are comfortable to sleep in, particularly if you are a side sleeper? All headphones that I've tried thus far leave me waking with my ears in horrible pain. So...
I haven't yet, but I might have to in the future. Currently I'm working with an organization that tries to help rehabilitate disabled people and find them jobs. It's a long process though and I'm...
Well I don't know if this is considered major but i did have a breast reduction done a couple of years ago. I was undiagnosed with fibro back then and I didn't really have the pain that went with the...
Well I know that aspartame is bad for you. If you use it in heated foods/drinks, it releases a chemical that can cause Alzheimer's. I avoid it whenever possible and I tend to stay away from other...
Well the closest thing a doctor could do for stress is give you anti-anxiety medication. Other than that I'm not sure what else they could possibly do to help with that. You can try working with a...
Well as far as I know, there aren't any fibro specialists. Usually rheumatologists are the ones to see for fibro. I saw a rheumy for my diagnosis. He seemed like a good doctor, but after a couple of...
Well I had a bunch of lupus tests done when I was being diagnosed with fibro. I also had one test that was slightly positive, but I don't remember if it was ana or another one. Anyway since the rest...
Hi, I'm 24 and I suspect I've had fibro for most of my life. I finished my associates degree last year. The fibro made school really hard. Everytime I tried to take a full course load I would fall...
I just want to clarify that that I said that there are many smells that make me feel sick. That doesn't mean they don't smell good, but I can't smell them without experiencing an "allergic type"...
Thanks for the responses. Glad to know I'm not the only one with taste issues. I'm not exactly sure what you mean Karen about other senses being negative. Do you ever experience changes in sense of...
There are times when it seems like nothing I eat tastes good. I know it's just me and not the food because my family will tell me the meal tastes fine when I comment on it. It seems like I'm always...
Thanks for sharing that ginny. I was wondering why my pulse was so high even when feeling relaxed....
Well my mother only has asthma when she gets bronchitis. Even though you might be feeling better, you might not be completely over the bronchitis and it's very possible that you could have asthma...
I have a problem with dizzy spells too. Normally it happens if I'm out at a store or something and I'm on my feet for awhile. Though sometimes it happens when driving which can be a real problem but...
I also find that I cramp up from sitting in one position for too long. I do spend a lot of time on the computer, but I'm always changing positions and lots of times I just stop what I'm doing and...
I have no idea what it's called, but I was once taught a type of meditation in which you can control the blood flow to various parts of your body with your mind. I'll try to explain it the best I...
Yeah the waiting is difficult, it's really bad for the morale. I'm not giving up, but somehow I think that I might have to wait until the job market improves before anything comes along. Thanks for...
Been there, done that. LOL Over the past year I signed up with 7 different agencies. I tested high on all the typing and microsoft office tests they gave me. Unfortunately none of them were able to...
Um Sera, just wanted to point out that you addressed me in your post but I hadn't even posted on this topic. Anyway pro, I can certainly relate to how you are feeling. I had a very hard time with...
Hmm that's really interesting. I've always heard that sleeping on the couch was supposed to be really bad for your back, though I always ignored it because it was so much more comfortable for me. I...
I actually posted about this in another thread. I thought there was a local support group and I called up there today only to find out that they haven't been around for over 5 years. I've been...
Well I'm not completely immobile, I'm sorry if I gave you that impression. I just hate talking about exercise as much as I hate doing it. Anyway I do stretching exercises as much as I can and do...
Well there are these supplements that I used to get and they worked very well. They didn't have licorice in them, but it had ginger, papaya, and various natural enzymes to aid digestion. So I know of...
Well I wasn't lying down right after the meal. I'd go to bed at least 3-4 hours afterward. I was on acid reflux meds in the past and they caused me serious health problems because they prevented my...