I was diagnosed with Fibromyalgia about two months ago. With this change in weather, I've been suffering today more than ever. Feels like my entire body is completely seizing up. I'm feeling...
Learning2fly... My Fibro symptoms didn't start manifesting severely until after the serious stress-producing situation was removed (I got out of a situation that was causing major stress). It's as...
Interesting... Most people w/ Fibro are low in Vit D. Although it's not the same as Calcium.......
AkinaChan... I almost forgot... I too have Hypoglycemia ->Reactive Hypoglycemia....
Wow, Alice... I'd say your temp is VERY low. When I went to the WTS site at: http://www.wilsonssyndrome.com/ , it stated that many doctors are in the dark about WTS. Check out the site. Perhaps you...
Littleneck... Here's how it felt when I was little. It started with my knees. We were at the movies and, at the end, when the credits rolled and everyone else was getting up to leave, I couldn't...
The mind (Psyche) - body connection is a powerful thing....
Hmmm, Ali... A very traumatic and violent molestation triggered my Rheumatoid Arthritis at age 7. I never told anyone, so I held it in. Other serious trauma 2 years prior and 2 years prior to that....
That's wild, Littleneck! You probably had Rheumatoid Arthritis and were never diagnosed. It's said that the Juvenile form can just "go away". I always ascribed my sudden onset of illness at that age...
Wow, Jeannie... Long before I even realized I had a problem, I tried explaining to my family, the initial feeling of pain (almost a subtle burning sensation) when my muscles would relax after one...
Yeah, Marlee... Doctors aren't on the same page because most of them have become so isolated inside their specialtes that they can no longer see or treat the whole person. I just saw the Neurologist...
All, but the nausea. When it started, it was coming out the opposite end. Cold sweats very common. I'm having my first cold since getting Fibro. I can't believe how knocked out I am. This is SO not...
I had a dentist call it "referred pain". Once the tooth was pulled, it went away completely. Feel better,...
Sassy... You can't "make" her understand, but you can suggest she find her own answers. Perhaps you can lovingly point her in the direction of a few local al-anon meetings. Yes... As a Drug and...
Hey, Karen... Thanks... Yes... very new. Savella was just approved in January of this year. Still non-formulary, so on Monday I've got to have my GP call my insurance for pre-approval. Hoping he'll...
Hey, Hey, Hey! It's Fat Albert!...
Hi Ramie... I Started the Savella almost 2 weeks ago. The heart rate issue only lasted about 4 or 5 days for me. Never felt any nausea. I'm glad I stuck it out. It'll subside soon, Rachel...
Reflex Sympathetic Dystrophy. It's thought to result from damage to the nervous system, including the nerves that control the blood vessels and sweat glands. The damaged nerves are no longer able to...
Of all of the drugs I took to treat the RSD symptoms, Soma was the mildest. I don't get a hangover and my energy level doesn't seem to be effected. Again... I tend to be a real light-wieght when it...
Hey Dianna... Soma will help me get to sleep, but won't keep me asleep (if I'm having one of those nights). Since it's usually muscle spasm that wakes me back up, that's when I take that 2nd Soma....
skylark... I experience very similar back and neck issues. My GP prescribed Soma (muscle relaxer) at bedtime. My Rheumatologist added Lodine (ati-inflamitory) 2x daily. The combo helps tremendously....
When I don't have answers and feel most out of control, I'll go on, what become exhaustive and obsessive online searches for diagnoses. It pretty much always produces more anxiety, inevitabley...
It's so interesting to hear how it began for everyone. .. I had Rheumatoid Arthritis, Rheumatic Fever and Double Pneumonia at age 7 (the first sign of Autoimmune issues). Right before that came on,...
Tee Hee! /community/emoticons/smilewinkgrin.gif ...
Thank you so much, Mamanan. /community/emoticons/smilewinkgrin.gif ...
Thanks, Marlee... I have low vit D, so have been taking D-3 1000 mg. for 3 weeks now. I've been depressed since I was 3 years old. Wasn't treated for it until I was in my 20's. Now, 20 years later...
Thank you, Littleneck... Yes... it does make a huge difference to use energy on things that are in my control... Like getting out of bed and stretching my way into some motion. Like getting on this...
Oh, Maria... I'm just a few days new to this forum and, already, have received so much love and encouragement. The information has helped ease the panic tremendously. Do you have anyone to advocate...
Thank you so much, Robin... I'm so glad to know that about the Savella. The Neurologist told me to give it a month. I'll give it more. My GP said that my insurance wouldn't cover it (gave me a 2-week...
You start getting out for yourself and bring back a fresh energy to the house... I bet he'll feel it and slowly respond. Take care of you!...
Thanks, Karen... /community/emoticons/smilewinkgrin.gif Do you take Mucinex daily? If so, at what dose?...
Thanks, Deb... Actually, I had been on Prozac for almost 20 years until last November, when I completed slowly weening myself off. All was well until I lost my job in April. I can't help but wonder...
Well, in my opinion, he eventually will need to be part of the solution. My guess is, he could be getting depressed too. And he probably won't just snap out of it on his own. Be certain that you can...
Enjoy!...
Sassy, Further dialogue with your husband could help. Perhaps you could ask him for ideas about how you BOTH could be working to shift the energy. Humor sure can help eleviate a lot of tension....
Amen to that, Robin... I can clearly see how my negativity and self pity has taken me down faster than anything else. This morning, I awoke to pain and unbelievable stiffness. Instead of going...
Has anyone found relief from the Guaifenesin (Mucinex) Protocol?...
Yeah, Watashi... Bawling panic attacks susinctly describes my moring yesterday. Now, the sun is coming up on another day and I'm racked with pain again. I've taken a muscle relaxer and am waiting for...
Thank you so much, Sherrine, Jhemi, Deb, Robin and Donna, for your kind and extremely helpful words. Yes... this IS a very loving and supportive online community. I had such a long day. Hour and a...
Just a few days new to HW. I'm Rachel. Having a very hard time right now. My body is deteriorated so rapidly. I feel like I'm dying. My GP and now the Rhuematologist have juat diagnosed me with...
Thanks Donna... When I called the Pharmacistist, I was told to d/c the Savella and get a second opinion. I continued it because I'll be seeing the Rheumatologist tomorrow and will ask. My side...
Has anyone been prescribed these two medications at the same time? My GP (seeing the Rheumatologist for the first time tomorrow) just started me on a sample 2-week titration pack of Savella, knowing...
I a single mom of beautiful 3 year old girl who loves to jump all over me. Her knees, feet and elbows have become like daggers. I used to be able to play with her freely. Now, I have to brace myself...
http://www.ninds.nih.gov/news_and_events/proceedings/Reflex_Sympathetic_Dystrophy_2001.htm Above is the link to the info I've quoted below. It suggests a possible connection between autoimmune...
Thank you so much, Sherrine and WhiteChocChip, for your kind responses and valuable information. I'm very glad I found this site. I was given a standard test for Lyme as well as a full work-up. The...
Hi all... I'm brand new to HW. My name is Rachel. Lot of words for my first post. Sorry /community/emoticons/rolleyes.gif My GP is calling this Fibromyalgia and started me on Savella. Seems like such...