I thought for a while before my dx that I could have fibro. However I do know that since my dx I have felt worse than I have in the past!! Newer symptoms showing up every so often etc. So as far as...
I really wish i got relief from the pain too or even help with sleep. But at least, like i said previously lol, it helps my anxiety!...
Yes they are wonderful! my mom actually has one. She doesn't use hers that much. But I love mine. Especially since I just had some Occipital nerve block injections done yesterday and they are soooo...
I have been on neurontin for over a yr now. I was originally put on it for anxiety/irritability before I was diagnosed with fibro. I haven't personally found any relief from pain through neurontin...
I want to second that i didnt get offended either. And i just got a bed buddy for Christmas and it definitely helps!!!...
Hehehe i love these :) Well two of my cousins each got me a red sox christmas ornament and neither knew the other was doing it. That was pretty cool. Last yr i got jeff dunham ornaments. Im...
hehehe :) that cracks me up Sherrine Yeah my bf is actually a lot better than i give him credit for when it comes to listening to me....
lol. Mine is filled with scented herbs (smells like tea) and you can either use it hot or cold. Its shaped so you can put it around your neck/shoulders but the herbs move so you can pretty much use...
i have been using it nonstop! i absolutely love it. esp since last night consisted of standing for a few hrs. needless to say i would be a lot worse! yay bed buddys lol...
i will agree with u that lyrica did help me sleep somewhat better but i seriously cant take it it has been causing aome vser scxart thoughts to opop u whe i fo yake iy or iat some point :( But now im...
well as of right now since i brought it up i know shes calling something in for me. But not sure what im really hoping its not the lyrica to 'taper' off from cus i cant afford just a few pills and at...
snue i just read ur post. Thanks for sharing ur stories hun! and i love the leaf blower thing i could totally see myself doing it. Heck when i was writing that post above this one i just wrote i...
:::raises hand::: i did that one day when my mom asked me to go to the pharmacy for her. Id JUST woken up was tired and cranky looked like hell and was just like uhh whatever. So i grab my keys get...
so if this is cut short sorry im at pt so have lil time. But the short of it is. Told my dr im one of those lucky few who goes psycho on lyrica and shes taking me off it but said theres nothing else...
Thx for replying hun. As much as it sucks its comforting that for those with fibro its normal. I get into soo many arguments cause some times people dont understand that i just truly do not remember...
Ok i was diagnosed about 12 yrs ago with Add but never really treated for it. Tried staterra made me manic and taking tenex now for restlessness. Well i always attributed my spaciness and lack of...
((hugs)) I thankfully have not had any real side effects from it other than after i take it (whcih is at bedtime anyways) i get sleepy as heck. im sorry you have all those icky side fx to go with...
Thanks so much for replying. And oy im sorry you have been thru and go thru so much. You are an inspiritation! Only other prob i have with my tummy is horrible lactose intolerance. Blegh! And i LOVE...
Wow so much going on in everyones life. ((hugs)) So far this has been an extremely trying holliday season! Problems in my relationship that are thankfully getting better! Being diagnosed with fibro...
I know of at least one other gastroparesis sufferer on the fibro boards so i was wondering if maybe anyine could share their experience with both? its hard not having gastroparesis site like this...
Hey everybody! I know here in New England we had such a mild winter. Until recently lol. It feels like i moved to the arctic. Ok ok maybe not that cold but its definitely cold out and i know im...
i only read the first post cause my neck hurts and im on my phone but Im sorry you had to go through all the pain. :( I truly do appreciate you posting it though because it gives me more...
thanks myjoy! When i think about how slowly im going up in dose i cant help but wonder how longg it will take cause a lot of fibro patients are between 300 and 600 mgs im only on 50 now. But then...
My dr responded to my message from last week and told me to up my dose from 25 to 50. So hopefully i will feel SOMETHING soon. Still have no real relief. Hoping my physical therapy sessions will...
Yeah i know i dont totally get it either but hoping to get some form of relief. I was put on neurontin a while back for my anxiety n irritability. And helps so much. I take 600 mgs 3xs a day. I feel...
Thanks everyone. I have started a pain journal on fri or thurs i think. But didnt think about putting down activities. Ive been doing pain scale and type of pain. Ill start adding the activities...
Sue i just wanted to say thanks for posting that relaxation technique esp adding the thing about the thoughts! this is site is wonderful!...
If you have been reading my posts im sorry if this is a little redundant. I was wondering if you guys think i should wait to call or if i should just call my dr tomorrow? my pain is still horrible....
Oh sweety i know how you feel about the horrible pain and no end in sight. Ive been an 8 on the scale all week and at this VERY minute im not toooo horrible. But i dont know how long it will last. I...
thanks eveyrone for the great responses!! Today starts day 5 (take it at midnight) and zero relief couldnt sleep again last night from stupud pain!! A couple of you mentioned neurontin. I am well...
Thanks guys. Justlivelife best wishes to you too. btw i hope no one thinks i honestly expect to be painfree or even feel significantly different after only 4 days and only on an extremely low dose at...
Lots and lots of medical records helped me. I was approved right away. But mine wasnt for fibro it was before this for my personality disorders and what not. I applied at age 21 i believe and i had...
i am really excited to hear that it has helped and its easy enough for fibromites. I play the ps2 quite often and ive really wanted to try yoga for yrs but in the privacy of my own home so this will...
I was just wondering those who have taken it how long and what dosage did u finally (if at all) feel some relief? and if you gained weight how soon did it happen? cus its not helping so far its only...
Thank you :)...
the thought of bouncing around on the floor seems just painful. Thanks for your input. Im really excited to try it. Im prob getting the one with the camera so they can tell you if you are doing it...
Was wondering. Do any of you use the wii for anything? cause my mom biught my bf and i one for christmas cause ive been dying for one to try the yoga. I hear yoga helps. Any ideas?...
I know sitting still definitely does make my pain worse. So I kind of pace around the house a bit. Its way to cold outside to go walking. Tried that last night to walk just down to the store a few...
welcome. Im new here as well. Just 'officially' diagnosed Monday and having a hard time coping with it. But i have found many helpful people here. :)...
Well had physical therapy today. And thankfully she didnt have me do too much. I relaxed in the pool for about 20 minutes she had me on my back floating for a bit. She saw how little i could move...
holy cow. Thats a lot of cakes! I am so very thankful my bf does all the cart pushing when we go out shopping. I have thought about using one of those carts for the first time tonight. My bf kind of...
I feel like all ive been doing is complaining about my pain but ive even tried stretching lightly at home and walking leisurely around the store i feel like theres no end in sight. I keep hoping the...
thx :) i meant to reply last night but i almost always go online through my phone only and someone txt me in the middle of it. i like the reading idea and movies but my prime issue with those is...
i know nothing will completely take it away. But idk something for a little help? its agonizing. And ya im not looking fwd to feeling the pain worsen with pool therapy before helping either. So ive...
lol at that last comment :) i know what u mean there altho being im lactose intolerant ice cream isnt what i have to watch out for lol....
hey thanks :) and as of right now my dr wont give me anything else with the lyrica because we just started it and she wants me in the pool therapy 3xs a week. In the meantime tho im in so much pain...
thanks chutz1 :) im not really sure how long but at least a couple weeks probably if not longer i think its primarily she wants to know what causes what side effects and whats working and whats not....
Well, pain management office got back to me and although the note isn't signed yet from my dr she did state it as being the diagnosis. So unless she changes something thats it. No more guessing. And...
I'm still hoping it's something else. My bf says im in denial. But I dont know maybe I am. I keep thinking maybe she will say well try sleeping this way or maybe its just your posture. But then I...
you guys brought tears to my eyes Thank you!! :) i have always felt pain since at least my teen yrs but i never knew why but this pain is just plain horrible. I read somewhere that someone once...