Greetings All- I am happy to tell you that I have greatly improved health. When last we spoke I was still adjusting different amino acid supplements to replace the Savella that my doc prescribed when...
Happy New Year ALL! Just thought I'd check in - I have steadily improved since beginning with the L-Tryptophan / N-Acetyl-L-Tyrosine. I have added an additional amino combo caplet since I last posted...
Sorry to post and disappear. We lost my MIL and good friend last week. She passed peacefully after a 25 year valiant battle with Sjogren's Syndrome and other autoimmune Conditions. She will be...
Hello All- I had mentioned that I'd post info if I started to supplement with Amino Acids. My theory was to increase neurotransmitters serotonin and norepinephrine (target of many approved...
Did you know that Resee's Peanut Butter Cups, Plain and Peanut M&Ms are gluten-free? Along with many other candies. Do you cook or bake? If you do, make a batch of cookies...almost all regular...
Hello to you both! I am just over eight months since my celiac diagnosis and can honestly say that my family is eating as well as preGF if not better and all of us feel a lot better. Christina - rest...
You are welcome! I hope she continues to improve -- great news that you've already seen some improvement. I joined this forum because of their fibro section, but if you have more questions or need...
"I reckon they'll start aiming properly pretty quickly if they're responsible for cleaning their own messes." Now, I thought that too...but no such luck...I've got dear hubby and two teenaged sons...
Hi Marlee- I've actually been losing weight at a steady pace -- slow but sure since I started living GF last March. I had plenty to lose -- I have been gaining unexplained weight steadily for years...
Don't know how to help with poll but I was extremely low in D upon Celiac Dx this past spring...been supplementing since and am now up to a 16 -- getting closer to normal range :)...
Count me in -- I could always drive for hours on end until several years ago -- started with sensitive to head and tail lights on other cars that blurred together. For some reason I am better (not...
Hi Kathy- Just wanted to say I'm sorry you are feeling so poorly -- sometimes it is good to just let yourself have a completely down day - take a warm bath if you can and crawl under the covers. I do...
Thanks Nana Monster! I'm so new to all this, but Flexeril is the first thing that has help relax everything in order to improve sleep. Great to know that the TrueCalm Patsie is using may be a way to...
Hi Tammy- Your daughter could still have Celiac Disease & or be gluten intolerant -- many believe gluten intolerant is just another name for undiagnosed Celiac Disease. Antibody tests and endoscopic...
I purchase Malic Acid/Mag combo and other supplements from Amazon - great pricing and free shipping. http://www.amazon.com/gp/product/B000GFJJKQ/ref=ox_ya_oh_product You should be able to find at...
My vitamins and minerals were blood tested last spring. I was extremely low in B-6, B-12, D, K, Iron, Ferritin, Copper and Zinc. All have improved to near normal levels in the past months - currently...
Thanks Robin! Wonderful to hear you had a joyful day - I'll have to give those memory puzzles a go. Statgeek- You definitely are not alone with grocery mission -- lately when I get home from the...
yep...add me to the low in Vitamin D fibro club. I was barely registering when dx'd celiac last spring. Have been supplementing and am nearly up to normal -- hopeful to be strong normal in the coming...
Hello Patsie- Fantastic to hear you've had improvement! Agreed no cure yet, but if we can improve our quality of life without horrible side effects -- well that would be a great day indeed! I've been...
Hi Robin- I'm new here, but you are NOT crazy! The past two years my fog has steadily gotten worse and I've done many forgetful things - drives me crazy because I always had the best memory in the...
Thanks yo-yo -- not planning on taking yet -- just been researching amino acids since so many medications used for fibromyalgia effect serotonin and norepinephrine. Both of which can be increased...
Does anyone take either tyrosine or branched chain amino acids (BCAA's) leucine, isoleucine and valine for fibromyalgia? I've found several medical journals that indicated those tested with...
Count me in for food sensitivity with fibro. I haven't come up positive on food allergy tests, but have had many food sensitivities my whole life. Last March I was diagnosed with Celiac Disease -...
The least expensive thing to do is to change your diet to completely gluten free. If you have improvement in your symptoms it is a strong indication of celiac disease and is enough evidence for some...
Hi Alice- I'm new here, but have had a bad back for years so wanted to add a comment about ice. Ice several times a day at first - can't be too much. When you feel better heat is good to use - except...
Hi Anna- I'm newly diagnosed and certainly no expert. Just wanted to welcome you and chime in to find a doctor that wants a fibromyalgia case. I've been having medical testing done for years - this...
Thanks everyone! It does help to know there are others in this same boat. I think the hardest thing is everyone (not my wonderful husband or boys - just other family and friends) is still used to the...
Completely agree that one can not be diagnosed by ANA only. Depending on how high the titer is along with any pattern that is detected it can indicate certain autoimmune disease which can help decide...
Hi Shar- I've had similar symptoms years ago when I tried anti-depressants - they made me extremely angry so stopped without tapering down and had the buzzing and strange movements behind closed eyes...
I just re-read your original post...must have mis-read the first time because I missed positive celiac blood tests. Celiac can be very difficult to diagnose. Although there are many false negatives...
Good Morning All- I am confused regarding flares and a lot more :tongue: Most days for the past two years I get sore and foggy by 3-4pm and I can barely walk (stairs take forever or I need help down...
Hi Lucy- I thought a previous positive ANA 1:320 was caused by the Celiac, but I just got results from a ANA that was run post 5 months post gluten free (doc was late in filing results) and it was...
This would be interesting info...I attributed my positive ANA to Celiac as I was told it didn't indicate Fibromyalgia....
Great point -- another money saver is buying GF pasta, cereal and flours on Amazon. You do have to buy more at a time, but with free shipping and 15% subscribe and save options we are saving major...
Great question! Many of the symptoms of fibro are also symptoms of celiac disease. In celiac the only treatment is gluten-free eating. Once completely gluten free my digestive symptoms improved...
Add me to the sensitive to loud noises, smells and bright/direct sunlight. It is inconsistent - on rare occasions these things hardly bother me....
You can be tested for the celiac genes DQ2 and DQ8 -- you can carry these genes without having Celiac Disease, but you can not have Celiac without one of these genes. Many things can trigger celiac...
Hi MichelleK- I was only on Savella for two weeks, but did have improvement with C. I'm Celiac as well - gluten free helped with C some, but the Savella made me very regular each morning with no...
Celiac can be very difficult to diagnose and can be present with both negative blood and negative biopsy. If your symptoms have improved on a Gluten Free diet you can be tested for celiac genes DQ2...
http://www.celiac.com/gluten-free/index.php?showtopic=4449&st=45 The link above is a 4 year discussion regarding IBS from another celiac forum. Not sure if it's a no-no to post links to other forums...
Celiac Disease is VERY underdiagnosed and many are diagnosed with IBS. Testing is wise. Doctors took 20+ years to diagnose me - I suspect I've been Celiac my entire 44 years. Complications from...
From what I understand there are many false negatives with Celiac Disease, but false positive is rare. My children (25, 16, 14) all have negative tTG IgA's, but all have various symptoms related to...
Wake up early to make big breakfast for everyone - ski all day - picnic on the mountain - ski more - cook wonderful dinner with hubby - hot tub - give thanks for the day and sleep comfortably!...
Thanks Marlee! There are quite a few Celiacs from a celiac forum I'm a regular on that have had improvement in their Fibro symptoms with intestinal healing, but there are also a few like me that the...
I was on Savella for two weeks, but was unable to get past 12.5mg twice per day due to extreme irritability. I'm only recently diagnosed...I did do a lot of internet searches regarding Savella...
Hi Ladygkp and group- I'm another newbie here. Diagnosed with Fibromyalgia on 10/27. I am also another Celiac/Fibromyalgia! I've been gluten free since March when I was diagnosed with Celiac. I too...