Hey guys, I have a quick question. I was diagnosed last december with fibromyalgia....i've pretty much dissagreed with the diagnosis from the start for many reasons. Apparently I have a few "markers"...
Hey, thanks for the relpy's, im def. going to try the mag/malic acid supp. i am low on vit d. I have some corn bags which i have been using. Does anyone have chest pain. I know its not cardiac...
hey guys, i've been diagnosed with fibromyalgia, so im packing my bags and heading over to that group.........thanks for all your help. Jenn...
I saw the rhumatologist today, and was diagnosed with fibromyalgia. After a whole year of pain and searching, I have finally got an answer....i guess i was expecting to have a huge weight lifted off...
the pain and tingling, i know, i thought that too.....LOL, i dont doubt that the topamax makes the tingling worse tho...
The neurologist said no to lyme, never been bitten by a tic. I really wanted--not wanted, but thought it would be benificial-- a spinal tap......neuro said no........
i had a few blood tests, but whats the work up???...
Thanks, i hope so too, the one neurologist looked at me like i completely made everything up, the other said my symptoms sound like fibromyalgia, i looked at the page of symptoms, and fit a great...
For the last year i've been experiancing some bothersome symptoms. Started with heavy tiredness, i wake up ok, but give it 5 hours or so and would need to take a nap. My upper arms and legs started...
so the nurse called me and told me my ssep results were normal, still waiting on the eye and ear ones. I still have no diagnosis, i fear i may be like this forever. I doubt the eye and ear will be...
i go for my eye and ear evoked potentials on tuesday, got some questions: 1- optic neuritis pain-can that be like an eye strain headache type pain?? I get this frequently, my main vision problem is...
I hope so too, i also wish I could have found the numbers on the internet. I was a little concerned how he kept re-doing limbs. And that he was typing alot, and he repeatedly asked me which side i...
I had one part of my evoked potentials test today, the ssep. painful test. Anyway, the tech wrote down some numbers. He kept asking me what side i was weaker on. And repeating the test. i tried to...
can you have lesions in your thoracic spine??...
I am in the exact same boat as you.............going for evoked potentials test the 8th of december, and another mri soon :(, i got the brisk reflexes, neg mri, neg emg, strange, huh, but im glad i...
does anyone have pain, the type were you feel like your standing in a bucket of ice water?? its soooo painfull. My feet and hands feel like there cold but there not. strange, is there anything i can...
i went to see a different neurologist last week to see if i can get any answers. She ordered the evoked potentials test and another mri with contrast. My regular neuro is going to be the one ordering...
I was talking to an infection control dr and she said the h1n1 vaccine is a live virus. I do not want a live virus for many reasons..............
ended up going to the walking today. My right hand went numb---not a little, i mean i could have shut it in the door and not felt it numb, then got another headache, couldnt balance myself, temors...
kinda sounds like migraines.........i get most of these symptoms for at least 20 years, ask your neurologist......
yeah thats what i mean, mine is not so mild, it was my first symptom too. Last night i had the heat on in the car and got way over heated, felt like crap, almost made a trip to the er. My balance has...
its bad..............cerebral ataxia is the medical term i believe, i call it the sober drunk walk..........lol...
i get that tinging up my spine, and it makes my head tingly, kinda like an internal itch on your brain. It happens alot when someone rubs the bottom of my feet. Do you get ringing in your ears too??...
I still have no diagnosis. I have a very hard time with my balance, and an even harder time trying to explain it. Im not dizzy, I sort of feel like im on a boat trying not to fall. Other times my...
get checked for sleep apnea.........
I used to get migraines once or twice a year. Since Sept 3rd i've gotten 8 :(.. Im exausted, I know i have my appointment in November, but im not sure how much more I can take, im nervous now because...
Can you have lesions on your t-spine?? Its been a number of months since my c-spine. Never had a t-spine. The actual cold isnt so bad, its what it does to me. Is this typical?? I find it strange how...
been on it for years...............different dosages..............i have many neurological symptoms, but always had migraines, now on depakote as well...
Hey, the specialist i am going to is a ms specialist. No lesions on brain with contrast, but i havent had c-spine with contrast yet, i had a regular c-spine in june of this year. I got a cold, just a...
I saw my primary dr today.....since my neurologist refuses to call me back.. He is so good to me, I called him yesterday, told him i've been having migraines and there making my neurological symptoms...
So, i've had 5 migraines since sept 2. Thats more then i've gotten in the last 3 years put together. Theses are different. The one i had last night didnt give me a real bad headache. But my mouth...
I agree with Gretchen, why lie here...weather we have been diagnosed or not, we all don't feel good........
The shot will be an attenuated (not live) virus, but the nasal spray one will be live. Rumor has it, its coming in the form of 2 shots. Not sure yet if there going to be staggered or together....
I looked Fasigyn up, it looks like the medication interferes with anti seizure medications, that could be what they mean--im not a pharmacist or a dr but as long as her dr is aware of her having ms,...
So, working at a hospital I see drs every day.....I saw a neurologist and asked him if there was any correlation between migraines and ms, he does not know my situation, and i had asked him about...
h1n1 vaccination is due out the end of october. I think in the form of a nasal spray. Im getting my flu shot today, Its mandatory for me as I work in a hospital. Im really worried about the muscle...
So, i've been having many symptoms for a number of months--my biggest problems being balance, jerky eyes, frequent urination, massive muslce twitches in my fingers and legs, muscle cramps--which i...
i wouldnt want to be the one that got the placebo, and getting no treatment, long term effects..........
Good idea, i've also got the actual disc he can look at :) I hope he can help........
Yeah, the one my primary is sending me to is a ms specialist, I cant wait, im soooooo tired of not feeling good...
Yeah, i got the spinal Mri, neg. My brain mri was in the begining of may, way before all the bad symptoms started....i know its invasive, i've seen dozens done, but i wanted a spinal tap. My...
Hey, haven't been on in a while, but just wanted to give an update. went to see the neurologist, had an em test that was normal. All he said was "see you in 3 months". No help to me. My primary dr is...
I get that same phone feeling--drives me nuts. As for the coffee feeling, its been really hot here, the other day i drank 3 coffee with double shots of expresso and 2 cups of cola and still almost...
Yeah, im not doing so well at therapy. My balance is gone, If i were ever pulled over, i would be in trouble. my fingers dont let go when i want them too. My legs are getting numb when i sit down.How...
Anytime :) Like I said, i obviously cannot diagnose, and you should always consult a dr. But Im here if you need some advice. My primary focus is cardiac, but we do get neuro patients regularly :)...
The steroid should be well out of your system. A rash is not one of the side effects of a steroid, the steroid is the treatment for any allergic reactions, rash, persistant itching. Heartburn is a...
i have developed some numbness in my right lower leg. It tends to happen when i am driving, or sitting. really weird. does anyone have positional numbness?...
I went to pt for my eval today. i thought i would be told everything is fine, go home. Apparently, my balance it way gone. I also have this thing when i grip, i cant let go. He said it, for some...
if it were from the head trauma, it would be the opposite side of the injury...
Again, thank you for the reply. Nystagmus is when your eyes shake. Mine occurs when I look to the right. I have not had a spinal tap as of yet. Im sure it is in my future at some point, possibly...