Hi Scaredteen - I am sorry that you may have this. My 15 year old daughter has FM/CFS/POTS. We have had a tough time with schooling as well. She used to be a high honors student. This is her second...
I feel the same way as most of you do about this trend. My 15 year old daughter has FM, CFS, and POTS. She is homebound now for the second year. We have had constant battles with the school. We even...
Hi Sonhasfibro - I am very sorry for what you and your son are going through. I can honestly say I can relate. My 15 year old daughter has fibromyalgia, chronic fatigue syndrome, and POTS (postural...
Hi Lucy - your fatigue could be from one of many sources. Fibro can cause alot of fatigue. RA can certainly cause fatigue. My rheumatologist told me that once we got the inflammation under control...
Good morning Leslie - my daughters friends know about her illnesses but I don't think they discuss it often. My daughter will read info on what she has if I have it up on the screen or print it, but...
Dear Mrsppmrxky - I am so sorry that you are going through all of this. I have been through alot myself and understand what you are saying. Bottom line is I think you have to do what you can and...
Sorry Leslie - I just did a very long reply and lost it!!! I will write again later with more. Kim...
Hi Perlygates - I am so sorry that your daughter has fibro. I am the mother of a now 15 year old daughter who has fibromyalgia, chronic fatigue syndrome, and POTS (postural orthostatic tachycardia...
Hey cnymomof2! I have been on Humira for a little less than a year. I haven't had any problems with it. I started on 20 mg prednisone and gradually lowered the dosage. While still on it I added the...
Hey Sheila - I don't know why all the sleep issues other than there are lots of possibilities as to why one can't sleep. My daughter has the problem where she can't get to sleep. I think once she is...
Sorry you are in so much pain, Sheila. I hope yuo start feeling better soon. Kim...
Hey Coping_not! The slurred speech could be a result of extreme fatigue, drinking, or other health issues. I take methotrexate along with prednisone, plaquenil, and Humira. My rheumatologist told me...
Hi Doreen - I have been on Humira since I think about September. Anyway, it does sting. Also, I don't inject into the abdomin, I do my thighs. I, too, warm it up for about 20 minutes. Make sure the...
Hi Lisa - are you confined to a wheelchair now because of fibro or something else? I think its good to always have dreams and goals in mind. Good luck. Kim...
Linda, I am so sorry that you have to deal with all of this. I wish you a speedy recovery and hope that the chemo and radiation go well for you. Please keep us posted on h ow you ar edoing so we can...
I don't have fibro (my teenage daughter does) but I have RA. I was diagnosed with that about 2.5 years ago. I was hiking through the snowy woods in the winter with some friends and our dogs in snow...
Hey Sheila - so sorry to hear about your injury. I wish you a speedy recovery and hope that you can start doing some mild exercises soon. I, too, think walking does wonders if y ou can do it. Get...
Hi Debbie - I don't live in your area, but if I were you I would keep trying to find a doctor that understands this better. Don't give up. It took us awhile to find someone that understands it. Try...
Ohsofibro - I am no expert in this but I believe alot of your symptoms are fibro related. I am not 100% sure of this but this is what I understand.....fibromyalgia used to be considered a...
Hi Bsjaguar - I don't know about the fibro componant of this, but I am assuming you take prednisone for the PMR. A high enough dose should keep that under control. Good luck. Kim...
Good morning Sheila! I hope that wherever you live that when you wake up it is sunny, your knee feels better, and it turns out to be a pretty good day. Here's to a better day!!!! Kim...
Steppingstone - thank you for writing about how it has evolved and impacted your whole life. We are struggling with it with our daughter and the school system. Like you, she does so much better in...
Thanks everyone - I get the setback stuff and can accept that. But how do you get the school that my daughter is supposed to go to to understand and accept it. Right now she is homeschooled with...
When I first started Plaquenil I broke out in a rash. The doctor had me stay on it and take some prednisone to get it under control. It worked. I never noticed any more fatigue from the Plaquenil....
I was just wondering how many of you regulary have setbacks/flares from doing too much activity compared to your current norm. For example, I took my daughter to the mall on Saturday. We were gone...
I believe the chest tightness, chest pain, and shooting pains are part of fibro. My daughter gets them. Before we knew she had fibro, she was lying on the floor for weeks on end in tears. No body...
Sorry to hear that you have RA, too along with fibro. I only have RA and my daughter has fibro. I wish you well. Kim...
I had bursitis in my shoulder a couple of times and had physical therapy plus meds. The physical therapy always helped me alot. I hope you get some relief. they should be able to give you something...
Sheila - I took my daughter shopping for some clothes on Saturday with a friend and her mom. She had a great time, but it was too much by the time Sunday rolled around. No energy and hurt. Today is...
If you can walk about 45 mintues to 1 hour 5 or 6 times a week, I think that would help. I know some can't walk. Kim...
Hi Sheila - I did two other posts but don't know where they went, so here is a short one! My daughter does a little stationary biking and yoga. She feels that the yoga helps alot. She finds walking...
Sheila - what was the difference between FM and CFS that they diagnosed both in your daughter? I understand the tender points. How did they distinquish the fatigue of FM vs. CFS? Was your daughter...
Hi KellieJo - as you know, only a doctor can tell for sure, but my fourteen year old daughter got diagnosed with in February with fibromyalgia. My daughter got sick in the beginning os September with...
Hi SouthTexasgal - I am sorry that you are going through all of this now. First, it can be hard to find a good doctor to figure this out. I would assume they checked you sed-rate and c-reactive...
Thanks everyone for your replies. The school received two of the same diagnosises from two different doctors, but still don't believe it. We hired a lawyer before the first meeting. Even with all of...
Sarah - you did a great job on that video, thanks. I really liked the person with the huge pill bottle on their back. The bear says alot, too! Nicely, done. Kim...
Thanks everyone for your input. I bought a 3" memory foam topper for my daughter a couple of days ago. It didn't work very well on her bed, but it is so comfortable on the floor in her room. It might...
Good morning lostnomad - I am sorry that you haven't been sleeping well. I don't have a solution for you but hope that in time your body will let you sleep. Kim...
I was just wondering who out there has also been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) along with fibro. My daughter was diagnosed with that by one doctor but the doctor...
Thanks everybody. I am not sue what I am going to do for my daughter. She has been sleeping on the floor for the past 3 nights. Although her current bed is a pretty expensive mattress it doesn't seem...
I was jsut wondering if anyone uses a memory foam mattress topper. Does it help with the pain and stiffness? What thickness do you have? Thanks. Kim...
I just want to say that I am the mother of a teenager with this nasty illness and I feel lots of emotions with this. I think my daughter handles it very well most of the time. At times it just breaks...
Hi Sheila - I am sorry you are having a tough time. Can you switch doctors? I don't have any experience with a Pain Management Clinic, but is that an option? Shortly after my mother had a major life...
Hi Upbeat - it is my daughter that has fibromyalgia. She still dreams of running and being as active as she used to be. We aren't there yet. Walking is hard at times for her. She is doing yoga on her...
I was just wondering if anyone out there who has fibromyalgia is able to run on a regular basis. If you do run, how often are you able to run and for how long. Did it take long to buld up to that...
I think my daughter feels that (not feeling right before a flare). She was just describing that to me yesterday when she became so disfunctional when the tutor was here. One minute she can produce...
Hi Suzboop - I think I might have some info for you in regards to PMR. I visit this forum because my teenage daughter was diagnosed in February with fibromyalgia. Two years ago my joints swelled up...
Hi Moggy914 - I have RA and my teenage daughter has fibromyalgia. I think fatigue is a big part of everything you have. AT times I have had that debilitating fatigue. My daughter still deals with it...
Hi Mary! My daughter was diagnosed with fibro. She got sick with the H1N1 or a virus and never really recovered. Symptoms kept changing. She got sick the very beginning of September and got a...
Yes, my daughter has had the tremors in her hands. Before she was diagnosed we kept bringing it up to the various doctors. She says she still has the tremors. What a complicated illness. Thank...