This information above needs an amendment - at least. I know the original poster meant well, however, my experience is very different. I have given many written journals, notes, records, photos,...
Thank you both for understanding, Shirley and Robin. If anyone wants to get in touch - my yahoo email is on my profile. (Please make the subject line something I might recognize - yahoo filters to...
Hi All, I know I just got back to the forum. But I have to leave. I'm very sorry. I'm in such a fragile place trying to keep my mindset positive - trying to keep improving my health. I'm very sorry,...
There was a topic here about a month ago - and it was named something like, "Savella almost killed me." I have tried the search feature to find the topic, but I can't dig it up. The point was, the...
. Headphones. :cool: Someone mentioned getting relaxed, only to get wound up again. That's normal. Especially normal when you're just starting out. Expect it. The relaxation feeling may only come...
Thanks, Sherrine and Robin. You two were the first to come to mind when I posted this. ;-) I know how strongly you both feel about keeping moving. And yep, I'm heading in the right direction ->...
(((( Linda )))))) Keep being strong - just like you're doing, Linda. You're a good fighter. Look at the courage you had to take control when your former cardiologist threw you a curve ball. You took...
I have not had one. I will not get one. I am too chemically sensitive for it. In almost every case, I react to the medications that are designed to save me, very badly. No to flu shots for me. You'd...
(((( Debbie )))) I'm so sorry. I hate tachycardia episodes. They rattle me. You'll get it taken care of. Keep re-psyching yourself to sub again. Don't let that good feeling disappear. This was just a...
Hi Carley, I'm really sorry about your situation. You're being pro-active and smart by looking for ways to deal with the stress. Our reaction to things is more important than the "thing" itself. I...
Kittybear, how are you today? Any time your tongue gets swollen, you need to consider that it can be an allergic reaction. Do call your doctor asap and get this checked out. Swollen tongue is nothing...
Good Morning Fellow Fibromites! Someone here told me about a scientific study proving Tai Chi makes a dramatic and sustained difference to the health of people with fibromyalgia. Another member...
((( Robin ))) Please let us know how you're doing when you can. I agree, please call the doc just to get a checkup on this. It could be something like the muscle relaxers - but would be safest to...
Thanks, GSDgirl, Robin, Karen, Sherrine, and Libby. *hugs* All your kind wishes are really appreciated. Sherrine - yep, trying to get myself to be able to increase the amount of yogurt I can tolerate...
Aw! Shirley, that really is sweet. *Great big hugs* Debbie, *great big hugs* to you, too. I'm sorry about the relationships thing - I can really identify, sadly. Sorry to about your extra pain. Isn't...
Hi everyone, Shirley got a hold of me by email. She told me some of you were worried that I was missing. I'm very sorry about that. I didn't think anyone would really notice. I sure didn't mean to...
Going off topic a little - but have any of you ever met with a doctor and felt like they were self prescribing? Seriously. I had a woman nurse practitioner and a woman doctor - two separate times -...
Geez and I thought I was the only one who has had trouble like all of this with docs prescribing crap. They hand out meds to me like candy from a pez dispenser. I usually do not want them - and tell...
Dagger - thank you very much for posting your first hand experiences and research about savella....
Hi Shirley and Robin. Glad you liked it. I don't want to give away anything for those who haven't watched it - but I just loved the story (the ending) about his dog!! Thank you both....
Good morning again, everyone. Today is a little different. I'm posting a link to a youtube video. It is the narration by Tony Robbins of the real story of how Sylvester Stallone struggled and...
Hollywood, I'm so sorry about the terrible time you're having right now. Holy cow, anyone would be daunted, to say the least. It's great you came here for a shoulder, because these people are...
Just was googling about the dangers of savella - found there is a class action lawsuit being formed. I don't know this firm - and I don't know if this is all on the up-and-up - but maybe reading it...
Kat, While the chances are high that you do have fibro, there are more tests that need to be done to rule out other very similar illnesses. He should have done those for you. Don't panic though -...
Java - ditto what Vestabula / Donna just said! Please go read Moonmatrix's topic about Savella. Here it is: http://www.healingwell.com/community/default.aspx?f=24&m=1886335 I had NO IDEA when you...
((( KellieJo )))) Oh, hon, I'm so sorry you're going through such a hard time right now! We're all thinking of you. We're here any time you need to get things off your chest. We do understand. Hoping...
Hope things keep getting only better from here forward. Take it easy and take extra good care of yourself....
Good topic! I hate my bed with a passion. I dream of a new mattress. However, I can tell you a few things that don't work so well. (1) I bought a synthetic feather bed. I thought it would be like my...
Is it just me, or does this sort of wax and wane? Like right now, I'm terrible - and have been for about a month or so, since I've been so sick with whatever that was. You wanna hear pathetic? (I...
Look, up in the sky! Is it a bird? A plane? No! It's Robin - scoring a victory against that dastardly villain, pain! Hurray for Robin! (Great poem)...
Thanks Shirley, Yep, those are good ones to live by, I agree with you. *gentle hugs* back at ya. :) Karen, thank you. I love to learn how people came to be where they are. These current ones I found...
Debbie - I love that word, chutzpah - and heck yes, he sure did, didn't he? Thanks. Robin - I'm so glad you enjoy these, too. It is one of the most immediately beneficial things I have done for...
Good Morning everyone. :) It is lovely and sunny this morning and I hope you're having good weather, too. If you happen to read this - would you mind just saying "hi" in the comments section? Just...
Thanks Shirley and Robin. :-)...
Hey, GypsyBlue! I'm glad you made a topic so that you get to meet the others. They're pretty cool, eh? :cool: (I really want a chicken emoticon) Now please do not insult yourself about your...
Thanks, I appreciate you taking the time to write about this. Sounds like you are as sensitive and react to meds as much as I do. It helps hearing about someone else who walks a different path...
Nana Monster, I'm sorry to ask a question in the middle of a post about something else - but I hope you might give me your perspective on this. I'm smack dab in the middle of neither really wanting...
I'm so relieved reading this thread learning I am not the only one who feels this way about meds. I always feel so alone in my convictions. Can I throw in one more recollection from my appointment?...
You know, I've got to share this. I did appreciate my new rheumy taking time to go over all of my info with me, but there were little things that I'm recalling now which upset me a bit. For instance,...
Good morning, everyone. Thank you for commenting and supporting these posts - it makes my day knowing you get something from these, too. Without further adieu ... -------------------- "You're...
Thank you, Shirley, you are the best little engine that could and we all love you to bits. Robin - what a wonderful quote. It is good to read it - it fuels the inspiration fires. Thanks. Debbie -...
*great big hugs* Moonmatrix. I know this looks really hard from this angle, but I really think that somehow there will be something else that will bring you relief. Please stick around with us. We'll...
Thank you, Cathy. That's definitely an idea to consider. I won't rule it out. Thanks for helping me feel less nuts....
Oh Moonmatrix!!! Was it you on the weight loss thread where you were wondering if it was your savella? You probably didn't see it - but I posted more on there for you about the side effects of...
((( Debbie ))) Many thanks for understanding. How I long for "simple." Simple and Peaceful, forever, would be just swell....
Thanks Karen. I'm wondering if this might be more D3 than I actually need. I've just emailed my doctor. He should reply within 2 days. I think I'll skip taking it until I hear from him....
I realize this will sound crazy, but something weird happened this afternoon and I can't figure it out. The new rheumy told me to get more vit D3 - like 1,000 - 2,000 units per day instead of the 400...
Welcome Vikatory, Everyone has given excellent advice. About your tenderpoint question: When I was first diagnosed some years ago by my g.p., my tenderpoints were much more sensitive and reactive....
Hi again Desiree! Thank you for giving me some good feedback on the Tai Chi thread about which videos you like for both Tai Chi and Yoga. I'm very excited to hear about those sorts of things. You're...
DC3886 - this was a good topic to post. I'm glad you shared the info. When I read the article, it also said it is closely related to and acts just like the date rape drug. Knowing what that drug...