a year ago, and I had to start all over with docs. My PCP told my LTD carrier in June that he had not done a disability eval on me (even though he signed the paperwork and declared me totally...
When I look out at my gardens in disarray, I'm hard pressed to figure out who that person was that was gardening in April, May and June! I totally empathize with you. I don't work anymore. I lost a...
Every day we live in pain feels like an eternity, doesn't it? Especially when we are waiting, waiting, waiting for labs, test reports, doctor's evals, etc. Then we get to the long awaited doctor's...
I completely concur. Get to the doctor ASAP....
I am in a flare that is worse than what I usually experience in the fall. Knee pain, low back pain, and a neuro I saw just yesterday suggests that most of my pain is fibro related (although he...
Thanks, Debbie for your response. I hope you can be successful in weaning yourself off the meds...I do agree, to a point, that there are worse things. Well, I should probably go try to get some sleep...
First thing my rheumy did when he dx'd me with fibro in April 2008. My D level was 13! I have been on a script for 50,000 IU weekly, and I supplement with 1000 IU daily. Really have no idea if it's...
Well. I saw a new neurologist today. (We moved about a year ago, so I have been building a new medical team... /community/emoticons/shakehead.gif ) This guy says the excruciating knee pain I've been...
Hmmm.....entering in to a new phase of pain...the knees. I see a neurologist tomorrow as I have been having terrible low back and leg pain. I've had an MRI of my low back and it shows moderate DDD....
Pam...thanks for sharing....what a great story of HOPE....no matter what fibro or any other illness takes away from us, we always have HOPE!...
Get better soon!...
Hello, fellow Michiganders! Must be something about MI and knees....mine have been throbbing, too. Excruciating, actually. I have DDD and tend to think maybe it's osteoarthritis showing up in other...
No. I couldn't tolerate Lyrica, and so my PCP doesn't think it's worth it to try Savella. Apparently they are related....
Moon...saying a prayer that all will go for you, and I wish you a speedy, low pain recovery....
Thank you to your husband, and you, for your service to our country. I salute you....
Hey, it must be "reunion" weekend :) I just dropped in after a long absence too. I am married to an ordained minister, and have first hand knowledge as to how stressful it can be, and the long hours....
No. Strenous exercise in and of itself cannot "cause" fibro. Bring on a nasty flare? Yup. From my understanding there are three primary ways to develop fibro: severe emotional trauma, central nervous...
You have other options than waiting around for the rheumy. In doing some research for my own SSD case, I read that having a couple of specialists with the same Dx is helpful. Why not try an...
Oh, Kat...and I thought being 48 (twice your age) and feeling 80 was bad :( I cannot imagine being 24. I do agree with everyone else, though, regarding a Dx...there was a sense of relief when the...
Congrats, Kathy! Keep up the good work! Debbie...I'm where you are at...although it may even be only a block right now for me, due to my knees. Fibro is not for sissies!!...
Hello... Haven't been here in a while...my friend fibro and me...well, we did okay earlier this summer, but now...let me just say, I'm ready to kick the bum out! In addition to fibro, which I'm...
My husband came home one day and found me looking at them online. He was shocked and said, "why are you looking at THOSE?!" It made me cry. Then, it became one of those moments where I realized this...
Hmmmm....I don't dream anymore. Not sure if it's the Tramadol or Neurontin. Which tells me I'm not sleeping normally. Whatever "normal" is....
Griffin - why don't you suggest to your sister that she cut out gluten and see if it cures her thoughtlessness. (sorry, couldn't help myself) I got my handicap placard just like the above people - go...
I just posted on another thread about leg pain - question of the day or what?! I have increasing pain in my thighs - and do also have a hard time getting up from a sitting position. Mine is mostly in...
I suffer daily from pain in my legs, in particular my thighs and feet. Never had this before fibro, so I would say, yes, it is part of fibro....
Monica - I am on tramadol, and you have read correctly: the maximum dose in a 24 hour period is 300 mg. I take 50 mg tabs, up to 6 a day. My "day" is not often 24 hours, but occasionally I'm up til 3...
Congrats, Kelly girl! That's no small accomplishment!...
Well, I'm on disability from work, too. I know that between living with chronic pain and missing being around my co-workers and clients, and just plain more comfortable at home than being out, I'm...
Tramadol is what has been prescribed for my pain. It takes the edge off for me, but doesn't get rid of the pain. I was also tested and found to be severely deficient in Vitamin D. I'm on an Rx of...
I was just noticing the other night that almost all of my fingernails have vertical ridges. I googled it, and any number of articles I found said it's nothing to worry about, and there was no known...
I definitely have neuropathy in my feet. Lately, it's been bad, where they vibrate all day, and by evening they are burning up. I confess, I go barefoot at this point: walking on my hardwood floor...
DITTO x 10!! Ah, the simple pleasures, eh?!...
Ginny: It's hard to know what the right words to say are...I'm glad you at least have this place to pour out your heart. I miss my chosen profession, too. I just am grateful for the disability...
I tried Lyrica and couldn't tolerate it. I seem to be able to tolerate Neurontin better. My rheumy had told me that Neurontin was the predecessor to Lyrica - but like all of these drugs, what works...
The pain management clinic here has been doing that for a long time. Also, I know someone that had to sign an agreement to only get their drugs from one pharmacy, too....
Dear Anne, Wow - sounds like you have a plateful. Most of the time, I don't worry about folks not understanding fibro, but when it comes to family...maybe some education would help. There's a good...
It's the darned unpredictability of it all - I have been off work (I, too, have primarily a desk job) since October, and I just don't know how I could go back to work and deal with this DD. More...
Sue - it's never fun to get rejected - but, hang in there! There's still hope!...
Yeah, fibro is a bummer. THAT'S probably what is bothering you more than anything. Hang in there - we never know what someone else is dealing with until we walk in their shoes....
Hi Michelle, I don't believe that fibro has any impact on the white blood count - that's an indicator of infection, which fibro is not! -Julie...
Danielle, Sounds like you're doing all the right things...can I send some chicken noodle soup? Hope you feel better soon, Julie...
The birds are in hiding here...we're supposed to get 6 inches of new snow between today and tomorrow...I'm going back to bed....
Hey, Jen...I'm wondering if you and your fiance have looked at taking any of Dave Ramsey's courses?? I know you probably feel like you don't need one more thing to do right now, but I have a feeling...
Thanks Patti and Ginny for your responses! I do have pretty good insurance, and I would definitely get pre-authorization before I had the full body scan. I need to pull out my MRIs (or was it Cat...
So, over the weekend, I discovered this hard,painless, elongated lump just below my left collarbone, more towards the sternum than the armpit. Had x-rays done of entire left rib cage, armpit, and...
Dear LMS - I guess as I read and re-read your post, I don't hear you asking for advice...as you said, you do know better. I am so sorry you have to deal with this DD at your young age - in fact, I...
Hi Bet, I'm glad to have seen your post! Yep, I had a two level anterior cervical discectomy with fusion (ACDF) in Jan 07. My symptoms included numbness in both arms and hands that increased over...
Glad for your good news. I saw my prim doc today because of a hard, elongated lump just below my left collarbone. I am praying it's too high to be a breast tumor. Had the x-rays this afternoon and...
Marlee, I'm praying for your family, the baby and the health care givers, that you will all feel God's peace through this stressful situation. God Bless, Julie...