Thanks Ak for the advice; I struggle with myself every day over this matter. I also just switched my rheumy care to the doc I work for and have only seen her once as a patient. My last rheumy pretty...
I have had tooth decay since I was 20years old, to the point now where all of my back teeth are gone and 5 of my front teeth are fake. I have fibro and rheumy has ruled out lupus because my labs were...
I have been through a whole lot of changes in the past 4 months for my health. changed careers-after 13 yrs of working in a fast paced, multi doctor eye clinic, I took a less paying, less stressful...
Thanks Chutz - it seems to have gone away, but will definitely check with the nurse if it comes back....
My rheumy changed all my meds last week, started me back on lyrica, cymbalta, flexeril, ambien, and vitamin d, then added new diagnosis of osteopenia and started calcium suppliment. Woke up today...
I'm the same way- want to bury my head under a pillow with ear plugs,lol. I've always hated the noise of fireworks and used to feel so guilty when the kids were little and wanted to pop them....
Thanks for advice, will give it til monday and see. I know I've felt weird in the head all day today, so hopefully it will get better after taking the meds for a few days. I take Ibuprofen and...
Since I was here. I've been doing fairly well with coping with this dear illness through winter and spring, but summer is always my worst flare ups. Anyway, went to see the doc a few days ago for the...
Thanks for the link Sherrine; sorry to vent-just aggravated because the ENT couldn't find anything. He checked for ear wax, middle ear infection, deviated septum, and did hearing testing. He said, he...
Thanks Kat, doc checked for fluid, did hearing testing, everything was fine. This is constant for the last 2 years, I've just never had it checked til today. I just feel like a fool when I have a...
My right ear has been feeling like it has cotton in it for about 2 yrs now, but recently got worse about a week ago when I caught the flu. So I went to ENT doc today who ran all kinds of tests but...
I think by being pro-active in with this illness, we as patients will become more heard and our symptoms will be recognized by doctors in all specialties; this will lead to fibro being taken...
Ok, well, I'm gong to the doc Monday and will let her know. The pain though is in the sternum, right between the breasts. Sherrine, I will def. check out the fibro thread. I've read it before, but...
For last couple of weeks I'm getting a tightness in my chest, and sometimes feel like I can't breathe-I know it's anxiety because I'm VERY stressed at work. But wondering also if symptom of...
I think mine started when I was a teenager. I can remember sitting in class one day and my right arm suddenly feeling like it was going to fall off; it turned out to be bursitis and after that I know...
Have you seen a rheumatologist? They are usually the ones that believe in fibro the most. I hope you find some answers and get relief soon!...
What a lovely poem Robin, thanks for this :)...
Denita, love the poem; maybe I'll post it on the fridge. Thanks for the support gals, it means so much to know someone understands. Robin, I am on my feet all day at work. I work in an eye practice...
Hi all, it's been a while since I've logged in. My computer crashed and finally got it back up. I've been flaring since Christmas, I know it's from the cold like all my fibro friends. But I'm...
Is this common to fibro? My feet burn and hurt especially when I stand after sitting for 15 minutes or more? Sometimes they even feel like the ligament/tendon is pulling in the bottom of both of them....
Myjoy, I'm so glad you're doing better!...
Thanks for the kinds words. Acheybody, that's about how I would describe it; labor. I finally found a little releif last night when I rubbed sombra at the base of my skull and a little on my...
It woke me up early this morning with pain at the base of my skull and over my eyes. so sensitive lights, smell, sounds. Lying down seems to make it worse. Meds aren't helping. I just don't know what...
I take xanaflex twice a day, one the mornng and two at night along with my nightly ambien. I could tell a huge difference when I started the xanaflex. I didn't realize how bad my muscles were...
My hands and legs feel like this aftera stressful day. My doctor put me on xanaflex which is a muscle relaxer-it has done wonders for the cramping. do you take a muscle relaxer or something for...
My symptoms started when I was 17; for years docs just treated it as bursitis or pulled muscles. It calmed down when i was in my 20's then hit me very hard with almost every single symptom of fibro...
Chutz, awesome articles; just a thought, but maybe these could be added to the fibro 101 thread?...
I get my words mixed up, forget when I'm cooking; but the one that my kids will never let me live down is when I was panicking and looking for my cell phone(I was talking on it,lol). all we can do is...
Myjoy, I'm sorry your going thru this, but the first step is admitting the problem. Just remember that you have friends here that care and when you need a shoulder, we are here for you....
I'm so sorry your in pain. My hubby and I kept our 2 year old nephew for 3 weeks while his parents were in field training with the army and I ended up in a horrible flare that sent me to the...
Hi simplistic, you've come to a the right place to vent, and learn about this dear disease. I've had almost all of the same symptoms at some time or other and have been living with for years now....
Hi and welcome to the forum. I have the pain in my hips and thighs and so far my doctor is saying it's the fibro. I've never taken gabapentin and unfortunatley this illness is a trial and error kind...
I had a patient last week that told me she had fibro when I was getting her ready to see the doctor; we talked for about 30 minutes - it was so nice to finally talk to someone face to face who...
Myjoy, please don't let one persons comment take you away from here. I enjoy reading and commenting on your posts :) and feel like I've made a friend with you....
Fibronana, how did your appt go?...
my left hip and the gnawing burning muscle pain that are with me 24-7...
Oh, I forgot to add that I always feel like i'm running a fever when I'm exhausted but every time I check my temp it's normal?. This crazy illness makes me FEEL crazy sometimes. Nana Monster, I keep...
Fibronana, have you ever seen Dr. Salvato in Houston? I've heard alot of promising things about her and after basically firing my rheumy this past week my husband wants me to go to Houston and see...
Myjoy, I've never taken provigil but i am on generic ambien. At first it was a miracle drug for me, I could finally sleep! But after taking it for a couple of months, it's back to insomnia land. I've...
Oh yes, I feel this way almost all the time now. It's real bad when I first get up, gets better around 9 til about 2 then it's back to exhaustion again. I think it's part of the fibro. I've been on...
I had gone to HR people several months ago about the FMLA act and let them know I hve a chronic illness. They signed the papers for the fmla in case I ever need to use it. I am planning on talking to...
At work yesterday, we had our monthly office meeting. Because of one person in our office that calls in at least twice a week, they have implemented a new rule: maximum of 5 days per year that you...
Just got out of 2 day stay in hospital. Thursday morning, I bagan having such sever pain in my lower back that I couldn't sit, lay down or turn from side to side. My daughter and husband brought me...
You are right Sherrine. I was just to the point where I couldn't go anymore today and I let someones snide comment bring me way down. Thankfully I can walk, and my cane is now my friend....
I've had 2 patients today make ugly comments about my limp. I've tried to hold my chin up, but I guess Im so frustrated with constantly hurtin that I let my last patient get to me and I ended up...
That's exactly what I would call it! i'm on the move all day-I'm a tech in a doctors office, and I never sit down unless it's my lunch break. It does get better with movement. And it back again at...
I'm used to being stiff when sitting for a while or sleeping, but lately I'm also getting sharp, stabbing pains in my lower back. Teh stiffness is getting so bad, that I cry out when I try to turn...
I usually don't have a problem staying asleep, unless my bladder kicks in.It's just getting to dreamland that is the problem for me. What kind of herbs do you usually take Nana?...
Wow, that's a heavy load. Have you had bloodwork done? If not, I would start there first. Be sure you bring your list of symptoms with you....
Ha ha, Nana, I ended up on the couch because I kept waking up my husband. After an endless day at work then the ball field to watch my daughter play, I think you could knock me down with a feather....