The only significant side effect from Lyrica - and I've been on it since about 2007 - is that it puts on a little weight around the middle, but then again so does Prozac or Zoloft that one is often...
Hi everyone I haven't written for ages because I've been well and living a near to normal life with FMS - a lot of effort, but worth it. Recently I had a very bad flu which was going around the whole...
Hey guys, I'm going to LA and NYC - from Sydney that is. In November my daughter will visit for a month, then back home to Syd's Bush. I would appreciate any tips you may have for travel. It will be...
Is there a connection? Do any of you fibromites have bunions? They say it can be genetic, but there's no sign in my family. They say it can be caused my muscle or ligament weakness or a neurological...
Hey guys What's with the sore eyes? What's the connection with FMS and sore eyes? My eyes have pretty much been itchy since the Rx, but suddenly they are really dry and itchy and getting worse....
Hi from downunder, We get social security here for fibro - I await comments to the contrary of course. I read the other day that 1 in 25 Americans have fibro and 1 in 22 Ozzies have it too. Your...
You guys are something else ... that's what I love about this forum ... you have something on your mind, air it and get an instant comment. Thanks so much, it helps me evaluate as the CEO of my fibro...
Barbo Thanks for sharing your experience. I'm still considering whether to go or not! You've prepared me at least - I have this thing with procedures, where I recite (silently) all Presidents of the...
My Rheumy has booked me in to the local hospital for an EMG/NCS (nerve condution study). Has anyone had these tests done? What is the benefit of these tests for fibro sufferers? Is it painful for us?...
Shirley God be with you Darling. Thinking of you. Oxygene...
Hi guys, I would like to know how you are all going with this. I'm on 150mg Lyrica and managing fibro quite well for the moment, but recently paresthesia, or pins and needles is getting worse in the...
Denita I pray everything turns out okay for you - this will pass. Regarding your thyroid, I had a multi-nodular toxic thryoid a few years ago, and I had it taken out. They leave 1/8, so that...
Is what we have a "virus related dysfunction that affects the Neurological parts of the human body"? I would ask the Moderator to answer this question. Oxyegne Love to all those suffering from fibro...
Thanks guys for sharing your experiences and pain. You are all so aware of your fibro. This is one of ways we learn to manage it - having a forum like this. I've gathered from your comments that I...
Does anyone suffer like this? Everytime I go to the hairdresser, I come home exhausted and in pain all over. Short visit - a clip, medium visit - a colour, long visit - the whole works with foils....
Kathy I know how you feel - I think. Last winter I was like that, and after three months of pain, pain, pain and exhaustion, I decided to take the holistic approach and get the bottom of it. Take the...
Do-over Brave girl - baby, job, family, husband and fibro! Congratulations first of all, and good luck. I admire you - I know I couldn't do what you do. Excellent person. Oxygene...
Free spirit, I too went to my doc and said I've got this funny pain in my scalp - can you get fibro on your head? He just said "Yep". Also, the feet. I never, never have had problems with my feet...
Bay, Loved your post too! You know a close girlfriend of my skyped me last night from the other side of the world with man problems, "he just doesn't understand" etc. She asked what's the answer, and...
Kitty Yeah, Sherrine's right, after having read Fibro 101 you will realise that there is definitely a connection. My D levels were very low after I was diagnosed with fibro and now I take supplements...
Yeah, I know how you feel luvskermit. You poor thing. It is so maddening! I've been keeping a pain and activity diary for the doctor and I've been somewhat okay on 150mg Lyrica, but today I'm at the...
Mary I don't have all the trigger points, never did. It started in the one on the left hip/lumber area. It was white light pain - I would need to be on a morphine drip if I had all of them at once....
Scared I read your story and I felt sad. You are in your prime as a young man. When I was first diagnosed I was in "white light" pain (as I called it) - tramadol did help then. I had just turned 50...
Thanks guys for your comments about tinnitus. I'll try to get my iron foundry in tune with "Rainbow Connection" with a Kermit accent to make me smile. I think I will be able to do it! Thanks for the...
Pam Please tell me how you were diagnosed with Renauds, if you don't mind. Oxygene...
Lorraine I sympathise with you. I went from 40 hours per week, to 30 to 20 to 14 to 10 to 6 then 4. It hurt, cause I loved my job. Now I only work 2-4 hours a week. Fibro really gets to the core of...
Hi Kathydownunder Yes, you made me smile. I am also downunder - it's spring and the birds are singing and the sun is shining (albeit on and off). I worked this morning, came home very tired and had a...
Sherrine - what diet (or links) would you recommend for fibro. Some web sites say eat fibre, others say don't eat fibre. There doesn't seem to be one diet. Any recommendations? Oxygene...
I love it - getting the most out of life and fibro! Great attitude. Oxygene...
Does anyone know if there is a link with tinnitus and fibro? I get it off and on and 20mg Endep at night seems to bring it on more - I usually go to sleep with the sound of an iron foundry in my...
Trauma - I was married to an abusive man for nearly 20 years - in that time I had thyrotoxicosis and a thyroidectomy. I recovered and got very fit and went back to college and studied Law and...
fibrodepressionmom So sorry to hear about your dive into depression. I was there before fibro. You're brave and you have a baby, well done! Words of encouragement ... well, how about "Courage equals...
I've been on Lyrica 75mg am and pm for a few weeks now, and felt really good, even though I had some pain breakthrough. Then I went to a Rheumy and he increased the nighttime dose to 150mg. I woke up...
KristaM I got fibro in 2006. I was on a walking stick at a young 51yo for nearly 2 years. I took Lyrica and IT went away, or rather, I was in remission, and I threw away the walking stick and I was...
I took Cymbalta and ended up in the emergency department three times. Nobody knew what what wrong with me. I just collapsed - it appeared like a stroke. Fortunately I had a brilliant Emergency...
Hi Guys, its daylight downunder FMS and insomnia. I sympathise with you. Nothing is worse. I spent months or years before I learnt that they were connected. I take 30mg Serepax and 10mg Endep every...
Hi everyone Re Fibro Fog I find Ginkgo Biloba helps memory and concentration. Oxygene...
Hi Beverly Welcome. I've only been a member a short time, but I've learnt so much - not just tips, and hints, but a sense of "being part of something"instead being on your own with pain and you sense...
kathydownunder Wow, what an experience! I agree with Cindy C, write to the CEO of the hospital. I've done that before - last cancer surgery (left anxilla nodes), the anaesthetist didn't have my file...
Tks everyone for your encouragement and wonderful words and warm from across the world. I'm getting on top of it guys. Oxy...
Hi fibro gang Does anyone know anything about the benefits of using essential oils and carriers oils in the bath for fibro? Does it help. Doc increased my Lyrica from 75mg per day to 150 mg per day....
Hi Fibro Gang I've got an appointment next week with the head honcho of Rhuemat. in this state. Question: "What can I expect from him? Secondly, I've noticed that Sherrine takes an enormous amount of...
One Tbls of Honey in 2 Tbls of Apple Cider Vinegar followed by boiling water is more palatable (lie a hot 'toddy', or hot lemon and honey drink), and yes we'd have to drink loads to get all the malic...
1flwrchild I had that pain. I thought I was having heart problems too. It went away before hardly a diagnosis from my doc. I felt like and old lady, taking off my bra all the time. What am I talking...
Hi Feisty Lady I can relate to you ... beans, nuts, lentils, fruit, veges, walking, olive oil, vitamins, blah, blah, blah. Inactivity puts on weight and meds put on weight ... You know I always ate...
Thanks Sherrine for Fibro 101 - very imformative - the best. What is malic acid? After work today I went to a health shop and asked for malic acid and they didn't know what I was talking about. I...
Hi Drowsy I think you're very brave. Welcome to the club - you sound like a contender. As for the confusion, our lovely moderator (Sherrine) should be able to help steer, clarify, answer and advise....
Sherrine Balancing Act and Pacing, yeah, that's it. that's the answer! I already do it without knowing, but hearing from someone else means it's acceptable. Thanks. After cancer diagnoses I was...
Wow, I'm impressed. Thanks guys for your support and kind words. I've got out of the forum three things already: Something our Moderator said " ... I really work at making sure I'm the one in...
Hi Gang I'm from Oz and a newbie. It's great to see that I'm not the only one. I've had FM for three years and it presents itself with three main characters - chronic pain, general malaise and...