Thank you everyone for your responses. And for the suggestions......and for just plain understanding what I'm talking about. CHUTZ that is an interesting take, you make very good points about...
Not sure if it's different in different states but I live in FL and a friend of mine filed for disability and when it went before the judge, her lawyer was the only one physically present on her...
Does anyone know why riding / driving in a vehicle is so painful. It flares my fibro pain very badly. I had one other friend who warned me about this when I was first diagnosed - however - as I had...
I'm sorry to hear you are in so much pain. I have issues with this off and on. The only fixes I know of are temporary - hot showers, gentle stretching. A biggie for me though is NO LIFTING. At one...
Hello badamz, I am 35. I wasn't diagnosed until 2005.....unfortunately my husband was not supportive and wanted me off of his insurance policy so our seven year marriage ended in 2010. I live with...
Dear Luvzminis - I'm fortunate that I don't have to pay rent because I don't make a whole lot of money. HOwever, I homeschool a six year old and do the families laundry and load and unload the...
Yo Yo - I don't think I'll be trying totally raw.....was just curious if anyone else had experimented with this. Lost In Philly - yeah I wouldn't be able to afford it....I rely on my family for...
Two friends of mine (who do not have fibromyalgia) have recommended a raw diet to me.....has anyone out there tried this OR any other nutrition plans that have helped with fibromyalgia? Thanks...
A couple of friends have suggested lately that I try a raw food diet. Has anyone else with Fibro seen positive results with this OR any other nutrition regimens?...
I can also empathize with you. Not being able to keep up with everyone else can be hard on our pride and just make us plain sad sometimes. One thing I've learned is that as much as possible - listen...
Hope your children are feeling better soon. :o)...
I used to take Lyrica (75 mg twice a day) It was a dream come true until I built up a tolerance. My doc tried to increase the dose but I started seeing things in fast forward (visual disturbance) so...
Dear Sonhasfibro, I was finally diagnosed in 2005 although - I had been dealing with "some" of the symptoms since 1995 - and saw diff Docs but could not find answers. I was told that Fibro does not...
When I was younger it was just my knees.....I'm 35 now and it's knees, wrists, jaws and most recently the middle finger of each hand - all these areas the joints have become very loose and slip out...
About 8 months ago I developed pain in the top joints of both my middle fingers (the birds are injured :-) And I mentioned this to my rheumie b/c I've had pain for years in my wrists and hands but...
Is it possibly a photosensitive rash? If so - plaquenil has helped me alot. I started getting what looked like ringworm on my face (in the mask area). Anyway you could see if sunscreen helps that way...
Robin, Maybe there is even an additional muscle relaxer that could be prescribed to help things calm down? Maybe you could ask your doctor. I know from experience that sometimes you've done all the...
I also have scalp tenderness and yes it feels like bruises and I can feel it even if my hair moves. It is worse some days than others. Have not been able to wear a headband or pony tail in years -...
Thank you all for your responses and insight. Sobermommy - I'm sorry that your surgery hasn't brought relief and you are the second person I know who has had the surgery but not so great results (and...
A couple of years ago I started having to wear wrist splints when I sleep to help with wrist pain. Over the last year I'm having to wear them more and more even some during the day.....does anyone...
Kittybear1, Maybe eventually you could have blood work done to rule out other things but yes it does sound like fibro. You mentioned it is worse in the arms - mine has always been the same. I thnk...
About six years ago I was having very bad short term memory loss. For example, I would be at my church or at my bank but for several minutes I would not "know" where I was.....couldn't recognize my...
I would recommend trying rheumatologists.....I ended up insisting that my family doc refer me and she didn't want to but finally gave in to get rid of me....the first one told me I had SLE b/c I have...
Dear Shirley, Very gentle hugs to you....
Southernlady, I just said a prayer and will continue to pray for your son, that he will be strong in mind body and spirit. The joy of the LORD is our strength....
Thanks for sharing Libby. Sherrine I couldn't agree more - just a short experience would change anyone's mind about how real Fibro is. I heard a nurse say once that she used to think Fibro wasn't...
Thanks for reminding us to be positive :-)...
Thank you all for your encouragement. It feels great to actually connect with other people that I can identify with. Thank you for sharing your own stories - my heart goes out to each one of you - as...
Dear Needing Help, Just know that u are not alone. You have a tremendous amount of value. Unfortunately the answers that we need are just not really known right now. Rheumatologists can try meds but...
My seven year marriage ended nearly a year ago. I have mixed connective tissue problems including fibro, lupus in the skin and stomach paralysis. My husband and I decided together for me to file for...