Hi grumpy, I can understand alot of what you are saying. I was raised to believe that a person's worth was basically measured by how hard they worked in a day. I always had a job and a few side jobs...
Hi all, Every morning I wake up early in terrible pain...the most I have all day and it limits my sleep. I am stiff all over and my back pain is the worst. My routine is to get up, take a bunch of...
Hi! You sure are in a tricky situation. I was sent to a PT about the same time as you while in the hunt for a real dx. I didnt want to go but I did and I think it ended up helping for 2 reasons and...
I suppose you could also look at it as if you have it documented that you were having a hard time so obviously you need the disability? I have been on long term disability for nearly 2 years now, so...
Hi, I fly cross country every year. The best thing I ever bought was one of those neck pillows! That and some earphones and I can block most everything else out! I try to sit in a bulkhead seat (not...
What else can we say when Sherrine said it all so perfectly! This is such a stressful time for you..you have alot on your plate! Try to focus on what you do know and not all the possibilities. Be...
Brookstone (and Im sure some ski shops) sell socks and gloves with a battery pack that heat up and keep you toasty for hours. I havent tried them but they sound great!...
Hi, I do yoga just about every day and the days that I cant do it...I am soooo stiff and in much more pain! I highly recommend it. I do the yoga dvds that are designed for people with back injuries,...
Hi Beachy, Not the best coincidence but I was Dx in July 2007 too! Weird. I am still learning to accept this Dx and not let myself get too frustrated. It takes time. Welcome to the forum! :-)...
Hi, I agree with simplistic, my migraines started shortly before I was Dx with fibro. However, you dont have to just live with it! I went to a headache center and was put on topomax which preempted...
When I was first Dx and right before, I had developed asthma, allergies to all sorts of things and migraines. I used to be on Advair and allergy pills but now that its been a few years I am much...
I went through this same thing and I am relatively young (37). What helped me the most was that I had alot of stuff documented because I had seen a ton of doctors (rheumy, psychiatrist, pain doc,...
Wow. Sorry you are going through all this at your age and without the support of your parents! Chronic pain is not all in your head. You will find an answer some day, unfortunately it might not be...
Totally. Same as Shannon, too much heat and too much cold are equally as bad. In the summer I am always putting ice packs on my neck and in the winter I am always under an electric blanket! Go figure!...
Hi nayk8, I wouldnt necessarily jump to the fibro conclusion. There are soooo many things that your neck pain could be from. If I had a family member who had fibro, I would try to live a pretty toxin...
Hi, (It is good to hear from a new mom on here because I have been thinking about getting pregnant and am in the process of weening myself off all my drugs. It's really not easy! So I commend you for...
Hi, I use a cane and I have a walker (with a seat on it) for longer trips. I am still in my 30's so I get alot of stares, people trying to figure out why a young person walks like she is in her 80's!...
Hi Kat, When I was first Dx with fibro I also was Dx with asthma. I never had it before! But now it has been a few years and my breathing is much better. I still carry an inhaler just in case....
A similar thing happens to me when I am stressed. I find that a short nap will often be like hitting the reset button and I am fine again! Very strange!...
Hi Amy, I have IBS and I saw a naturopath for it. She put me on a licorice tea and an herb called slippery elm bark. I ate a bland diet (alot of jello and applesauce) and used hot packs on my tummy....
There are a number of books on amazon.com regarding fibro and diets, cookbooks etc. The info in them make sense, it's just an expensive way to eat and I havent committed totally to it. I am trying to...
Sounds like you all have alot on your plate! Try, if you can, to watch your stress. Stress makes the fibro really worse. A positive outlook and being able to laugh despite it all goes a long way!...
It might be the lyrica but it will wear off. I did (more) stupid stuff when I was first starting on all those drugs--lyrica, cymbalta, savella--but the longer you are on the drugs the better that...
I have alot of neck pain/ cracking too and it did seem to come on suddenly where all of a sudden it was painful to hold up my head! I started using a neck pillow just to drive because the movements...
When I am cold and I am too poor to turn up the heat...I use an electric blanket while I sit on the couch! I have one there and one on my bed. You wouldnt believe how your cold, stiff muscles will...
Hi! My docs followed the same route. Rule out sleep problems then move onto the fibro Dx. However your elevated CK levels point to something other than fibro. MS? Lupus? It is also possible that you...
Hi, my partner and I have been considering getting pregnant. Has anyone here been pregnant with fibro? How was your pain? What kind of advice you can give me? I am in the process of weaning myself...
Help! I am so frustrated with myself right now. For the second time in 3 months I might be dropped from my COBRA because I forgot to send in the payment on time. So now I have no insurance, no way to...
Me too. The endo came at the same time as the fibro and it was really really horrible at first until they could control it with bc pills. My fibro really is affected by my endo--if one is bad so is...
Another option is to enroll in one of those cyber schools. Have you thought of that? Google it and see if there is one in your area. The benefit is that they will supply the books and often a...
I understand the feeling of being tested. Sometimes I have a big ol pity party and I cry and think my life is not that far from Job's...I've lost everything and I'm just waiting to get it all back....
Thanks for sharing your experience although I know how embarrassing and degrading it must have been! Most of us and myself included will be in your shoes someday so it is helpful to know what it will...
Hi upbeat, I take Savella and I was worried about the BP issues too b/c I have a prior history but so far I havent had problems. However you should know that all my other side effects from this drug...
So I have a creek that runs next to my house that has a wall by it (so people dont fall into it) but the local teenagers like to sit on the wall and "hang out". Mostly a no big deal except that once...
Hi and welcome! We have talked about Savella alot here lately. You can do a search and find all the threads on that topic by typing in Savella into that little white box on the top right (where it...
Its a very hard drug to get onto b/c of all the side effects that everyone have been talking about BUT the good news if you stick with it...the side effects only last about a month! I have been on...
Been on it for a few months and it doesnt affect my pain at all. Only makes me more awake during the day....
I had a nerve block in my neck that (dont mean to scare you) took me a month to recover from. The way he dug the needles around either side of my spine was horrible and just was not worth it. I am in...
Welcome PB! What you are describing is very familiar. I feel like I spend half my life cringing and having to block things. We are sensitive people. My sister is a Hospice nurse/ SW. That is big...
You've been laying in front of the fan panting like a dog for hours wondering why it is so @#$$*&% hot in the house....and then you realize at some point you were cold and must have turned the air...
Been there done that! lol Also tried to reach into boiling water to grab an ear of corn with my bare hand! That was fun! :-)...
Eeash! Donnaeil! I was missing Seattle until you said that! At least you dont have the humidity on top of it. I can send some of our lovely Philly drippy humidity if you would like? It makes you wet...
Wow! Very impressive on many counts! That you can function on that level and that you can function on that level with fibro! :smilewinkgrin: You will do great, just take it slow the day before....
So I feel like I just climbed Mt. Everest. So tired and elated that it is over! What a goofball I am, but this dd just really gets ya in the ol self esteem and it is hard to then go out there and...
OMG! I bought those for my 19 y.o. daughter for her birthday b/c she HAD to have them! LOL After waiting for about 8 weeks on back order (apparently they are in high demand!?!) she got them and wore...
Hey Donna! I just might have enough gas in my car to drive up there! You think he will take food stamps or an I.O.U.? Maybe I can just hang around outside and let the miracle rub off on me! lol...
Help! I have what is probably one of the easiest interviews in the world today (companion for a blind man) but I am soooooo nervous and scared! What if he has alot more energy to go do things than I...
boo, I certainly admire your determination and drive! The image of you on your bike pushing through the pain is really inspiring! You can use that determination to build a better, healthier life. It...
I have mild degeneration in my C5-C6 which sends pain down my shoulders and arms. I also have pinched nerves in my elbows which add to it all and makes my hands numb. It hasnt really bothered me...
Thanks everybody for your support. Im sorry I am such a whiner today. It is just hard to adjust. Adjust from being surrounded by people to being isolated. Adjust from having big dreams thinking you...