I have had lupus for over 10 years and never once have i been so darn sick. My lymph nodes are massive, i have a flippin fever and uti and to add to all of it for almost 24 hours iv been throwing up....
I cant tell ya because I have never really had the butterfly rash...im real weird I never get typical symptoms of anything I have. My cheeks get bright red after I wash my face and it kinda looks...
I did take pictures when I first saw it and took it to my GP doctor. He said that he thought the rash was a lupus rash but I have had lupus for a very long time and I have never had a rash like that...
I dono if it is related to my lupus or if it could be from something else. I have lower abdominal pain and this rash that lasted a few days but it looked like someone took a red pen or marker and...
I actually got a phone call about a hour ago and was told my leg pain (been severe for a year) is from a vit D diff! So im gona try to take some vit D and see if the pain goes away...
I have had severe leg pain for a while now and they say they think it is fibro. but i have heard that fibro is pain all over the body, does anyone have it localized in just one area?...
What you are describing sounds like lupus. I was told by my first Rhummy that surgery seems to make lupus flare up from the stress it puts on the body. Lupus can be very hard to detect but the one...
I have lupus, and was seeing my new Rhummy and he suspects crohn's and is sending me to a gastro. I dont know what to expect cuz i dont like my butt messed with...but I get pain in my lower belly...
You deff need to get the ANA test followed up, the thing with lupus is that it is hard to diagnose until you have a flare and flares can be diff from person to person so I can not tell you what to...
im deff. not gona take it...I already gained a lot of weight from being on them for a few months because it was the only thing that helped my fibro pain, my moon face is just starting to go away!...
I eneded up going to the ER, I could not even walk up my stairs. Its so hard because they gave me 20 mg of predisone and 7.5 loratab and 50mg of tramadol. My Roummy called me today saying they saw...
I started having a flare yesterday and it was tolerable, but today I decided to try and use my WII fit and may have over pushed my self and now my flare is wayyy worse...all my joints hurt and even...
Thank you so much!! Ill call them monday, I just dont know if they will see me because they have not seem me before. These kinda of things always have to happen to me on the weekends!! GRR...
I had a idiot roummy and have a appt with a new one of wednesday but I am having a flare. I have real bad muscle weakness and fatigue, I can hardly get off the couch and my head feels SOO heavy and I...
I am someone who takes a lot of pride in her appearance and this is driving me nuts. I have a oval face so seeing this chipmunk face in the mirror makes me wana cry. I dont even want to leave the...
Tramadol does help some but only when I take it for a few days and let it build up, it would have to be something that I take regularly to work. I am allergic to NSAIDs and knowing my luck that would...
Thank you, it was not that bad because we got very lucky. At first we only saw the other twin because of my tilted uterus and they said that it was dead and was not growing and wanted to do a DNC but...
I was on steroids for a few months and I have a terrible moon face and I can not stand it!! How long does it take to go away and can I speed up the process in any way?!...
I am on Neurontin 600 mg twice a day so far and im taking b12 and omega3. I have been pain free for a few days but today the severe pain is coming back and my knees are killing me. I get to see my...
What symptoms do you have? With my lupus it is REAL REAL weird some times. When I was 12 I started getting chronic hives that would last a few months then go away for a few months. Then after I had...
Wow you are lucky!! I can not take birth control either, I have a border line clotting factor so my doctors told me not to take the pill because of the risk of getting a blood clot, and anything that...
You were able to get pregnant while having fibro? My husband and I have been trying for 2 years. We went to fertility treatment and they found I wasnt really ovulating, although we could not find any...
my worst part is my memory! I will forget where I put things I just had in my hand, and completely black out parts of conversations I have with people. Or I can not focus on something....
I have suffered from severe leg pain for almost a year now. I saw my roummy thinking that it was my lupus or some how lupus related, he told me that I had fibro also and just gave me a piece of paper...
I so feel you, I have Lupus and Fibro. My leg pain is in my Calves, thight and butt and hips. I would give just about anything for a Epidural!!!! My pain feels almost like I am stretching beyond my...
I dono if my leg pain is from MS or something else, what does your MS leg pain feel like?...
Im sorry to hear that :( I am trying to figure out if its the Neurontin that is causing the jerking or if it could be something else. I have thought this whole time that it was the meds so I never...
I do get all sorts of pain in my legs, I do get numbness at time and tingling also. When I am on pain medication I get a zapping pain that shoots down my shin next to the bone. I have real bad...
I was taking 3 400 mg of Neurontin every 8 hours and at night when I would go to sleep I would have bad muscle jerks that kept me awake. I am on a lower dose now but still have the jerking here and...
over the past year I have been having severe leg pain. We have done MRI's on my lower back, knees and hips and nothing has turned up. I do have SLE and fibro. Over the past year all we have found is...
My doctor thinks that I have it and I have a MRI next week on my hips but I have questions about the symptoms. I have had severe leg pain over the past year it starts at my butt, and moved down my...
I live in Shreveport, I have been looking into getting a new Roummy here. My doctor is finally sending me a new one but she said since he is the "lupus guru" in the area that it will take her a...
Thank you Nanno, it really is the biggest burden when you are in soo much pain but no one will help you!!! I have had no tests done or anything so we dont really know what is causing this terrible...
Im on yet another dose of steroids, I have to get them all from the ER or urgent care because my stupid Roummy will not do his job and I am caught up in the terrible health care system of Louisiana...
for the past year or so I have been having severe leg pain and no one wants to even try to address it, insted they sent me to pain management thinking it was the lupus or something. Well my pain...
Hey im sorry to hear about your diagnosis. I have had lupus for 12 years, and have been diagnosed for a year. We found the ANA positive after a crap load of pain and a surgery. I will tell you what...
At birth I had my right kidney removed from multicysticdisplastic kidney disease, and so far I have lupus and fibro and my kidney has help up strong and let me have a little girl two years ago, but I...
it didnt really help me to much alone, I had 2, 50 mg of tramadol and 7.5 percoset and alone they didnt so much but together they worked wonders....
My pain is in my calves and thighs....Deep tissue muscle pain :'(...
I take 900mg every 8 hours for severe leg pain and I was taking Embeda 30mg (which is morphene and some other drug mixed) and I did have alot of relief. At first It knocked me out but I built up a...
I was told a few months ago by my Roummy that I had firbo, but they did nothing to help the pain that I am having. My old pain management doc gave me 900mg of Neurontin every 8 hours and it kinda...
i am only 23, that is the part where people look at me like i am crazy, i cannot get ss because i have not been working long enough, i do have a lupus diagnosis and many more, i have not spoke to my...
I have lost so many jobs, and can not work..I can not go in the sun...period because it makes my bp drop real real low and i get real sick. I am in pain management and i take 14 pills a day and i am...
I have not found out what is causing my pain yet, Im in the process of moving so i have not been able to see my doctor. I tried cutting gluten out of my diet and it did not seem to really change...
im on so many meds right now, so ill deff talk to my doctor before i take anything else. thats horable that you have to go threw all that :(...
My husband is being stationed somewhere else(miliraty), so when we get there im going to see about getting pain mang. Ill talk to my doctor about trying all the vits, she tends to not tell me...
I dont know how to tell if there is a tender spot in my muscle pain, but it feels kinda like a aching weakness and it is more irrating then anything. I wish my doctor would give me something for...
im more worried about the pain in my legs, the pain is so bad that i can not sleep. its driving me totally nuts!!!...
I would just be so very very grateful to not hurt, When I went in to get steroids about a week or so ago my roummy ran some tests prob checking for that pos ana again to confirm its lupus flare and...
That is so crazy that you mention that because my roummy just put me on cymbalta! I get some pain in the sides of my knees but it is mainly in my legs, its the muscle and it is driving me nuts....do...