Oh, I forgot to shake your hand. I am as happy to share information as I am happy to learn. I am sorry I seemed to be angry, what I am is frustrated. I am tired of doctors spreading misinformation...
I have fibromyalgia which, in my case has caused intractable chronic pain. Not all people have what i have. About 15% of people with IP, intractable pain, have fibromyalgia. Others have arthritis or...
Maggie, can you please point me to those studies? If they exist, I am sure they are more than 10 years old. Intractable pain management is know only by a small population of doctors because it is...
Hi and welcome, First of all, it is not true that the more pain meds you take the more pain you will feel. I think your rheumatologist is doing what is best for you right now. Not all people with...
Often, the wrong narcotics are prescribed for long term pain relief for Fibromyalgia. Another way to look at this is in the beginning some narcotics work but over time people need increases or the...
It works for me. I take it for reasons other than fibro and have used it for over the past 5 years. It is not addictive, habit forming. The ibuprofen should help The side effects will leave. Donnaeil...
It is not easy to find out what works for each person. There was a time when doctor's believed that patient's did not need pain management and thought it was "all in our heads." Figuring out a...
Yes Nana, Your doctor's would provide meds if asked. However, pain management is not only providing medications. It requires a multifaceted approach. Moreover, not all Rheumies and MDs will treat...
Pain patients rarely become addicted to opiates. Statistically less than 3% do. Those who do become addicts are folks who had previous addictions. However, even people who have had addictions to...
I endure this. It is call Alldynia. I love the chapter "When the skin attacks. SSRIs and pain meds help this. Cold water, the type in the so called warm pool, can help a bit. Otherwise, I just do not...
I eat a low carb diet and have been losing weight steadily over the past year. I have found that eating meat, lessens my pain the next day. I do not have a goal for eating completely organic but some...
WTG Deb, 95 lbs. I will let you know when I lose that much. I am so happy for you. And they say it cannot be done. Hah. Plus, you are maintaining too? Talk about breaking records. Whoooo hoooo! I am...
Unides? Oh, another topic. lol...
So far I have lost over 50lbs without feeling like I am starving. I need to lose more and I think most of it will be off by Christmas. This has been an excellent way to lose weight. Donnaeil...
Yeah. Down with bras! Donnaeil...
I am on a new roll. I am tossing any clothing that itches, causes pain, is down right irritating, etc. From now on it is comfort only. Fortunately, I have been losing weight over the past year by...
You can become a client of a Community Health Clinic. There they charge you based upon a sliding scale and help with acquiring prescription assistance. YOu can establish a good relationship there by...
Goooo Archie! Donnaeil...
It has become a lot harder for me to get comfortable in clothing. Synthetics are out. Soft cotton even hurts. In fact my skin was burning and itching so badly my doctor sent me to a new pain clinic....
My doctor says that swelling is a part of fibro. I find that tylenol and NSAIDS like Ibuprophen cause me to have swollen ankles and feet also. When I swim the selling decreases. I am trying to not...
You can ask your doctor for a referral to a pain management clinic. Though many people think they only prescribe medications that is not the case. Instead, they are there to find many ways to relieve...
What is interesting is the assumption that I was talking about narcotics only, I was not. Furthermore, the other forums on Healing Well do discuss medication. In the Chroh'ns Rheumatoid, Arthritis,...
I was weaned off of two medications a few years ago with absolutely no problems. It is not like we are heroin addicts, and even they do not suffer much if their withdrawal is handled competently. Not...
I do not have to exhaust all of the alternatives to medication first. Instead I consider good pain management as one that meets the needs of the person. Moreover, there are things I could not do,...
I am very happy for you. Don't start tap dancing yet, give it a couple of weeks. lol A'int pain relief grand? Donnaeil...
Thank you Myself. Donnaeil...
Thank you Chutz, Sherrine and Achey. What amazes me the most is how severe my pain was and how much of my life centered around being in pain. For example, I attended a holiday party where I could not...
After 20+ years of on and off pain periods which are now more on than off. And countless doctors, not to mention four different pain clinics, I have finally found a pain specialist who understands my...
Coffee is also a natural pain reliever. Its effects vary from person to person. For me, it helps my pain and, reduces the exhaustion I feel. Donnaeil...
Hi, I do not have lupus. Instead I suffer from fibromyalgia and a couple of other illnesses. However, I homeschooled my three children until they entered college. Homeschooling is not as difficult as...
Having meals that consist of 12 or fewer carbohydrates helps to clear my head. Moreover, eating meats with the fat still on and using butter and cream in my foods helps to reduce the brain fog. My...
Skin pain is a symptom of fibromyalgia. It is also one of PTSD, anxiety and depression. Many doctors do not realize how complex fibromyalgia is so they may not understand our skin pain. I have skin...
The trend continues. Donnaeil...
Of course you can have a great life with fibromyalgia. I just do not think that has anything to do with positive thinking. Perhaps I have a different concept of positive thinking than you and Robin....
Oh funny Mrs. Mike. And do not forget that lyrica junkie feeling. It is one drug that I have a love hate relationship with. One of the darned if I take it and darned if I don't. It helps but comes...
Great. Keep up the good work and rest, rest, rest. Donnaeil...
Statgeek was definitely on the mark with that one. Donnaeil...
I can think positively all day long and I still will have a hard time getting into bed. I think that thought, is just thought. Neither positive or negative. Positive thinking seems to be a Western...
Yes Ivy. I guess people refuse to face the fact that we are human. Donnaeil...
It would be nice if we could. However, one well populated fibromyalgia support site seems to only include the stories of those who win over this syndrome. Even though the site purports to be diverse...
I cannot wait until spring and summer also. Even though the weather in Seattle has not been bad, the past four months have been rough. Donna...
Oh, I agree that life can be enjoyable. My issue is with the information being disseminated that espouses how treatments work when we try them. I guess I am saying there is no cure as of yet and I am...
Every so often I will peruse web sites, which offer information about fibromyalgia. The information can range from not useful at all to very useful. However, I notice too many of them will say...
I use a vae, forearm crutches and a wheelchair. Out of all three the wheelchair wins hands down. All I have to do is move a joystick. The chair gets me out of the house>use whatever works for you....
I think I should get the vaccination. I am close to 60, I wonder if the doc would consider me close enough. Neither my mother, brother or myself has had a history of the chicken pox. We have been...
A couple of years ago, my doctor decided he would no longer prescribe narcotics for chronic pain because he read a lot of studies which cited cognitive decline in patients. I had just received test...
Thanks folks, It is great to be back Vannie thanks for the information about anesthesia. I was wondering if that was the main reason I felt so exhausted. Sherrine, the steroids/pain/fibro connection...
This year was not so bad but it was full of medical procedures. I was put under anesthesia 3x within an 8 month period of time. This was for two completely different surgeries. The first was in March...
I have had fibro for some time now and my day to day pain is in both hips. In my case, it is worse when I walk. In fact, I use a wheelchair to get around town. I get plenty of exercise because I swim...
This year I purchased silk long underwear from Land's End. I am surprised to discover how warm they are in cold weather. Seattle cold that is. Donnaeil Yes, I still exist. lol...