I was wondering the same thing. I'm a student, too. I use to have a good memory. My brain feels broken! The dendrites and synapses aren't connecting. Sometimes it seems like nothings getting in...
I haven't had similar test results, I know I have some kind of autoimmune thing going on but my ANA is always negative. Right now I'm waiting on some test results, I'm trying to find a rhuemy but...
I don't have the fibro pain everyday but thats what my doctor thinks it is. But after the flare I had my shoulders, neck, back, wrists and ankles were crackling and popping for about a month but now...
My mom has the same issues, she's had fibro for years plus had a neck injury in a car accident. Even certain vehicles give her problems if they are to bumpy like my dad's huge truck. But I think the...
I do things like that all the time... One time I opened a jar of spaghetti sauce then set it down with the lid on it and when I got ready to heat it up I gave the jar a good shake and the spaghetti...
sometimes I feel like I get depressed because I'm sooo tired, too. I've been told I will probably have to take anti-depressants for the rest of my life and that depresses me too. lol. I didn't want...
I was diagnosed with poly arthritis when I was a kid. I don't remember any of it, my mom told me it started when I was two or three but I wasn't diagnosed until several years later. I don't know why...
I know someone can have a positive ANA and that can be normal, but I don't know about the Rheumatiod Factor. And having both with fibro, I think I would be confused too. Sorry, I'm not much help....
I think you should call your doctor and tell them whats going on and have your platelet count checked. Low platelets could definitely be causing the bruising. And if your platelets are normally low...
I know it's hard to focus on the pain, I obsess about it easily. I don't know how different each day is for you. I don't write anything if a certain day is normal for me, even though I may be...
Well, everyone is entitled to their opinions, but did you have to be so harsh?...
Drinking alcohol can put me out of commission for a few days, it's awful. We don't drink much but just today my husband got this idea in his head to make rum jello shots and I tried telling him how...
Hi Jo, Maybe a second opinion would be helpful. It does all sound so confusing and if another oncologists agrees then it might ease your mind a little. I know how fun the bone marrow biopsies are...
My mom has a neck injury from a car wreck and fibromyalgia. I'm sorry your doctor won't listen to you. I know even when my mom is able to get some relief from the neck pain her fibro doesn't go away....
One didn't do anything for me either, but after my second one then I start feeling better. Except it does make me a little dizzy and I can't take it on an empty stomach....
I also want to apologize about my last post, I didn't want to add any stress, hope I didn't. J.P....
Are you near a good cancer center? A cancer center is helpful because they can run several test on the same visit and have some results that same day and usually have everything right there in the...
Sorry to say it sounds very familiar. If that's his attitude then a second opinion is a good idea. But he did schedule a follow up so that could mean he wants to keep an eye on her condition. But I...
I also have a negative ANA and although doctors think I have lupus for that reason my test for lupus are considered negative. I have really only been to hematologists- oncologists and GYN's, oh and I...
I thought nurses wanted to help people, I think that nurse should have chosen a different profession. I wonder if you can ask your doctor for a different nurse without causing any problems for...
I understand what you mean, I have felt the same way even use to feel that way with my kids doctor. Just remember they are no better than you and you don't deserve to feel that way. If you need to...
I was on a high dose of prednisone over 10 years ago, in one post I said 1997 but it had to have been late '98 early'99--worst thing I ever took swore I'd never take it again unless it was a life or...
Well you can't quit that stuff all at once anyway, I would've but luckily my mom was there to stop me. Actually she's the one who made sure I remembered to take it everyday. (should I thank her or...
I find all this very interesting. I also took prednisone back in '97 and I don't know if I was ever the same after. I took a really high dose for several months but I didn't start having the pain...
I wonder why your doctor would do that to you? It doesn't make sense! Sometimes I really hate doctors. I'm sorry he did that to you. My mom says doctors don't like to diagnose lupus for insurance...
That is definitely a good idea to write stuff down. I think it helps to write down where you hurt and when and how often and even the weird things you aren't sure about so you will have a record of...
Great news that your doctor came through and gave you something that helps. You sounded miserable on that last post! The tramadol makes me dizzy but I sure like knowing I have the option to take it...
When I was four years old I had similar blood results but with the swollen joints and pain. I recovered and now as an adult my ANA is normal. I had a normal healthy childhood, when I was eight I lost...
Hi Free Spirit, I wonder if the facial pain has something to do with nerves. I don't know if I'm feeling better or not. At least my face isn't hurting anymore but I won't list everything else that...
I clench my jaw all day, too. I have tramadol for pain but I try to take it only when I have to. And I also do this annoying thing when I'm tired or hurting, I suck in air through my lips and and...
Sorry you are having such a hard time. You should just tell the doctor all of the stuff you just told us and any caring doctor who is doing their job right should help you. I was the same way, I told...
Thank you for your replies, I made an appointment with the neurologist. I don't mind doctors opinions as long as they aren't jerks about it so I will be fine with whatever he says, hopefully it will...
Hello, I have had this rash for years off and on, I guess I notice it more than other people never had a doctor point it out but I guess I've never pointed it out to the doctor either. Mine sometimes...
Just wanted to apologize for my comment about how hard it can be to get "men" to understand. I think a better way of phrasing that would of been other people in general or significant others or even...
I've been trying to find a rheumy but am having a difficult time finding one who treats fibro and takes my insurance. So I got a call from my doctors office saying there is a neurologist who takes my...
Oh man! Three of my favorite things-tomatoes, beans, and some nuts. For awhile as a kid we lived on beans and my grandpa grew tomatoes( the best I've ever had) and I would eat them right off the vine...
hootyhu My hubby makes decisions and then decides thats the end of the conversation, makes me so mad sometimes. I hope you two are able to agree on what is best for everybody. I don't know about the...
I don't think you're being selfish for wanting another baby. Have you tried telling your husband that you want your daughter to have a sibling? I don't see why you shouldn't be able to as long as you...
I've been posting on the lupus forum because that is the word I 've heard the most at Dr. appointments, but I have never been diagnosed with lupus. I was diagnosed with fibromyalgia in October of...
pugpuppy, Ouch! sorry you're hurting like that, do you usually hurt on your chest or are you like me, your body just decides where it wants to hurt that day or week or month. I have some places where...
Yes, I definitely agree. But I wonder why a specialists would schedule a follow up if they don't think anything is wrong with me. Maybe he's just covering his own a**. You're so right about Dr.s just...
Wow, about the buffalo hump, I thought I had fluid or something building up in my back and shoulders... didn't know it was fat but that makes sense. I did gain about 40 or 50 pounds(can't remember...
Thankyou pugpuppy, I will take your advice and tell my doctor about him and maybe even write him a letter... he's the one who did my third bone marrow biopsy even though I told him I'd had two...
I haven't experienced this, it must be awful for you. It sounds like it would be scary. I do have moments where I can't think, and all I can say is ya. And when I do try and speak my voice sounds...
Thankyou, Sweet Butterfly, I got a little teary eyed after reading your post because that is exactly how I felt....
My doctor wanted me to see a hematologist, so today was my appointment. I had to drive two and a half hours to see this guy... Talk about a jerk. He brought a student into the exam room and the whole...
Well, now that I've re-read it, I probably should have wrote that a little different... but I'm glad you were able to decipher it. just to clear it up-- my grandma's mother died when my grandma was...
KristaM My grandma has MS and her mom died very young, we don't know why maybe ovarian cancer ( we had trouble finding her real name because my grandma was only three when she died). I asked about...
Hi Amy, didn't see your post because I was posting mine. I remember the buffalo hump, all that fluid retention hurts. hope you feel better. I think the moon face will go away but you probably meant...
My mom and me were wondering the same thing.Could have been a coincidence. We must have caught a virus or something but whatever it was it triggered something in my mom cause like I said I got better...