Hello I am sorry that you are feeling this way. Your doctor said Gillian barre. Did he do any testing like Emg/ ncv test. Or spinal tap. Did you have any vaccine two weeks to even a month before. I...
Thanks guys. Woolrow you are right! It is very childish. We are not kids. She is 34 like me. When I didn't hear back from her I went on her Facebook page and I couldn't access it. That when I...
Snow bunny You r right! Who needs a friend like that. I have put up with that attitude for 18 yrs but this was last. My husband was so mad at when I told him I wrote her a long letter explaining her...
Kaely, I was never asked to be and if I was I would have politely said no as I cannot take on that responsibility. In one phone call when I was trying to tell her that maybe I shouldn't go. She lost...
Oh wow sawa! Isn't it amazing how people react. It's really in times like these you see their true colors. Sherrine and everyone else I Thankyou from the bottom of my heart for reading my post and...
Thankyou. You guys are sweet. It hurts cause I can see her wedding pics as my other friends are posting. I wish I was there for her. But like my husband said. Don't giver her a second thought. She is...
Hello friends, Just venting. My bet best friend for 18 years has abondoned me. Why? Cause I Couldn't go to her wedding that is in another country and total travel time 20 hrs on an Island that...
Hi This is old. I wonder what happend. But you sound so much like me. If you are here. I was going to recommend to look at " stiff person syndrome" There is a blood test for it called anti-gad. They...
Prayers are with you:-) Take care...
Lol this is meant for Tara post named pins and needles. Don't know what happend here !!...
Well yes my god I suffer a lot from this . On painful level. You showed get it checked out to make sure it's not neuropathy. Some time can be side effects to medicine. Check that Check your b12 levels...
Ok thanks Do you have nerve pain. Stabbing shooting to tingling pins and needles and etc etc. I see you take Elavil so wondering If that's for and dose it help....
Acheybody Do you remember what brand and type Chinese herbs you used My acupuncturist gave me some but I want to be careful as I have heard in news some were tainted with heavy metal I have " plum...
Deb did he ever do blood test for neuropathy. At Athena diagnostics they have special blood test for autoimmune neuropathy. They are called anti ganglioside and etc.. I haven't either yet. I did have...
Deb How were u diagnosed of sfn. Do u have any other diagnosis. Did they find underlying cause. I am so desperate for answers. I have had this for 13 yrs I have no answers. I have had muscle and skin...
Deb25 thats what i think too..sfn. i think if people are having these types of symptoms an emg/ncv and skin biopsy should be looked into. I have sfn symptoms all over. my whole body buzzes and...
cutiepie I have the same issue head to toe. along with cramping and spasms head to toe. when i say head to toe even spasms and cramp in face and throat epsom salts are helping me. plus look into...
Hi Sounds like spasm. Is it non stop or on and off? Is it like tightening?...
Bump...
Hi mindy Thanks for the info. I usually frequent fibro forum. Even though I have no official diagnoses. I have had these symptoms for 13 years. I have been to neurologist, rhumatologist,...
Hi montys mom I know this is old thread but wounding if the injections worked?...
Very interesting. But you know what's sad is that you have be to be super rich or be "in" with the right people to get things done. As the report says the father worke for such and such company and...
Yes it's bad!! I guess that's the thing with us one nerve is crazy and any nerve can go crazy !!...
Yes!!!! I can hardly walk today. Every time I walk my calf all way down my feet are tearing up and cramping. But I have like ita in every single fiber instead whole muscles!!...
yes me too both times. but i just finishes with my period a week ago so its strange. but its disturbing as my pain (fibro) or whatever is all in my neerve all over. so i deal with this all day all...
Hi Well this not exactly new I have had this Before but it's concerning as I have constant sharp pain whichnis shooting and stabbing and feels like a nerve is pulling. It's painful... I have this all...
Hi Rachel I am so sorry you are going thru this. It's hard I know. You have come to the right place, these guys are wonderful and have helped me so many times and pulled me out of putty days. You...
Thanks I looked it up and seems great. The upper cervical care is similar except that take very precise X-ray for measurements and you lay down and a similar looking machine does like a tap type...
hi Did you tell the doc about the twitches and stuff? were you taking any meds when all this started like anti-depressants or anythng in that line. Cause twitching stuff can be side effect. were you...
Hi Today I learned about new chiropractor technique called upper cervical. I have been to chironin 98 when all this started and I hated it as I felt worse. Like my whole body was shaking! This...
hi i usually post over at fibromayalgia. but i haved suffered from allergies (snnezing, runny nose...) sinus, sore throat since childhood. lost sense of smell and hearing is bad. but for the last...
hi yes they can. if your neuro says no. got to a dermatologist and explain the symptoms. they can look for small fiber neuropathy. the emg/ncv does not pick up the small fiber neuropathy. they take...
Hi Ya its hard! 13 years with this. I was newly married at the time and this has taken such a beating! Well plus I also have lots of muscle spasms an cramps. Like a pulling sensation and it hurts....
Hi German Sorry for just saw your post today. When it started for me it was one sided. Well one fine day I wake up and I have strange sensation on back if my neck. It was not like a normal pain but a...
hi german wow...well if you can read some of my old post you will see similarity. i have this too all over like this...twitching all over and lots of sensory symptoms. the feeling in your legs..is it...
Cognizance.... I can't believe you said ears!!!! When I read that I jumped up and said Omg!!!!! Yes me toooooooo. Ofcourse along with face pulling across cheeks and all. But yea pullin inside years...
thankyou so much guys, i appreciate all the answers..you guys are awesome as far as meds that can cause this, I dont take anything on regular basis. in 2006 i took lyrica whicih didnt help. that was...
Hi I am really concerend. I have spasms that feel like pulling tugging sudden zaps of pull pull pull or tight tight? Now the problem is I have this from top to bottom. Meaning I have something...
I know it's been a while for this post but neuropathy is big with this disease. The stabbing shooting sharp all are nerve pain. Especiallyy if you are having numbness ongoing fire- like or twitching....
Ak angel What kinds of natural remedy are you on if you don't mind sharing? I started alpha lipoic acid to help with nerves...
Hello Well, I am so scared of taking Medicines and gettig dependent and my fear gets more confirmed when I read stories. The thing is wenget put on anti- seizures, anti-depressants, anti- psychotic...
HI Have you tried or looked into alpha lipoic acid? Are you on any meds for this? I am not sure what else, hopefully others will have more info. I have neuropathy symptoms too so I have just started...
I went to new primary care physician. she was great. she stayed with my for 1 hour. she listend to everything and was so upset at how long this has gone on without and proper help or relief. she said...
Hi Well I have had my symptoms for 14 yrs Nd didn't start any meds until 6 years ago. Even then all this was there but not so severe. Got Deere after flu shot. But I do believe the lyric I started in...
Hello everyone I was wondering I any one of you guys get pain in face. Ita like tmj but I guess tmj guys will understand. Buy I have this all over my body Face muscles tighten up and I can feel them...
Hi deb There are many times these neuropathys get confirmed but remain idiopathic. That's the case with me. No known reasons like diabetes.. My recent glucose tolerance test bowed impaired so perhaps...
http://www.therapath.com/Mast_Cell_Density.php...
HI I think a lot of us diagnosed with fibro and having these sx as burning, tingling, vibrating, buzzing, stabbing, shootin, tearing.... might have small fiber neuropathy. Dont let your neuro dismiss...
Hi http://www.rsds.org/2/library/article_archive/pop/Younger_LowDoseNaltrexone.pdf dont know if any one is trying or has tried ldn but I am looking in to it and found these papers. wanted to share if...