I have been away from this wonderful site for awhile. I hope that everyone is doing well. As well as anyone can be while fighting this unforgiving illness. I've been trying to find out if there is...
Hi Robin, We are all holding on to you and lifting you up and praying you up and loving you up!!! I like many others here can relate. I've been told recently other new dxs. Until just recently I was...
oops Memorial Day....
Hello fellow fibromites, I had a bout several weeks ago with acute edema. My right knee and my left foot and ankle. I went to my rheumy and she drew a wonderfully bright yellow fluid off of my knee....
At jewlerylady, I'm going to give it a shot..the key to everything is never give up...but it oh so hard......
nounsanity76 and *jaden, I too am only about 20 lbs over but feels like a 100 right now. You may be right about the moon phase..I just revert back to the same old phrase we all use: this too shall...
I just finished some no sugar added ice cream!! I also just had hair colored and all tbat phoo phoo stuff. I'll get thru it...thanks for responding...hang in there.....
I know me and most of you too!! I can't walk because of my knees..I have gout now..isn't that lovely? So, my hubby and I joined the local community college to swim. Well, now I can't swim...
Hi everyone! I too was in the same boat..loved my job, my boss, my fellow co-workers but my body would not allow me to continue on. I also had a high income and have recently been awarded ss...
Congrats!!!! Me too! I reieved my first check yesterday! Now to argue with my Long term disability. They are saying I have to pay them back all that was paid while fighting for SS disability and the...
I have heard that this can help with the fibo pain and fatigue? HELP??...
I use to work for a Compliance office at the University of Texas Med Branch and for someone to state in an article in desperate need for Medicare patients. That sounds awful fishy to me. Also to...
Dear Fibro god, YOU SUCK! and that's how I really feel today!...
I say enjoy it whlie it lasts..........I've been thinking the good days haven't been around as much these days.....
oops, just realized this was an old post...but so appropriate for me......
That is been the first and constant issue..Constant burning in my left buttock. It sometimes gets worse and goes into my leg and foot as well. But a completely new thing is my hands. They have fallen...
kimliz59, I made my appt for Monday...So we shall find out something then.. hope everyone has a wonderful pain free weekend! FibroNana/Jerrie...
achebody, Have fluid retnetion before? NO, what is weird is all I drink is water...I had blood clots in my early 20s..I'm 53 now. It seems the pain has just intensified so much lately...I am just...
/community/emoticons/shocked.gif Hi everyone, I am experiencing new symptoms. Swelling! My ankle on one leg is swelling and my knee on the other. Now I've noticed my hands are falling asleep while...
I was taking Percs and thought I'm going to try going back down to norco. Now I have to take 1 1/2 to take edge off and honestly that isn't helping much. I talked to my rheumy this week and she said...
update from FibroNana, I got my ss disability and from what I understand will recieve Medicare too....I am ever so thankful..hang in there those of you that are waiting...This came as a complete...
I didn't recognize the number so I almost didn't answer. I answered, the lady states she is calling from the SS office and that the judge has approved my claim for ss disability without having to...
My favorite way to explain it is, it's a cess pool of horrible symptoms and just when you think wow, I feel better, I think I can ride motorcycles again, I think I can go fishing with my Hubby, I...
This one thing I know for sure....there is no ryhme or reason in Fibro! What works for me may not work for you. Wait there is another thing I know for sure, I HATE IT! I hope your leg pain improves...
Hi Mayo2012, I agree with Robin that this terrible beast called "Fibro" has not ryhme or reason for flaring it's ugly head. I don't know how long you've been diagnosed but it's been a couple of years...
Hi everyone, I've been off work since June of 2010. I have been denied 3 times for disabiity and am on the last leg of the process. I have an advocator working for me and she says next step is a...
I too suffer with the anxiety. We have to just take it one day at a time..it might be a good day...hip hip hurrayy!!! enjoy it, get things accomplished, maybe even feel like me again..and then...here...
I am going to try the generic cymbalta. My doc was the one that suggested I try it. I just called my insurance and because it's a new year with a new deductible...ugh...my cost for a 90 day supply is...
Hi there, Yes, I have been dx with meralgia paresthetica..boy thats a mouth full. I can never remember how to pronounce it..One of my first symptoms was this horrible burning, tingling and numbness I...
/community/emoticons/redface.gif Hi there fellow fibromites, Well, I have been newly dx with moderate to severe sleep apnea. Who knew?? I have a dear friend who has been begging me to get tested and...
Well put Acheybody! I'm right there with you, actually I'm right there with all of you that posted. Wake up I can't close my hands because they are so stiff, getting out of bed is a chore. I suspect...
@ sos0007 YES we are!! I told him the other day that I can't imagine him not being in my life while I'm going through this illness...He said, why? because I'd be more depressed and more fat and no...
@Klambert, I LOVE IT!!! stated perfectly!!! I too was one of those gals that told the other gal whom hated sex. What are you kidding? I love it and will always love it!!! Now, I'm 53 and I would say...
Hi lostandlonely, I can so relate to where you are coming from. I've been dealing with this for over a year of being dx with fibro and not being able to work. I'm finally to the point where I can...
@Normal, I started taking trazadone 100mg. Actually started at 50 and built up to 100mg and I LOVE it! I sleep really well and don't wake up hung over. and it's cheap!!!! It's an old school drug for...
They have recently bumped me back up to 10mg because I am in a flare. I've been on predisone since 08/08 started at 40 mg for over 8 months.. every time I try to wean off I go into a terrible flare....
Thannks Vickie and Sherrine, You both are right, when you are feeling so bad and you know that it will pass eventually but still you look for that one thing that will take you back to where your...
Thanks everyone...that's what I was thinking, too good to be true and all the tests and supplements , who has that kind of mula??? I just keep praying and searching for that one thing that might...
Has anyone read this book? I am just beginning this and am wondering if anyone has read it and what your thoughts are on it? thanks for sharing, Jerrie/FibroNana...
Robin, I love this poem, I'd like to borrow it if that's ok. This is exactly how I feel!! How I'm sure so many of us feel.. You have a gift! /community/emoticons/smilewinkgrin.gif Thank you for...
Thanks Susan and everyone, I agree with ya that there isn't going to be any one thing to help with the fibro but I'm hopeful that the right combo or cocktail of meds will come along. I wish I could...
Thanks everyone for all your thoughtful input, I plan on making an appt next week. My Pcp is retiring (don't ya just hate that, especially when it's someone you really like and trust) so, I'll first...
can you take you regulare meds for sleeping??? I have started to take Trazadone and it helps me sleep. Before I started taking the Trazadone I would wake up all night and gasp for air..I don't know...
Thank you Ladies for the laugh!! It was much needed! Robin you are awesome!!! Have a wonderful day!!!...
Don't worry so much about a clean house...of course clean the toilets but other than that..Don't worry about it!!! I use to be so anal about that but I've learned especially when in a flare, don't do...
I was wondering if anyone has been dx with sleep apnea? I have a friend that called and said she was talking to her professor because he had stated to the class that he had fibromyalgia. He also...
Hi to everyone on this thread, I can relate to all of you..especially you Klambert1. I am on long term disability and have applied for SS. I've been to thier doctors for thier review and filled out...
@medically confused, not sure I'm ready to bite the bullet and buy shoes...one of my docs today said it could be peripheral neuropathy.. great..gonna wait till I see my neurologist before I get...
YES YES YES! When I was in the worst of my flare or flares, that was what freaked me out the most...there was no explanation for it..I also had the violent jerks in my torso..It can be very scary but...
@ Medically confused, Have you checked out Fibro101? They have put together some fantastic information. Did you say never walk barefoot?? Oh my!! I am always barefoot and didn't realize until I went...