If I didn't have a severe stricture, I'd be avoiding that endoscopic suite. In fact, when the nurse today said, See you soon! I answered, Maybe.....I'm now thinking that my problem might be elective...
Well, I met with a thoracic surgeon today for an endoscopy and it was AWFUL. The sedation (versed and fentynal) DID NOT work at all. I had another scope attempt in Aug and it went better than today...
I often feel as though I have the flu - terrible fatigue and a low grade fever. Eating, moving and heck, even thinking is hard during those times. Caring for my two young daughters? Very, very...
I feel for you, Tara, and totally understand your disappointment. It is the variable nature of this condition, in my opinion, makes it not only hard to accept (for us) but also believe (for others)....
maybe talk to him about intersitial cystitis, if the discomfort continues or this becomes a frequent occurence. Some people are able to control their IC with food or beverage avoidance (anything...
I started typing a reply and lost the post arrrrghhhhh!!! All this to say that you might have interstial cystitis, which is an autoimmune condition. I was dx with it in my 20s and there is specific...
Thanks for posting this!...
good reminder! I used them when pregnant. Another idea is sucking (not chewing - owie! hot!) on candied ginger....
Thanks for starting this thread - I just heard of Adderall for fatigue...
Karen, I'm also interested to hear about your experiences with Adderall? Was it prescribed for the fatigue or for other conditions? I was having a giggle this morning - I've had a horrible time...
Thanks everyone for responding. I'm going thru such a horrible, horrible patch. Thinking is hard. Moving is hard. And I'm convinced that the more that I do, the worse that I feel. My youngest has...
Wow, that's really interesting! I wonder what fatigue does too, for those who have the CFS/ME side of things. BWFM - I read the gigabytes as Great Britain and was thoroughly confused hahahahah! I...
I've had asthma since childhood, but it is more or less under control, usually with a daily steroid puffer. My worse offenders are upper respiratory infections - it will trigger asthma and will...
Sorry to hear of your struggle, ToxicButterfly. I am far from being reasonably knowledgeable in these areas, struggling to understand things myself, but I would urge you to continue to explore...
Morning! I was reading a great little book (can't find the book or remember the title at this very moment) by Dr. Alison Bested, which said that being dx with FMS vs CFS was often a matter of the...
Don't assume that it is in your head if you can't swallow (large) pills!!! I'm an excessive chewer, always have been, bec I choke otherwise. If I had a dollar for every time that I've received advice...
I tried prednisone to see if I might have arthritis, and I believe that prednisone can act like a stimulant. I did have significant improvement in range, it helped my injured SI joints and I felt...
I am sooo saddened to read your news and can't imagine the various emotions that you are going through. I hope that you will be able to get physical support as you go thru treatment (extra care for...
I had a sleep study and while I had a mild version (something like 8 respitory events per hour - which is actually close to normal), I also was found to have woken up 31 times in a period of 340...
What about a TENS machine? I think that I have something similar, but mine (going on 8 yrs now!!) originates in my thoracic back and snakes around to my sternum. Most of the time, it stays only in my...
That's really interesting Erie Islander - I bought some antacid tablets last night (terrible heartburn but I can't swallow tablets) and noticed that they contained magnesium. I thought, could I be...
Perhaps consider tramadol/ultram for pain? Definitely not a miracle drug, but can help a little bit. Also, read the Fibro 101 thread written by Sherrine - some suggestions on malic acid/magnesium. I...
I have no idea if it is fibro related but I too have had periods of hair loss (plus crazy growth then loss pre/post partum). The first time was from rapid weight loss due to stress, and was back in...
Hi, I know that many of the meds that I am on can cause nausea, but the only thing new that I've added is magnesium gly-something or other and am dealing with awful, awful nausea. Has anyone else...
I think that this could knock you back for several days, in not weeks. If you are like me, you are a chatty cathy at these shows and it is exhausting. I did two shows back to back and swore, no two...
Okay, I'm going to go against the flow and say DON'T DO IT! My hobby is metalsmithing and I've only done local shows, but they wipe me right out. I love doing them, but unless someone has experienced...
Hi there, I don't think that 'severity' of symptoms matters much - you might still be in The Club, unfortunately :( I had had several years of chronic pain, thanks to a pedestrian/MVA (I was the...
I just signed up for the 1 day conference! My mum is coming from out of town to watch my youngest, so I'm pretty excited about going. Would love to go to all 4 days, but that would be waaaaayyyyy to...
Hi Sherrine, now I'm annoyed that I didn't insist on the D check, bec it is all fine and dandy to assume that I'm deficient, but just how deficient is another matter. I open the magnesium glycinate...
Robin - you are soooo funny! Love your ditty! Donna, thanks for the added giggles. Recently I was chatting with a friend and I suggested that a new cup size be added - L.......for long ;) My girls...
Thanks Sherrine! I didn't post an intro - I just jumped in and started yappin' ;) Oooh, will look at that thread more carefully - it would be nice to reintroduce magnesium. Does it turn yogurt a...
Nine easy steps?? hahahahha! Like we will put them on a workout schedule. I'm amazing that you were able to resist purchasing that magazine ;)...
Like Myself 09, I had a similar problem when I tried Cymbalta (then Bowels On Fire - what a charming drug). Amitriptilyn caused tachycardia instead and I only took it twice bec of that (and clutched...
I think that I was genetically predisposed - my mother has CFS, my maternal grandmother has MS and FM and my maternal aunt has FM. I had an MVA/pedestrian accident (I was the pedestrian) in 2004...
I am a yogurt girl - I'd be sooooo sad if it didn't like me anymore (esp since I have a severe esophageal stricture which makes consuming many things more of a challenge). My GP didn't feel the need...
hahaa! love it! chocolate sprinkle! I'm used to seeing my mum thrash around bec of a tag on her shirt or a loose hair (if she trims her bangs) - my mum has CFS - and one of my daughters is very...
Hahahah! Thanks for the giggle Robin - love it!!! Thanks for sharing Sherry! Don't ya just love that slient (with or without crickets) moments? hee hee My mum has had CFS for 20 or so years, so often...
Yes, I was only on Lyrica for a short time as it caused very uncomfortable swelling in my hands. I think that I've had a few seizures while sleeping. Very scary. I've only had one while awake, and...
Namian said... I want to get one of those grabber tools. I'm short (only 5'2") and lately it hurts to reach above my head. I'm also in a lot of extra pain tonight and the vicodin isn't really helping...
I wasn't on Lyrica long enough to gain weight - I seem to be pretty good about gain weight, with or without any meds ;) So you had a seizure on tramadol? Is this a common side effect? I'm on Butrans...
I do have a grabber! But my youngest loves it and I can never find it, bec she's put it away somewhere. She's dangerous with that thing, just like her mum and that wooden spoon :) Actually, when I...
Back in the good old days, when I was only dealing with chronic pain from an accident injury (hahhaha!), I was seeing a pain management pyschologist and was asked to do a pain journal. I discovered...
applevenus said... Alol Funny! And thank you so much for sharing those! I am having a painful night for some reason & I'm just waiting & hoping 2 Tramadols will take it away, so the cheerful...
neilpk70 said... applevenus said... I also took Prednisone for a week. The idea behind that is that, if you have Lupus,the Prednisone will make you feel great. I only felt great for the first 3 days...
Well, I'm in the mood to laugh at fibro (obviously having a low pain evening) and thought that I would share some of my more amusing fibro fog examples, and hoping that others, in a similar mood,...
Gabapentin turned me into a zombie (shuffling gait, etc). Lyrica wasn't so bad (always a good idea to start really, really low dose), but my hands swelled horrible and hurt :( I had the same response...
Hi, I've tended to be a warm person, but have noticed that I am very uncomfortably warm often. This summer was a scorcher and I was miserable, despite air conditioning. I was showing my mother how to...