Thanks Rob n gizzy! You guys do not realize how much it means just to know someone cares! :)...
Thank you Joann!...I couldn't ask for more! :)...
JB, Thank you so much for the kind words! I wonder often what did I do to deserve this...is everything Karma??? I tried many times to find housing before I begged my parents to help me and with the...
Thank you so much for your prayers. That is the ONLY thing that has kept me going...my faith! :)...
I wish...My best friend lives with her father and all my other friends I have pulled away from due to my health issues. They mean well by asking how I am doing but I don't even like to talk about...
I spend 99% of the day alone... During one of the more recent episodes with my mom... My father took me to the Dr. on her birthday as she did not want too. I got a call while we were gone from a...
I am mepron, clindamycin, and Biaxcin a strong protocol for Babesia. Does anyone know how often they reproduce so I will kill them with the meds as it is my understanding that is the best time to get...
I was physically abused by my father. I was mentally and emotionally abused by my mother. I was sexually abused by my sister and grandfather. I was doing extremely well in life and in the best shape...
This may or may not be common knowledge but it is my understanding from a patient at my LLMD's office last week that she contracted Lyme after a bed bug infection on mission trip. I had never heard...
Hey BL...Missed you! /community/emoticons/smile.gif ...
I use OTC Salon Pas patches and they help tremendously. I have neck/back injuries from car accidents from 08 and 2012 but lyme could be a factor now. I had the first car accident several years before...
Does anyone know of any financial assistance help with Nutramedix or any other for that matter. My dr. took me off antibiotics to see if it was the cause of very low white blood cells (although I do...
And yes..I have been on a high powdered cyst buster dose since July......
I had an MRI done on my lumbar after a car accident in Aug. The doctor even after I questioned him about the lumbar instead of thorasic as my pain is in the middle of my back and not lower did an MRI...
my LLMD gave me phenagren for nausea...It really helped! :-)...
You have to have probiotics! :-)...
Are spinal tremors and Lyme common?...
sounds all too familiar...My test was CDC neg both times however the Igenix test I had 6 IND lyme bands and my LLMD dx me for symptoms and my CD57 test which is your killer fighter cells was 28 when...
We are here to support each other and to be here for you! :-) My mid to lower back has been killing me too and I follow up with the dr tomorrow after an MRI. I am on pain management and still barely...
Thank you so much! Take care and God bless! /community/emoticons/smile.gif ...
Marie..thank you for contributing! I just don't have a good feeling that the medical industry as a whole has our best interest at heart. It is a money making machine...the more specialist they send...
ok..just so everyone knows, Thanks to O care all records are now connected, the doctor knew I was on three antibiotics. I defended Lyme and did not give her the name of my main LLMD although when she...
I go to a ladies house who has an infared sauna...it's wooden...not sure which one but it is amazing and it makes me feel better. I have gotten bart streaks after using it or a hot shower many times....
After getting very ill with Lyme but undx, I went to an urgent care last December 2011 with a cold and fainting. They did testing and said my EBV number were high but it was an old infection. I have...
Are you in GA... I assume??? There is a GA yahoo lyme group. I am in a burb of ATL....
There are not...I go two states away....
I have been very sick since Sept 2011 and mine has been low on numerous occasions. I wasn't dx until 4/2012. I think it is part of it......
I wanted to follow up and say...it did not go well and I am FRUSTRATED. Having a not so good day and will post the details once I feel better. :-)...
At 41, My mother is my driver...Between the seizures and fainting...not a good idea. Thankfully, it has gotten some better....
Sam...Thank you soo much for your response! I needed to hear it and it has given me the strength to look them straight in the eye and tell them like it is in a polite way. I pray for you and your...
The pain drs spent more time harrassing me about my course of treatmant for Lyme than the reason I go to see them...this went on for months! I was quite disheartened they didn't notice after they...
I see a new rheumy in the morning and am debating if I should tell her I have Chronic Lyme. I live in a state where drs do not believe lyme exists and after seeing 15+ specialists who thought I was a...
Have you been tested through Igenix? Mine were negative too but with the Igenix test I had 6 inderterimiate bands and they were Lyme specific and based on ALL my symtoms I was diagnosed. Another test...
PS. I have been where you are...Don't give up. You have to be the best advocate for your health...sadly most doctors will not. I hope to hear back from you...I care! :) Christie...
James, It seems to me you are questioning what is going on. I was told over a year ago after 3 pages of symtoms (nausea/puking heavily and 40lbs lost in a few months and I wasn't over weight) which...
Lyme is active and on heavy antibiotics...maybe that explains everything but do not want to blame everything on lyme...wanted to run this by the "experts"...the patients who live it!...
yeah...they have tried numerous times to send me to a shrink...I am sure they think I am a hypo...But why was I completely healthy and all of a sudden EVERYTHING went wrong in my body! All my bad...
My health has taken a severe turn since sept 2011, prior to that I was completely healthy at 40. I have seen 14 specialists and almost 40+ dx and the only thing I have been dx with that would cover...
I have also have my head numb to the point I would fall flat on my face but it was not sleep paralyasis....
I experienced sleep paralyasis a few times last summer when I was on an antidepressant for a brief period of time...It was a horrific feeling to wake up on my stomach living alone and not be able to...
I would see LLMD...a very high % of lyme patients become allergic to mold...I did. When I read your story it could have been me. A natural dr a few months ago put me on oxygen for that severe head...
I have researched a lot in the past and seems that undected lyme can go into MS, Parkinson's, ALS, etc. I was dx with Psoriatic Athritis which is a immune deficiency of the joints and MS is an immune...
Glad you on getting treatment and can heal! :-)...
So sorry...I too grieve over the life I had..but when I get in that place...I pray and God always answer my prayers! :-)...
Thanks positive! I hope you get yours under control too! /community/emoticons/smile.gif Luckily I have an oxygen concentrator at home...I too think it is the babesia....
I am on heavy duty oral and it is very hard on the GI and waiting to get a picc approved thru ins but they will only pay at most for a month but it will give my stomach a break for at least a month!...
if you have had symptoms 4 months..I would start with LLMD b/c it could have been dormant prior to that or symptoms were there and u dismissed ie headaches etc...IMHO...
Being bed ridden I had no choice...I was on 3 months short term diability and on long term now thru the co I worked for and just moved in with my parents in the last few weeks and will be filing for...
I specifically asked my LLMD this question as I am single although I have no plans of having sex but was curious since I had heard it could be a possibility...He said "Be on antibiotics for several...
my skin is very sensitive to touch...