I live in Pa,, and i cannot take the cold anymmore, even taking the dogs out leaves me crying, not sure if its from teh small fiber neuropathy or some of it is fibro,, I know i fall a lot getting out...
I had the same thing,, and probably still do,, the MRi was done at Mayo Clinic, they reported that it was probably from headaches,, ?????? huh?????,, didnt know they caused white lesions, the thing...
if its clicking,, it might be the jaw, if its a dripping sound,, it might be eustachian tube dysfunnction,, it should be closed,, but sometimes it stays open and mucos plugs it up,,does your ear hurt...
with what you went through,, for you not to SUE is a bigger crime then what they did to you,, when they get up,, they will get on with there lives,, you will not,, I tried to sue over a botched...
Its your mind,, its not shutting down at night,, you may be asleep,, but teh mind is still going 100MPH,, best you can do is try to relax in the evening as best you can,, dont watch anything that can...
being dragged down the road of a Dx for almost 5 years,, having to leave a job of 37 years, given a dx of small fiber neuropathy,, fibro sjogrens,, wel its been nothing short of a trial by fire,, I...
I take ultram,, I am not sure if it helps of not, sometimes i think it does, then I am reminded again of just how much pain i am in when i have taken a pill,, and tried to do something, only to have...
just do what you can, and not what you cant,, you dont have to explain anything,, and it probably wont do any good anyway, its hard to sympathize when you cant see the problom...
feel better soon...
Sorry,,I have a friend thats a policemen in South Bend IN,, there all that seperate us from anarchy...
ever been checked for Sjogrens syndrome,,?...
So you only have 5 years before you put a gun to your head?, I suggest you put it to his,, what a idiot,, turn his a&& in,, dont mkae light of this,, what he said was unethical,, and not to mention...
Maggie is right, if its neuropathy,, theres neurotin,, i was taking 1600mg a day,, and truthfully i just stopped,, I was getting sick of taking more pills that really didnt do a lot,, along witht eh...
No,, once thre dead tehre dead,, they may grow back,, but its not likely, if they had tested for that at teh outset,, they may have been able to slow it down,, but since it was all in my head, tehy...
since I am a male on disibility,, house work is my chore,, before everythng wnt south, the house was spotless now I ma lucky to get up and down the stairs, I hate running the sweeper,, I cant...
thanks,, i;ll try that,, there always cold and burning at same time,, like there lead weights...
when your body is constantly fighting pain something has to give and that usually is the immune system, were a finely tuned machine,, and once one of the parts starts to mess up,, it just snowballs...
for the past couple of weeks when I go bed, my legs will scruntch up like a spasm it will last about 10 seconds and release it will happen about 40 to 50 times before I get tottaly exhausted and...
Neuropathy tends top start in the lower limbs and spread upward,, hence the glove and stocking description, sensory nerves are the nerves closest to the surface of the skin, tehre responsible for...
How you feel when you get older?,,, I hope you didnt slug him when he said that...
Best you can do is try and ride out the storm,, not very good advice, since I am not a good patient,, i will plow ahead regardless of the effects,, I cant relax,I sit for any length of time and Iwill...
Its hard to not feel fear when our bodies are doing what they please andnot what we want them to do, I have screamed at teh top of myluncgs when I do something that causes painanywhere on my body,, I...
Has this numbness come on slow,, or fast? Is it anywhere else on your body? Any sensory loss,, such as cold water is torture,, grabbing anything cold makes you scream, tingling in teh limbs? Dont let...
If your doctor said a lot of there patients are doing it,, maybe,, just maybe he or she might know where they are getting them,, I dont like payingmore then i have to for anything,, and I find teh...
i know that feeling,, showers are torture,, and I used to love them...
It slowed me down,, almost to a stop,, and Lord knows I push it,, spent teh weekend laying tile,, and doing some painting, I am paying for it today,, I hate it...
I get shaking in my arms,, and lately at night my legs will feel lie there constricting, I dont think its RLS,, I had that years ago,, this is different, this feels like the legs want to curl up in a...
Its just hard getting Doctors to listen to you, and I have been through many,, I think my rheummy was right, sereonegative Sjogrens, with CNS involvement...
I was looking through the fibro 101 link, not to make light of things, but some of those symptoms can be linked to specific diseases, sub normal temp may be a thyroid problem,, along with teh...
I seem to get the flashes almost when I do anything,, eating does it too,, all of a sudden the neuros are taking a interest in me,, they called yesterday and today,, one said I can get you in to see...
to find out if you can do the treadmill witouth wasting a ton of money on a membership you might never use,, go outside, and work your way up to a fast paced walk, not the going tto the mailbox...
amen to that...
a tag on a shirt feels like somoeone is taking a ax to my neck, horrible disease...
mine has done this for about 4 years now, it almost feels like a mop is being squeezed out,, all the way through, have had scopes and a few polyps removed,, ct scans,, just a few spots on the liver,...
Stay away from the teaching hospitals in Pittsburgh,, I have been there and done that, so many test and nothing showed up,, now I cant walk use my hands, there completely numb,, been told its fibro,...
I think someone said it best when they said some get it,, and others dont,, in the scheme of things it doesnt really matter if they (get it) or not, everyone here gets it, heck most doctors dont get...
I have it in both arms, from the shoulders down, a coat will feel like a ton, and dreadfully cold, it seems to be deep into the muscles, al the finger joints hurt, fingertips are numb, I can only say...
Everything in life boils down to one thing, YOUR QUALITY OF LIFE,, you have to sit down and figure out what is more important to you,...
SSDI is one strange bird,, some people who need it endup dead before they get it and down the street someone with a hangnail gets it first time,, I was very fortunate,, I was approved first time, I...
Go online and loof for a MD doctor in you area,, do a search within 50 miles of your home, and if you have public transportation, some countys will let you ride for free, to your appt, I am appaled...
Some people are just plain stupid,, dont pay them any mind,, there not worth it,, thres a saying I use all the time,, make sure brain is in gear before moving mouth...
I have been through the medical merry go round for almost 4 years, nothing ever shows up on blood work,, yet my body is coming apart, I see my GP,, he does some testing but it never comes back...
Do any of you just have a flare that never stopped, I really dont know the last time I felt decent, it just seems I am losing more every day,, I cant do any house work,, I cant carry anything, my...
I have no idea why my guts went south,, Gastro,, who I think was pretty good,, ran a ton of bloodwork on me, no celiac antibody,, no IGg 4 disease,, only thing he did find was I am low in my immune...
my ANA has never been positive,, always less then 1-80,, maybe they dont look hard enough,, I dont know how I can be so sick and never have a fever,, my arms lock up,, trouble walking,, salivary...
same thing with me,, for past three years I have sufferd from IBS,, miralax,, it quit working, a month ago I was just passing mucus, then that stopped,, now I just sit there and scream,, when I get...
make surwe they look for autoimmune stuff,, to many times you get brushed off,, lady i know is dying from lupus becasue she wasent believed...
do they feel cold all the time?,, certain conditions make it worse,, I can tell you in my case it was about 2 years ago ,, if I walked acorss the blacktop driveway,, my feet would burn way out of...
be carefull with fentnyl patches,, My GP prescribed them for me,, put one on and about 6 hours later thought I was going to die,, I was sick as a dog,, what he didnt tell me or didnt know was you...
who knows...