Hi Cass, I was on 60mg Cymbalta and my Rheumatologist advised me that studies show pain improves when a patient takes 120mg. I do recommend meditation as a means of pain relief and other natural...
Hi All, I've had Celiac blood test done and colonoscopy which showed no sign of Celiac. Still having gastrointestinal trouble and saw a GP/Naturopath and she did a blood test for Celiac gene which I...
Hi Everyone, I've posted this thread in the FMS forum but am also interested in those who have CFS what their thoughts are... I've been perimenopausal since I was 35 (41 now) and I feel like I have...
Hi Everyone, I've been perimenopausal since I was 35 (41 now) and I feel like I have symptoms at least 3 wks of the month and they seem to be getting worse /community/emoticons/shakehead.gif So,...
This is fantastic news for you HoldingOut Hope!! I've had a similar experience. I saw a GP who was also a naturopath and she immediately took me off sugar and dairy. I felt better within the week. I...
Thanks heaps for the info Angie. I wish you good luck in your recovery from the colonosopy and I hope your son is okay :)...
PS Angie, how do I know what's a great Probiotic? :)...
Hi Angie, I really enjoyed reading your post. Your story is similar to mine by going the natural way to better health. I had not been told about CoEnzyme Q10 so I will get some and give it a try. I...
Welcome StaryEyes, I'm really sorry that you're going through this difficult time, especially as you're so young. I spent over 2 yrs in bed with CF and am now nearly well. No longer spending all day...
Hi Chiccam, I wouldn't have realised sugar was so bad for me and the cause of many of my issues unless I had not gone off it. It was amazing how quickly my health improved and many of the related...
Mindy, I am so very sorry you are going through such a difficult and painful time. I cannot imagine how difficult it must be to be having the doors closed on you all the time, particularly your...
Hello I was severely fatigued, not sleeping well and suffering pain and digestive problems. I saw a GP who's also a Naturopath and she immediately took me off dairy and sugar and also had me do the...
Fantastic news for you Suzanne. I wish you all the very best and pray that this new treatment works for you and you get the relief you so desperately need. Blessings to you :)...
Hello Chiccam, I'm a firm believer that CF is linked to digestive and liver issues. My CF was so bad that I couldn't shower without collapsing. I then saw a GP who was also a Naturopath and she took...
I'm a social worker and agree with everything stated above. Giving them financial assistance will only enable them to continue the lifestyle they are living. Assisting them with rent, food etc will...
I'm sorry about your diagnosis Suzie and I hope things improve for you soon. I haven't heard about low dose immunotherapy and i will research it. I'm interested to hear if others have had it though....
Welcome Suffering to the forum. I'm sorry to hear you've been diagnosed but you will find great support here. I've not been on either of the medications you mentioned so I can't help you. I improved...
Oh it's bad enough having to give up nearly everything with sugar in it but to have to give up strawberries - what a shame. Can you begin eating them again after you've finished the diet or will...
Great post KimLiz! What set me on the road to recovery was going off sugar and dairy. I went back on the sugar and all the issues came back! I'm now trying to beat my sugar addiction. I took...
Hi Janice, I will do the study shortly but wanted to say that I think what you're doing is fantastic. I love that you are advocating for people with health issues and as a Social Worker, I too firmly...
Hi Jaden, I haven't looked at the FODMAP diet however when I went completely off sugar (which I believe is a similar thing), my stomach improved heaps. Not only did my stomach improve, but I went...
I agree with Karen and I've also seen a psychologist to help me deal with my 'new' life and issues. Everything i've read on Fibro/CF states that Cognitive Behavioural Therapy (CBT) works in helping...
I would like to say I am but I'm not a chef! "Mealmaker" is my son's surname (not mine) and it is easy to remember and generally not taken so that's what I use for a lot of forums. I do cook though...
Hi JMW, I'm just wondering if it's worth talking to your neighbour and explaining your situation. If it was me and someone told me that something I had or was doing was affecting their health, I...
Hi AK, I do agree with Hopegirl that if our minds boggle with it all then it must be soooo much more difficult for others to have any understanding of it. I was thinking that instead of educating...
Ah I get this too!! Generally in the evening and was beginning to think I had bugs in my favourite chair and in bed!! I will get the 'prick' sensation and then rub the area thinking I've been bitten...
Hello All, I'm looking at trying Chinese Medicine as I read a forum from an Australian CF website about people trying Natural Therapies and many people said Chinese Medicine had helped them. I was...
Many thanks to you all for taking the time to post a reply. I appreciate all your thoughts and comments. I don't have regular blood tests which is possibly why I tend to worry a bit re any strange...
Whenever I buy a bra I always make sure I'm professionally fit so I agree with Kimliz. I'm a G cup and need to make sure everything fits well so that I reduce the discomfort. I bought a cheap bra a...
I'm another one to be "free" when at home and have also been known to rip the bra off as soon as I get in the car to come home. I'm on the waiting list for a breast reduction as I can see that as my...
Hi All, This will sound strange but it is a fear of mine and I was wondering if anyone has a similar fear or can give me some ideas on how to manage it /community/emoticons/smile.gif Now, it's not a...
I cannot thank you all enough for your comments and advice. I live in Australia and I believe (?)the policy is that Dr's can discuss info but only with a patient's consent. Stupid me consented...
Hello cookies, I have recently obtained a job after being housebound for 2 yrs with Fibro and CF. I was doing Social Work (part of finishing my degree) and working up to 5 days per week. I then...
Hello wonderful people, I would like some advice please. I just recently became employed and prior to getting the job, my employer knew about my conditions and I felt they were very supportive of me...
I'm sorry this is the case for you. I don't have issues like this in Australia because I'm on a low income card and these things are free. My advice would be to speak to Director of the agency and...
Paediatrician...
Hi GlassOlive, I'm currently saving up for one as I've used one before and it's been amazing. Particularly when my Fibro pain is in a specfic area ie forearm, wrist, back etc. I can't wait til I get...
Whilst I'm not sure on the issue of antibiotics and fatigue flare ups, I do believe that my body spends a heap of time fighting an infection and whilst I don't feel good, I generally manage until my...
Hi Danielle, I've had chronic sinusitis and CF and really struggled with the sinus infections. My sinuses were completely blocked and I tried a strong double course of antibiotics, nasal spray and...
Hello everyone, I read on our local CFS society website that some people use Saline drips when the weather is hot to help rehydrate them. The comments I read were that people with CF dehydrate...
I agree with all of the above. It took me a while to realise I didn't like wearing jeans because they hurt my skin. When I was so unwell with the Cf, I lived in my pj's. My dr keeps telling me I need...
Hello Almost Medfree, I live in southern Australia and really struggle with the heat. My fingers swell and my joints become really painful. I also feel like my skin is burning and am really...
Hi Masschaos, I've had trouble with grinding my teeth for many years and as a result have developed TMJD. I wear a splint (everynight without fail) and I used to take valium at night to relax myself...
Welcome KayBug - I'm really sorry to hear you are in this situation. I've been to a pain rehab clinic and what helped me was learning meditation and breathing exercises for relaxation and also,...
Ahhh Fibro fog! I get out of the shower and can't remember if I washed myself or my hair! When I use a word instead of the correct word when I'm speaking, I call this "word salad"! I'm constantly...
Thank you all for your kind wishes. I started the job last Monday and still feel like I've been thrown up in the air and haven't landed yet! /community/emoticons/rolleyes.gif I know though that once...
My sincerest sympathies to you, Sherrine. My thoughts and prayers are with you xo...
Sorry Croshylou but I live in Australia /community/emoticons/sad.gif I hope you get the help you and your daughter need. Just thought i'd let you know that I had severe CF and was taken off all dairy...
Welcome Mystie!!! I'm sorry you've been diagnosed with Fibro however I do hope the diagnosis provides some answers for you and helps you work on what you can do to manage this condition...
Hello all you wonderful people, I posted early in Jan about concerns I was having during an Aussie heatwave re my health and work placement I'm doing for my degree. I was fearing my health was...