Hi Hurtingirl, I've been on Enbrel for about fifteen years, and to my knowledge, it wouldn't cause what you describe. However, I would definitely check in with your doctor, or at least call the...
Rinky Dink, Just wondering if you're still "out there" and how you're doing!...
Hi Connor, I see that you're new here...did you also start a new thread introducing yourself? That's the best way to get responses to your posts. Someone may see the one on this thread, but you have...
Thanks for the suggestion of being tested for staph--I appreciate it. The answer to your question is no, because no doctor has ever seen me with one of these "burns". Every time I have a routine...
For the last six months, I've been getting these spots on my arms--I've had over forty of them. They start out pink...that's when I first notice them. Then by the next day they look like a bad burn....
Hey Daffydoodles! Thanks for taking an interest. No, I've not yet tried the LDN...I've had some financial setbacks (transmission went out on my car, needed a new roof, etc.) that have taken all of my...
InSoFla, Will do! I noticed your protein shake "recipe" in your post signature. I remember you have UC, and I'm guessing that the slippery elm is for that, but as far as the other ingredients, which...
InSoFla, Thanks so much for your response--I'm going to send for some today, and I'll let you know what happens! /community/emoticons/smile.gif Does it still seem to be working for you then? I...
InSoFla, I finally found this post. (I'm the one who sent you an email earlier tonight.) I'm wondering if you can tell me what brand of L-threonine you took/take that you found useful. Thanks so much...
Thanks for the tip, Peggy, and I usually do write things down that I want to ask, but this time, I thought whatever it was had run it's course, and I didn't want my rheumie to order a bunch of...
Hi Peggy! Thanks so much for taking the time to respond and for sharing your husband's experience...my problems are still continuing after over a year and a half, but my rheumie doesn't seem...
Cliffzig, Please post and let me know how your tests come out. How are your RA symptoms? If you have good control of your pain, stiffness, and joint damage, then I would carry on, as your doctor's...
Hi cliffzig, Like you, I've heard RA connected with lymph node swelling, but not lymphoma...as you said, what I've seen linked to lymphoma are RA treatments like Enbrel and methotrexate. I'm so sorry...
Hi Daffydoodles, No, I have not yet begun taking LDN...the doctor I went to still isn't comfortable prescribing this for me, I think because she's afraid it will "clash" with what my rheumatolgist...
Hi stin, It is definitely something outside of yourself if your cats are reacting as well, and we all know that most animals' senses are more sensitive than the average human. (I guess that means...
Stin, That is so interesting that you have turned your "gift" into a successful career! I've read other posts on this site where people discuss problems wearing mechanical watches, just as you...
Hi stin, and welcome! Now you can't leave me hanging--what else do you experience?! Whatever it is, it wouldn't surprise me if someone else would say it's happened to them...I've learned that there...
Hey, daffydoodles! Yes, I feel the same way you do...I've been on Enbrel and methotrexate for over twelve years, and I worry about their effect on my body. Over a year ago, I woke up with swollen...
Hi Daffydoodles! I'm glad that you're not doing too bad without the methotrexate...when I quit taking it last December, by the end of the second week, I literally hurt from head to toe. Funny thing...
Hi daffydoodles, If you would, keep me posted on how it goes longer term without the methotrexate. I think it does take awhile to get out of your system, but I would think at the three-week point,...
Hey daffydoodles, Did you have any problem going off of the methotrexate? The two times I've tried to go off of it resulted in excruciating pain. Did you just stop taking it cold turkey, or wean...
Daffydoodles, I've only been on discussion boards for the last few years, and before that, I was "on my own" as you were. Yes, more than one diagnosis is tough, but I still know that many others are...
If you don't mind me asking, how old are you now? (I'm 53.) I think that the reason these forums are so successful and helpful is that because we can communicate with people who do "feel our pain". I...
Hi Daffydoodles, I know what you mean, and you're so right!...
Hello Holly D and model Doe--glad you found us! Model Doe, I don't think that only having the sensations you describe means you have fibro, but if you read what Sherrine suggested, it should give you...
Hi TKJ3, I look forward to "meeting" your daughter...I can't imagine how much better I would have felt dealing with this disease if I would have had a place like this to come and ask questions and...
That's great news, Melissa--I'm glad you're responding to treatment! I'm on Enbrel and methotrexate, and that's worked for me for about twelve years. I have become concerned regarding some of the...
Welcome, Melissa! I'm sorry you had to join our "family" at such a young age. /community/emoticons/shakehead.gif I'm fifty-three now, but have had RA since I was in my mid-twenties, so I know how...
Hi islandjacqueline, and welcome! You asked if you could have RA without a positive blood test, and as Ides said, yes you can...about twenty percent of people with RA will never test positive for the...
Hi, White3, and welcome!! From what I've read, a lot of people with Crohn's are helped by LDN, and it's in phase lll clinical trials for Crohn's right now. If that pans out, as the phase l and phase...
To anyone interested in learning more about Low-Dose Naltrexone therapy for RA (and many other auto-immune diseases, as well as some cancers and many other conditions) please read my latest post on...
Hi Rinky-Dink, As promised in yesterday's post, I'm going to supply you (and anyone else interested) a couple of links that briefly discuss LDN, and these are the best articles I've found to date...
Hi Rinky-Dink, I'm so so sorry to hear about your pain...RA can be brutal almost beyond description. I've had the jaw pain, too...there was a time many years ago when I couldn't even eat meat or...
elcamino, You're certainly correct that methotrexate is even less expensive than naltrexone, and, like you, I tolerate methotrexate well. Unfortunately, methotrexate alone didn't work for me, and I...
I'm sorry to hear of your problems, nikkid. I don't have any words of wisdom, but I can understand the fear you're feeling, as I've been dealing with an undiagnosed issue for over a year and a half....
hi elcamino, You are a hundred percent right--naltrexone has been used in 50-300 mg. dosages to help people trying to kick heroin and other opiate drug addictions, and the drug has been on the market...
bump....
April, Below are some of the links I've been looking at regarding LDN therapy. Google will come up with quite a bit of info, but I found these sites particularly helpful. I corresponded with a woman...
Hi, April~ Sorry I don't have time right now to find and add the links--I will try to get it done for you tomorrow. In the meantime, you can read my (l-o-n-g) post to Rinky-Dink on the thread they...
Hi OliveEyes, Receiving a diagnosis after years of knowing something is wrong is a mixed blessing, isn't it? /community/emoticons/rolleyes.gif I've battled RA since I was 26 (I'm 53 now), and I'm...
Hi Farthritis, I'm in the process of figuring out how to help my RA without taking any more toxic DMARD and TNF drugs. Rather than retype my long post here, you can see what I'm considering doing on...
Hi RunnerRachel! Rather than type my tremendously-long post over again, I'm going to direct you to the thread started by Rinkty-Dink titled "Rheumatoid Arthritis and Type 1 diabetes". Look for my...
Rinky-Dink, I have gotten the feeling that people think I'm a hypochondriac, too--not a good feeling when you're really suffering. /community/emoticons/rolleyes.gif Before I go into the whole LDN...
Bump....
Hi Rinky-Dink! I, too have type l diabetes and RA. I'm 53 years old, and got RA at age 26. I became diabetic at the age of 38--a late age for a type l, but my mother was the same way. I also suffer...
Hi Annemarie, Interesting that you were born and lived in the Chicago area! I've been through New Mexico, and it's beautiful. If I lived there, I would miss the four seasons, but right now avoiding...
Hi all! Has anyone here had any experience with LDN (low-dose naltrexone) therapy? I've been reading about it online, and am tempted to try it for my RA, and I wondered if anyone here had any...
Annemarie, So glad you got good news! You might be right about the lymph problems being related to RA, but it is kind of nerve-racking when (as you said) both RA and some of the meds taken for it can...
Hi Abqannie! First of all, I hope you get good news regarding your biopsy--I'm saying a prayer for you!! Please post on this thread and tell me what you find out. Thanks for sharing your story...you...
How true!! /community/emoticons/smile.gif ...