You are in my prayers....
I thought I'd post this for anyone who might want to try it. Knox gelatin(the clear kind used in canning.) 1-2 TBSP in liquid once a day. I have had MCTD for years and as such have been on...
I was also diagnosed fairly young (25). Yoga- this is the single best thing for me. Malic acid- Helps with muscle pain and recovery Ambien- I do not take daily, but sleep is a huge problem for me I...
I have an amazing Daughter (14) who I am extremely proud of. I am not sure how I got so lucky, but she is a hard worker and gives me very little trouble. She is an A student,very involved in music,...
I love this idea!!!!! I think that's a good happy idea for us all....
They are. There is evidence that Fibro is a SPD specifically relating to Substance P and Pain....
With the low dosages of both I don't think it would be an issue. I know cymbalta has normal dosing of 120 MG and can be taken 1-2X a day. Effexor can also be taken safely at much higher doses. I...
Chuck, I can completely empathize with you as I have watched my brother's va battle. The tide for him turned once he was able to get a social worker to manage his case. He talked to his Dr about the...
I am in Vit D3. B12-i have pernicious anemia, Magnesium, and calcium. However I have always been deficient in all of these....
Go to DOL.gov. They must accept the department of labor paperwork. You can request intermittent shorter hours. Unfortunately many companies do not follow guidelines. Please read/print out the data...
I used to use a script sunscreen, but now I use waterbabies 100 SPF reapply at least every 2 hrs...
I say improvement after 24 hours. After 4 days I had to change my dosage to every other day as I was going to the restroom too much. After about a week I was "normal". My daughter takes it every day....
I have been Dx with IBS for years. I have tried numerous treatments with 0 success. Let me begin by saying I am selling nothing, and I have no affilation to the product I am using. However, on the...
really bizzarre quetion but have you had her tested for nutritional deficiencies, a full nutritional panel. I know with my daughter, the migraines and skin sensitivity as well as digestive issues...
corrine, Unfortunately I cannot see the rash either, however i have MCTD and have gotten Roseola( a viral infection) several times, it always begins as boils. Just a thought...
I have had success with a few alternative therapies. Malic acid-really good for muscle pain and recovery Yoga- I find the stretching helps Lactobacillus Gastri- this one is new, but has completely...
If you live in the US, your doctor can fill out FMLA paperwork which will prevent you from being fired. You do not have to have a firm diagnosis, a presumptive one will do with the listing of your...
welcome...
I hope you are not suck on it forever as well. I am very lucky that I have relapsing/remitting illness so I do not have to take it all of the time. I also have to be very careful of the sun. I have...
Yep multiple bouts of the mono monster here....
Enlist your doctor to help you. They have much more sway with their reps that you will as a nameless person on a website. Many times the rep has the authority to offer the doctor "cards" for the meds...
For me it is 3 days like clockwork, and usually in the middle of the night. The hair part took me about a month. I hope you have no more issues than I have....
Welcome, and looking forward to getting to know you....
Hello Lady, I take MTX for MCTD. The side effects for me are not too bad. Some nausea, Zomig works well for that, and my hair gets thin, but not terribly. I really have to watch for the bruising as...
welcome, I am sorry you have to be here, but am glad you found us. T...
Mine comes from my pre-illness days. My DH and I loved to restore old cars. The last one was a nova. ms- cause I am female, and 74 my birth year....
I use B12, Malic acid, Magnesium, 5 HTP, D3, and recently started with raspberry ketones....
Hello wondering. I think it is a case by case basis. I use some prescription meds, as well as quite a few herbal medicines. When i first got ill I was on tons of junk, and taking meds to fight the...
Most logistics office jobs can be quite flexible, with telecommuting, and flexible hours. And the 3PL logistics companies utilize alot of customer service reps. Also from my experience, a college...
Welcome, I love all of the people who have or HAD it. My favorite is when they offer what cured them, like pineapple juice, mucinex, etc. I think we can all feel your pain. T...
I take way more than nine when you count my herbals and scripts. I don't have to take everything every day, but here recently I have needed to. T...
Sending prayers to you and your family. T...
Mixed connective tissue disease. It is an autoimmune disease. There are many subtypes. The symptoms for me are Inflammed lymph modes, muscles, tendons and ligiaments, and nerves occasionally. I had...
Hello Michelle, I was diagnosed with Fibro and then later MCTD. I have become fairly good at figuring out which one is attacking at which moment. You absolutely can live a relatively normal life. ....
I would ask for an autoimmune panel. Before I was diagnosed with MCTD, I had all three symptoms on and off. My rheumy told me that the inflammation of the lymph nodes and the sores in the mouth were...
Congratulations. I am a mom and a step-grandmother. As Fibrogrannies we have to do things a little differently, but they are definitely doable. My daughter was 2 when i was diagnosed so she has only...
I use peanut butter. I am not a big meat eater, but in the AM I use a good organic no sugar added peanutbuter. T...
I love yoga. I do 2 sessions at home a day. If I skip, I know it because my muscles will get extremely tight. In the beginning I went to a gym, but have been doing it at home for 10+ years now. T...
Loopy I feel your pain literally. As a 38 F I hate bras when I am in a flare. The best bras I have found are at dillards, they are called moverment bras. They make them with and without underwire....
I will keep you in my prayers. T...
Hello wand welcome. I think the majority of us had a long journey before we were diagnosed. It is good that your doctor wants to ensure that there is nothing else going on. T...
I use malic acid, magnesium, vit D3, Vit b12, and acai berry at the moment. If I had to chose one that i couldn't live without it would be the malic acid....
Memphis, I liver near you (just south actually) Baptist East has some support groups, however it is hit or miss on attendance. Hope this helps...
Welcome Ladysage,...
My standard answer to someone I know is just being polite is "upright and functional"...
I am 37 and my symptoms started when I was 25. T...
Valentine welcome. My rule of thumb is that if a new issue concerns me enough to go see my doc then I do. It is very easy to blame everything on the Fibro. I was diagnosed with MCTD after the fibro....
The manufacturer does have a prescription program. There are documents that your doctor has to fill out. When the company my husband worked for closed last year, we had to do that temporarily. I...
Adding my prayers for you and your family....