Thanks Debbie, I thought I looked but apparently I didn't look hard enough :)...
So this morning I see that my facebook feed is full of people posting articles about a Breakthrough in Fibromyalgia. It seems that one study reported finding the source for Fibro....
I work full time with Fibro. I was diagnosed 7 years ago when I was only 24. There have been short periods where it was difficult for me to work, but besides that I have not missed any significant...
I have had two bouts of extreme weight loss since I was diagnosed with Fibro 6 years ago. The first was the onset and then second was after a severe allergic reaction. I too had the constant feeling...
Hi BB, Sorry it took me a while to get back to you. I wasn't near a computer for a few days (I know, it sounds crazy!) Anyway, please feel free to reach out to me with any questions you have. You can...
I had an EMG before anyone suspected Fibro. My first symptom was numbness and tingling in my left arm. I was in my early 20's and once they ruled out a stroke the assumption was a pinched nerve. I...
Hi BB, Congratulations! Such exciting news! I have a lot to offer because I just went through it. My daughter is 11 months old and the pregnancy is still very fresh in my mind. Like you I was...
I get the feeling in my back, neck and face quite often. If really bad it can be startling and concerning but most of the time if I can stretch and loosen some of the muslces it helps. I think a lot...
I tried hynosis for childbirth - hypnobirthing. While I didn't acutally get to use it for the labor (of course the labor progressed too quickly and I couldn't tolerate the sound of the voice to even...
I had problem getting life insurance last year (29 years old). I applied while pregnant so that may have complicated things more. Since some of my flares have been so crazy that my heart was affected...
I am starting to feel the guilt that you all speak of. My 10 month old is becoming very active and will be walking and running around soon. I am getting very exhausted when I have her all by myself....
I may be one of the few who cleaned up my diet for 7 months. After I had my daughter I was nursing and she ended up with cow's milk colitis (allergy to cow's milk in her intestines). I had to...
Robin, I absolutely think that I am more emotional during a flare. I strongly believe that the amount of pain we tolerate during a flare is so beyond what our bodies can handle. I think a lot of...
When I went to a pain management clinic a few years ago the 10 on their pain chart meant you were going to the ER for IV pain meds. Based on that "definition" the highest my pain has been is a 9.75,...
I believe that both fibro can trigger anxiety and that being anxious about having fibro can lead to more anxiety. Like you I can get caught up in the fear that there is more wrong with me than "just"...
In our house we use Method for hand soap, dish soap and most cleaning products. Method was created specifically to clean well without the hard chemical smells and effects....
Such wonderful news Robin! Really so happy to hear it. Happy Holidays and a very happy and HEALTHY New Year too! May 2013 be a year filled with only the best for you....
Hi C_cubed. Welcome to the forum. I think it is great that you came here looking for some understanding of what it is your girlfriend is going through. Can I ask her age? The reason I ask is that I...
I also went through a period of extreme hair loss and I'm also 30... So mine was as a result of a HUGE flare following an extreme allergic reaction. No Drs could find the answer as to my hair loss....
I haven't had pain like this in a while. Last night around 2:15 am I was woken up to the most excruciating pain. It was along my left lower ribs. I couldn't tell if it was my stomach, my back, my...
Hi Eliza, Welcome! You will find a lot of information and support here. I found your post particularly interesting. I was diagnosed with Fibro 6 years ago. I knew a good deal about chronic pain...
I don't know how many of you have seen this, but there is a popular YouTube video right now called "The Amazing Transformation of a Guy Who Didn’t Give Up!". It is truly an incredible video and well...
Hi Shellmom, Welcome to the Fibro forum! This forum is definitely an invaluable resource as you try to adjust to your life with Fibro (well at least the diagnosis). I am 30 as well. I was diagnosed 6...
Occasionally my back muscles will spasm and grip on to my spine so that I can not move until they stop spasming. This lasts anywhere from a few seconds to a few minutes. Thankfully it does not happen...
I "graduated" from the cardiologist yesterday. This is the 3rd year I have had to see her due to a really low heart rate and crazy palpiations (PVCS - bigeminy and trigeminy). Yesterday I was told I...
I had my first child 6 months ago and I'm not RH-. I have had Fibro for 6 years. Interesting thought though that maybe that tied into the Fibro as well....
Hi Zak, Welcome to this amazing forum! I found it 2 years ago and it has helped me a ton. I was also sick of feeling so alone. I was diagnosed with Fibro 6 years ago when I was 24. I know EXACTLY...
My Fibro also flares the worst in the fall. I agree that it must be because of the dramatic change from summer to fall. As it gets colder I definitely schrunch myself up more to try to stay warm...
My husband and I are still getting used to the transition into parenthood. I know this is a difficult transition for all new parents, but I think it is especially difficult with the fears and...
I agree with Rose, mine typically are failry short lived a few days to a week. I had one flare that lasted for months. This was after a huge stressor though. I had an anaphylactic allergic reaction...
As far as knowing if I relaxed my tongue enough, I have no idea. The voice therapist was the one that told me what I thought was relaxed wasn't. Sorry that's not helpful, but if you get pain around...
I also had a problem with hoarseness. It is questionable what the actual culprit was (anaphylactic allergic reaction, viral pharyngitis or Fibro). Could have been all 3. I had ongoing hoarseness...
Barometric pressure is a big factor in my pain. I agree with Spookiesmom, I am more reliable than the weathermen. Two years ago when the huge blizzard (snowmageddon) hit the Midwest I knew it was...
I have the itching sensation often and a few spots where it feels like I am being bitten/stung. If I am flaring it can also feel like something is crawling all over me. I definitely think it is a...
Robin, I'm like Donna, can't wear a bra for the life of me. The costochondritis won't hear of it. I also just wear tanks and flowy tops. I have been able to tolerate some tanks with the built in bra,...
Robin, I had no idea about the cancer. I am so sorry to hear that but am so glad to know that the surgery was a success and they got all of it. You are truly something else, you're always such an...
Dear Fibro Family, I missed you all and hope you are all doing well! I am excited to get to know the newer members I have missed while I was away. I am so happy to share with you all that my time...
Thank you all for your kind words and Robin for the Happy Dance! I'm hoping that once my energy starts to make a comeback I'll be on more often, I miss my Fibro family!...
I have some very exciting news to share with my Fibro family! I am pregnant! I am 14 weeks today and my husband and I could not be more excited. The baby is due May 7. It is also my 2 year...
Debbie, I am so sorry you have so much going on :sad: You are entitled to feel down especially with how much you have on your plate right now. I hope the chiropractor is able to help with the...
Robin, I'm so sorry to hear your in so much pain today. It's raining today and I'm not so comfortable, but definitely am in the same boat as you in terms of mood. I love how you described it - taking...
Thanks for sharing Karen. I always figured they would figure it out someday, but never thought in my lifetime. Here's hoping that they are on their way to figuring it out! Sherrine, I have found that...
Tara, I know exactly what you're feeling and going through. My hair is just growing back now and I never got a "real" answer as to why it fell out to begin with. Last August I had an severe allergic...
I also can't take NSAIDs which is the biggest bummer when it comes to Costo pain. I've had it for about 10 months now and have given up all hope that it is ever going away. I have to be very careful...
Great topic Robin! Like you I grew up thinking Drs. were the smartest people and always had the answer. I grew up in a family of Drs. My grandfather was the best pediatrician and many of my aunts and...
Hi jr991, At one point I was being tested for Cushings Disease, basically tested my adrenal function. I did 2 rounds of 24 hour urine collection and essentially the results were inconclusive. I have...
Lightness, I'm sorry to hear what you're going through. My brother had similar problems when he was about 10 years old. He was having neurological problems but no Dr. could figure out what was...
Robin, So glad to hear you had a great trip and could enjoy it despite the flare! It's amazing what we can push ourselves to do when we're enjoying what we're doing. I always feel like the pain and...
The rheumy thinks I may have sjogrens as well. In some people it shows up in the blood work, but like Diane said the definitive test is a biopsy, my Dr. talked to me about a lip biopsy. She would not...
Robin, I'm so sorry to hear about your rough morning. Not a fun way to start the day I hope you have a nice trip visiting family and that it distracts you from the current flare. You're one of the...