Hi tara. I replied to one your previous posts about hypermobility. From what I've read there is a strong connection between ans dysfunction and joint hypermobility syndrome. Dr Alan J Hakim has...
Thanks for your help once again DW. I wont be leaving yet, this site has been a great resource. No harm having a few forums to read, i have very little else to do all day these days (and nights)...
Hi tara, i just checked in and luckily saw this post. Hi deepwell. I was recently diagnosed with joint hypermobility syndrome, along with fibro and many other problems. I was dx'd with fibro first...
Thanks DW. Our bodies definitely know best. It's so strange that I went to this rheumie too. I could have gone to one of thousands but picked her, I think she said the conference on this subject was...
Hi Katie. I'm just back from the rheumie visit. What an interesting 45 minutes. She noticed within 5 minutes, before I had a chance to say anything about symptoms, that I had hypermobility syndrome...
Thanks Katie, I certainly will let you know. The rheumie I am seeing on Tuesday is supposed to be the best in my country so hopefully she can help. My last rheumie was not great, it was my GP (family...
DW, thank you very much for all of this. There's some great information. Funny that you should say that about Ami, I have found myself a bit more emotional lately. I have been teary eye'd more in the...
I meant to say, katie bell I don't have as severe symptoms as you do. My fingers are only swollen and sore in the morning and there is no bleeding under the finger nails. Sean....
Many thanks for all of your replies. There is some excellent information here once again. I am meeting a new Rheumatologist on Tuesday so hopefully she will have a better suited med than the Ami. I...
Hi all. I was just wondering if anyone has problems with stiff, sore and swollen fingers in the morning? This seems to be a new problem for me. They are so sore, I cant bend my fingers for half an...
Rose, I did associate the pain in my wrists and hands with fibro until I was told differently by my rheumy. Sometimes my hands hurt and sometimes they didn't. I could spend a whole day fly fishing...
Thank you very much for the great advice everyone. I will start the supplements today and see how it goes. Failing that I will speak with my GP about changing the painkillers. Sorry if I picked you...
Thanks very much for your responses. Sherrine, I thought I was seeing a good rheumy but I found out lately that he is not the best, and found out the hard way. He sent me to a orthopedic surgeon...
Hi all, I've been away for a while because my Fibro got out of hand lately and I haven't felt up to posting. I can't believe how bad it has been in the last few months. I've even had to stop working...
Thank you very much everyone, I really mean that. There is some great information in all of the responses. I think I will go for the shots, after lunchtime everyday I am finding it very hard to do...
Hi everyone. I've been away from the forum for a while, I've been worse lately. Haven't been at work. I was at the rheum a couple of days ago and have been dx with carpal tunnel synd, plantar...
I have always been clumsy and accident prone. Anyone who knows me knows how clumsy I am. Yes Mrsppmrxky, I hope your daughter wasnt hurt badly too. I dont think I had similar problems with my knees,...
Hi all. I was reading a book about JHS and how it can be a cause of FMS. The book is titled "Hypermobility, Fibromyalgia and Chronic Pain" and is written by Drs. and Professors. The authors explain...
Thanks a million for your replies. Yep, I think I better have a talk with my Doc. I was taking ixprim which are 37.5mg tramadol and paracetamol. The dose was increased to 2 tablets 3 times a day. I...
Hi all. I was just wondering if anyone else that is taking tramadol had any bad experiences when they first started taking them. I was prescribed 150mg twice a day yesterday and have taken 3 tablets...
Hi all. I was just wondering if its anyone else has a numbing pain in the occipital bone, at the back of the skull base. I have a large hard bump there for a very long time, probably just the bone,...
Hi masschaos. I have that problem too. A lot of my teeth are grinded down to half the size were are and my jaws are always sore. I was wearing a gum shield but I cracked a a tooth when I had them in...
Hi ak angel. Thank you for replying. I'm a newbie to FM, I was diagnosed a few months ago, so havent tried too much apart from the meds I'm on. I'm willing to try anything, it is so sore to walk and...
Thanks a million to you all, its great to have a place to go where people listen and understand. My family and friends don't understand the full extent of it but they try, my wife tries very hard and...
Hi Robin. Thank you very much for this reply. It's great to know that flares like this can happen regardless of meds. Its so confusing and frustrating when I felt so well for a while, then this. I am...
I'm on day 5 6 or 7 (i cant remember) of a bad flare up. I can't believe this is happening again. I have been on Lyrica for a few months and have felt great. No headaches, abdominal pain and I was...
Hi huskergal I've been on Lyrica for a few months now. I've found them great. I still have some bad days but not as bad as they were. Takes a while to get used to them too, I felt very spaced out at...
Hi Marritt. I suffered for years with severe IBS type symptoms plus some, still do at times especially after alcohol or chocolate/sweet things. I had really bad digestion, burning stomach,...
Thanks everyone, its good to know I'm not the only one. Jaden and sawa, that is it exactly. Its like everything is trembling, internally and externally. I keep meaning to keep a food diary, I know...
Hi applevenus. Thanks for the reply. I've had this for years, before I even started the meds. Some days its ok but days like today its crazy. Its soooo anoying, its like my whole body is trembling...
Hi everyone. Just wondering if anyone else with FM gets the "shakes". I'm having a bad day, even on 450mg Lyrica a day, and along with my whole body aching I have really bad shakes. When I tried to...
Hi all. I've been on Lyrica for a while now, I'm on 450mg a day. Definate weigth gain but I have found it great for FM. The weigth gain doesnt bother me, I had lost 60-70 lbs over the last few years...
Hi Sheerine. Thanks for the welcome. I will have to discuss this with my Dr. I did see a rheumatologist, he was the one who confirmed the FM dx. He seemed to think that both my short leg problem and...
Hi tiredredhead. Yep, I have feet problems too. I have a short leg, the chiropodist I saw reckons its because I broke my leg when I was young, so have a heel support insole. However my rheumatologist...
Thanks all for your replies, I cant get over how active this forum is. @Mrs P. I'm so glad to hear that you have had long term relief. Its good to hear that it does happen, I've read so many posts...
Hi everyone. I have been reading this post for a while and finally found the time to post. Great forum by the way. :cool: I was finally diagnosed with FM about 2 months ago and am still learning...