@myself Hi! I remember you! I'd actually sort of given up on finding what it was. I got so used to "it" that it just became that invisible friend that affected me everyday. It became the new normal....
@Sam. I will try to email you when I have some time. Keep in mind, I'm no doctor, so take what I say as a non-doctor. A lot of the symptoms you describe can overlap with so many things. I did...
On second thought, I don't know if private messages work here. What nation are you in and have you ever traveled? What are your main issues?...
Couch tater! I remember you! It's good to hear from you!...
Hi Sam, I will try to PM you. Any person searching for a "mysterious illness" for years who has spent any time in a developing country (apparently even less than two weeks) should probably see an...
Sorry guys, I'm just very scared to share with the actual diagnosis because of no privacy online. Its not Lyme but maybe related in symptomology because it's **bacterial** and it's a doozy of a...
Hi, I used to come here about 3-4 years ago. For 8 years I've wondered what went wrong with my health. At 26 years old my health changed DRASTICALLY. I thought I had Lupus because I had joint pain,...
Hmmm.. so do you not have a sacroiliac joint issue? I ask because if you were to have a sacroilliac joint problem, I'd ask you if you by any chance have hypermobile joints, lax joints, or...
"Newfound link between chronic fatigue syndrome (CFS) and early menopause was reported online today in Menopause, the journal of The North American Menopause Society (NAMS). This link, as well as...
I just read this. Thought it might be relevant for some of those with CFS and Fibro diagnosis. http://www.sciencedaily.com/releases/2015/02/150204075324.htm "Newfound link between chronic fatigue...
I work in a kindergarten class as an assistant, and I just constantly move, am usually standing, and have little time sitting. If I had an office job I could probably do it, but not this one, where...
Any of you guys have any of these issues? Hypermobility, MVP, EDS? I've always known I had hypermobile joints and mitral valve prolapse, but I wasn't sure it had anything to do with my FM/CFS...
Last year I started having daily headaches. I'd go to bed with a headache, and wake up with a headache, wondering if it could be real that headaches don't go away for months at a time. It was...
Another element that affects me and my sleep besides the obvious sleep-inhibitors (which would be not keeping a normal routine and schedule, sleeping in too late, stressing in the late evening,...
Last year I started getting headaches about 5 out of every 7 days and wondered if I'd ever have bit of relief again. (You can check my posting history. It was a year ago exactly that I was on this...
Heh, I forgot about those posts. Food still rules my life but I have a much better quality of life now that I'm vigilant about my diet. I have significantly cut down on my chronic constant headaches...
I took a vitamin D gummy last year and ended up with: vertigo, dizziness, headache, and increase in fog and FM symptoms. I suppose there's a chance it was placebo effect but I also think its more...
I know another poster has just shared a similar link to this study, but I think its very interesting that a group of researchers have now found evidence from the PET brain scans of CFS patients that...
I realize my headaches are greatly aggravated by food. Mono-sodium glutamate (MSG) is the devil incarnated into a food item, for me. This terrible ingredient known to cause brain cell death at...
I've been on a mission to find a doctor with at least somewhat of a decent understanding of FM/CFS and its been a challenge. I'm even willing to sacrifice some to see one of good quality, experience,...
Interesting. You said that you'd heard that taking magnesium pills when your levels are low makes your levels even lower. Did a doctor tell you this or did you read it somewhere? I'm especially...
Yeah, I realize some activities are too stimulating in the nighttime hours and prevent falling asleep in a reasonable amount of time. A little conversation on this message board is fine, but a heated...
I had an itch on the sole of my left foot a night ago, and thought it might be weird FM stuff, but woke the next day to 4 large bug bites on various parts of body. So now I'm left wondering if the...
This is kind of random but a big part of my FM and CFS illness is my sensitivity to chemicals. I realize not all with FM/CFS have this issue, but I do. A few years ago I dressed up as a character for...
Thanks for the feedback Karen and Mystic... Its interesting because recently I just read another article targeted to the general public stating that low vitamin D levels can be *indicative* of...
Hey all. I was perusing the news today and happened to find this recent article on a study concerning vitamin D and FM. Its not anything surprising, but still interesting to read. Take a read....
Hi all, I don't have children but I consider having them, (I'm early 30's so my window of opportunity is slowly closing) but I wonder is it possible to get sufficient sleep when you have children?...
There's likely no way I'll intentionally touch a flu shot again. What I've learned over the years from my own body and its unique responses are: Natural is good. Synthetic is bad. If I naturally get...
My body no longer processes the caffeine the same, since having this FM/CFS like illness. I can't tolerate coffee and even some types of tea. I think there is a break down in my body's detoxification...
Hi all, I just need to vent. I know others have written about weather and FM. Right now my partner and I are sharing my car until he can purchase his own, which will hopefully be in the next few...
I remember reading user reviews and experiences with FM(?) and MJ on some internet site and was surprised by some of the rather positive reviews. I wish I could recall the website so that you could...
I'm always looking for the "cause" of my pain in my lifestyle to see if I can pinpoint the acerbating agent so that I can avoid it in the future and feel better. Sometimes I can, and sometimes I...
I read a news interesting article a few months ago (which I saved on my phone through a link, I think) which went somewhat into the connection between abnormalities in the gut, and chronic illnesses...
Food for thought (although it might not be related to your issue) Sacro illiac pain can cause low back pain, and oftentimes is the cause for unexplained back pain or when surgery for back pain fails...
@wackers. I also have had pain when moving my eyes from side to side, especially upon the onset of my FM/CFS-like illness. I have felt a pressure and strain on them. It subsides at times and at other...
Okay, this will sound weird. So, to my dismay, last April during a bad cold and allergic reaction to cats, I went to town eating cheetos laced with MSG. I ate half of a huge container of MSG-cheetos...
@couchtater, I have aura migraine zig-zags before major classic migraines, and I cannot speak for wackers, but what I have 24/7 is different than that and covers my entire field of vision, unlike the...
I believe that my hormones and abnormal menstrual cycle are completely connected to and related to my FM-like illness because my menstrual cycle became bizarre and abnormal when my FM/CFS-like...
Yep, I get that too wackers, when looking at a pattern. Floaters seem more of an issue with the actual eye. Floaters are "tiny clumps of cells or material inside the vitreous, the clear, gel-like...
@Wackers! Yes! I have what you describe *in addition to floaters* I have several eye issues occurring at once. For one - I have floaters.. dots that move around my vision when I move my eyes and...
Due to the changes in the Affordable Care Act, I qualify for subsidized health insurance and am most likely going to buy a new healthcare plan. It should be an improvement upon what I have right now,...
I'm sorry to hear that. So far, I've just noticed that the heat is much worse for me than the cold, although the cold is definitely not ideal either. This summer I almost passed out several times at...
Sorry, two venting threads a day should be disallowed, right? I'm frustrated because I'm so happy to be working for this theater company, but today I found out it requires more heavy lifting than I...
Okay, this may sound like a strange symptom, but I notice on some mornings that when I wake from even 9 hours of sleep, it feels as if its been only moments since I went to sleep and woke, almost as...
Yeah, I agree with you guys too. I know that D can help with how you feel, and so I'm not against taking it when you're low. I suppose though, I disagree with the doctor that might point to low D as...
Thanks for sharing your experience. The thing about my version of FM that frustrates me is the fact that meds give me some awful side effects these days, and so even in the case that I have...
I haven't had a migraine with aura since November of 2012, over a full year, and so I was so disappointed to see the shiny zig-zag lines across my vision at work the other day, right before a field...
http://www.reuters.com/article/2013/12/06/us-vitamin-d-idUSBRE9B500120131206 "(Reuters) - Researchers cast doubt on the prevailing wisdom that vitamin D supplements can prevent conditions like...
Glad to hear you got some good news!...
@couchtater Thanks for your input. I was very convinced I had Lupus for quite awhile, and have gotten tested for it at least 3 times, partly in due to the butterfly rashes and hair loss (and of...