Kat and Jessie, THanks! I am going to call my gastro today and see if we can get anywhere. I am just so confused...nothing seems to work. I am on protonix (80 mgs) a day..i don't know. We'll see.....
Ok, I know we are not doctors here, but I have learned that when my docs can't figure it out, I come here for suggestions. :smilewinkgrin: Mainly because someone here has probably had similar...
Wow, Gods love...that is horrible! This is why I really can't wait to connect with my surgeon again! I had been thru over 25 c.t. scans trying to get a diagnosis the first time around, and he is the...
Thanks for the insight guys! I appreciate it...I am putting a call in to my colo-rectal doctor. This is stressful enough with out additional problems......
Good evening all, I have a silly little question... I have been having some issues with pain, and go back and forth between constipation and diarhea. My gyno suggested IBS, BUT can you have IBS with...
Wow, would really like to know what you found out.. I have had ringing in my ears for YEARS, and migraines have been terrible! Knock on wood that they have let up some since my hysterectomy. But I...
Yup, I too go from icy cold, to sweating hot. I find it worse when I am in flare mode...When I get cold, my shoulders hunch up and I curl into a little ball... That's all well and good, but then my...
Luvz, Not to hijack this ??, BUT, I have several children's books that I have written, and despite trying to research it I can't find any info on how to get a book published. Very frustrated at...
Good thought... but I imagine that it takes you some time to build up stock. Do you go thru hand cramps and stuff like that? Lately I have been having bad hand problems..but you are right, we need...
Hope you feel better soon! I have not had them, but I can imagine that they are quite a pain. Feel better soon!...
TMC, Lots of pain and nausea...and little to no appetite most of the time. Part of my bigger concern, is that in November I had a LARGE (almost a foot total length) hernia repaired, and a week later...
Hi all!! It has been a while since I have been here, but I do have a question. I had a total colectomy with ileorectal anastomosis, and STILL have constipation trouble (2 years post op). Does anyone...
Oh without a doubt that fog can be wonderful for doing things wrong. Like when I called one of my doctors to confirm an appointment I had already gone to...and then remembered the upcoming...
Irish~ LOVE IT! According to CSI, you're 3 hours dead.... bahahahahaha... but you are right! Hands and feet are ice cubes all the time, and when I go to bed I have to tuck my jammie legs into socks...
Sherrine, Well, they haven't said, "You'll be dead n a year", BUT right now this disease is shutting down her throat muscles. So she could be int he middle of eating, and her throat doesn't receive...
Holding it in, is a NO NO!! Sorry, that is something my doc DRILLED into my head...lol But yes, in fact, I had to have a total colectomy because of it. my large intestine was considered a toxic mega...
Charm, You hit the nail on the head, I get it when I eat the wrong food (as I have celiac), and when I am stressed. I have not been diagnosed with Lupus either...(yet!) Best of luck.. and yes, mine...
I am sorry for posting this here and taking up space, but I have found so much help and support here, that I am just trying to find the same love and support for my best friend. She suffers from...
I am on 1500 mg. a day.. and sometimes they cause drowsiness..but usually just when I am already tired. If I am not, then they are ok. But I do take them at bedtime with my cyclobenzoprine. And I...
Wackers, Yup, basically our bodies will revolt over (what seems to us) the smallest things... And I get where you are coming from too... it is exhausting, but the sooner you can sit and relax, you...
Sounds like she needs a reality check.. sorry you are having such bad trouble.. as for the timer for your heater... Go to the christmas section and get one of those that you can set to go on and off...
Had the patch, but I coudln't keep using it.. had a bad reaction! Where the patch was I broke out in blisters and had breathing problems.. BUT, I am also allergic to hydrocodone, oxycodone, tramadol...
For boots I got Servus..they are a knock off to BOGS, and totally worth it! I paid $30 for them, they are rated for -30 and waterproof... I got them last year because my feet froze at work all the...
Yes to all of the above! And I live WAY up North in NY..in fact, when most people say where are you from? I usually say I am a Southern Canadian! Because Canada is literally in my back yard :) SO the...
Sorry for the yucky birthday, but hey..like everyone has said, flares end.. OR hubby gets take out and you do candlelit dinner in your pjs.. maybe take a nice hot bath together :) Hope it was still a...
Thanks guys and gals :) I had to reschedule my follow up,so I go this Friday. Had some other stuff come up. Maybe you guys can relate? 1 week ago I had to have another major surgery..they had to...
oh yes, had this for years now.. sit too long and can't stand straight up for about 10 minutes.. :( yes, a true pain in the rump!! makes me feel 93 not 43! hahaha..although, i have been having a bit...
stinky, I am with you on that one.. can sleep during the day, but not at night. I go to bed at like 9-10 and am up without fail at like 1-2 ans am up all night. I ahve tried skipping my nap, but then...
Acheybody..... I am also on gabapentin 1500 daily, it has helped, but you are right about the spacey aspect. My question to you is, do you still drive and things like that? Because I have on some...
My "zaps" started in my feet and legs, and the other day was the first time I got them in my head..just 2x, like quick lightning flashes...and you are right, didn't like it ONE BIT!!!! Very scary,...
Uhura, Ditto what Karen said.. there are SO many issues with fibro people, but the fibro 101 is a great place to start. It can all be soo overwhelming at times that you really think you are going...
Gluten free here, but that is due to my celiac not my fibro... And I LOVE it when people ask "Does it matter?" my answer is nope, I will let you decide, do you want me vominting on the floor of your...
WHAT?!?!?!?! No Snickers for when you "aren't acting like yourself"??? Sorry, just had to..if you can't laugh at the small things, you need to get a life :) But seriously, I hear ya there on knowing...
Ak, I had 3 pre-diagnosis, but no one would confirm it.. until now :) can't wait til I go back next week!!!...
I went to a new rheumy yesterday and couldn't be happier :smilewinkgrin: At first it seemed like she was blowing me off, making me feel like I was crazy, or losing my mind. :cry: Then after we did...
As odd as this sounds, I would really LOVE for one of the guys to chime in on this and maybe help US understand a better way to relate our problems to our spouses... I for one know I can't make my...
Joy, what a great way for your husband to help!! Wish mine could get that!! His answer is always, "just say no".. but its' not that easy.. And yes, I have pushed myself too hard these last few weeks...
Well, for hte most part I try to look decent when going out..but at home? Not so much...no bra, and stay in my jammies to clean the house.. Then I get cleaned up and dressed for the day..sometimes...
Welcome, glad you finally got your diagnosis, hope you can find a regimine that works well for you! Make sure you read the trhead at the top of our board Fibro 101, it has AMAZING things in it..and...
Nice!!! so glad to see that others are enjoying pets for therapy.. that makes me sooo happy!! I do have some pics on my fb page, but will try to get one here too :) He is such a goof ball!! Our cat...
Wow, so glad to know when you are not alone in things like this!! We are certainly less intimate than we used to be, and I know it bugs hubby more than me..on top of the other stress' in life, I just...
Sorry, brain glitch on my point, a pet is sooo theraputic!! He calms me right down.. lays at my feet in bed part of the night, and when I am sick on the couch he lays right next to me :) And he is...
So, my son in law told me that a local humane society was doing free adoptions for the month of September.. :smilewinkgrin: As our dog has been missing for a while, and since I feel so crappy all the...
I don't know about you folks, but i think it is time for Sherrine to throw one of her AMAZING virtual parties! I could use some good laughs and chill time with you guys :)...
Kitt, Thanks for the encouragement.. I actually got great news yesterday! The rheumy I was supposed to see originally, got me in for next week (WOO HOO!) And I am finally having a much anticipated...
Sorry, I get it from both ends too! Heat makes me crazy, and so does the cold..I think the cold thing has more to do with the arthritis than anything...but I do enjoy a good hot tub soak, weird huh?...
Good to know we are not alone in the silly things we do :)...
Yeah, I am going to call another doctor tomorrow, I am also going to call our insurance company. This is a crock!!! How can his secretary tell me, "He absolutely deals with fibro, I know a lot of...
Hi all, as you can see from my signature, I have had to have a total colectomy, and have several other issues as well. Today was my first rheumatologist appointment and I was VERY disappointed....
I would love to say that memory isn't a problem for me, but I am still looking for a book I had YESTERDAY! To make it even worse, I have no idea where it is, as my son in law even looked for it for...