Thanks Rickrick Whereabouts in the world are you? I'm UK based. Not heard about that magnesium...I take malate the Source Naurals one as talked about in fibro 101...helps me a lot Not heard of...
I have CFS and fibro...or sometimes I think they are pretty much the same illness...
ive had these darned enlarged nodes for 18 months now!! just cant figure it out. had biopsy to test for lymphoma, but came back as inconclusive...they are not getting bigger just stay the same size...
this is ineresting...I have had this 19 months now and have tried everything...but just started on an adrenal protocol. I have tried glandulars but they did not agree with me and caused severe...
i suffer from terrible sleep problems and sleep very fitfully...never go through the night and sometimes have 3 -4 hours or sometimes 7-8 depends...even on sleep meds!! Also get really vivid dreams...
also been checked for lyme disease twice and all clear on that one!!!...
Hi there Its me - Wackers!!! I havent been on here for so long as joined some UK forums for a while...But just wanted to check in and see whats new. Quick update from me - i have been diagnosed with...
Oh my - i have just logged on and seen this sad news...Robin I will always remember the inspirational posts you sent to me, you kept me smiling...may you rest in peace and love to all your...
has anyone had a PET scan? Im not sure if i can get one here in UK??? ive had an MRI but this is different...
oh gosh- i havent been on here for quite while, please can someone update me on Robins story?? Thanks...
mine is Wackers my nickname from school My name is Jacquie and so they called me wacky jacquie, then it became wackers jackers and i was 34 when i signed up...
http://www.tuscaloosanews.com/article/20140322/NEWS/140329927?p=4&tc=pg Thought I would share...Its looking at a possible cure for fibro, but will be few years away....
I was just wondering if anyone has had experience with Low Dose Natroxelene (sp) In UK, everyone is talking about this medication on forums etc...I was just wondering if its as successful as people...
they are so similar its hard to tell and i still struggle...I am in UK and got diagnosed through GP but you are supposed to see a board certified rheumatologist to diagnose fibromyalgia...also...
i have a 3 and 5 year old...they were 2 and. 4 when i got sick...Its taken me a while, but i am finally coming to terms with it...you will need a support system in place, any help you can whilst you...
Hi there I am new to this part of the forum, usually hang out on fibro and CFS forum as over the past year that has been the worst part of my problems... However, for months now I have had this mouth...
found this info about white frothy saliva Digestive Problems Chronic acid reflux and gastroesophageal reflux disease sometimes also cause saliva changes. Opaque, white spit is most common as a person...
one more thing Jasmine - whilst i have you here - As well as sore tongue, do you get red sore arches at back of your soft palette and also little white frothy bits? Perhaps that is reflux? Im not...
Hi Jasmine - i have gone gluten free as of today...i actually dont eat a lot anyway, but always had cereal with it in so avoided that this morning - so we shall see My sore tongue is really bad today...
Jasmine - i have ordered a hair analysis test - it tests for 114 food allergies also as well as nutrient deficiencies and toxins - thanks for info on this xx...
My doc is refusing to do any more tests on me...She has been really good up until now. I might have t find another doc and start from the beginning...or perhaps try a gluten free diet and see if this...
wow - i am going to check out these juicing pages Thanks...
Hi all I have posted about this before and I hope to get to the bottom of it, but i have constant sore throats / ulcers and sores in my mouth and throat...they go on months, no matter how much or...
Hi Jasmine No havent been tested for Lyme - i think my doc would just look at me stupidly if i ask that...I am on waiting list for a CFS clinic to see a specialist, I might ask here about it -...
im feeling the same - ive had to step back a bit as i too am obsessing too much and its driving me bonkers! It starts to become a real tangled web otherwise...
oh wow Jasmine - i thought I hadnt seen you in a while! Does this mean you still have CFS also - or do you think the lyme was what was causing all of this? Thats so great you are doing better - i...
thanks Minnesota - i think finding the doctor is key then that will work with you...its hard over here, not many docs believe in it. I am on list of a CFS clinic but i think they take the approach of...
Hi Misty 12 It could be fibromyalgia? That causes pain and tiredness...I have possibly both. If you check out the fibro forum they can help - its a really active board - have you already checked it...
Caren - its ok - i belong to a juicing website I am not doing it for losing weight - more for nutrition and clean living...i will add it to my meal intake as I can't afford to lose weight - will keep...
i have it - just dont like the taste - how do you use it? I have the powder form...
Minnesota - I have had it just over a year - not sure if i have fibro also, but its the CFS aspect I struggle with Biggest problems for me are sleep, energy and sore throats!!! What can be done for...
minnesota - I can't believe you can work full time with this...I want to get back to part time at least i am going to try the dark chocolate protocol also I take d - ribose, malate, b complex, vit c,...
Oh my goodness - that scanner is me to a tee! Every little thing, movement, red patch in mouth, spot in mouth, has had me thinking cancer and all sorts! The high alert when trying to sleep - also me...
carenpolar - how did you get on with Maca powder? I think it is meant to raise DHEA levels which are a common cause of adrenal fatigue and associated with CFS...
I take magnesium malate - helped at first but no longer seems to do anything - i had a blood test in hospital recently and my levels were within normal range..i must absorb things quite well as my...
- I have been doing this for 4 days as I heard it can be good for throat and ulcers etc...the only diff I have noticed is better nails - been using coconut oil :o)...
Sorry havent been on here in a while - been having a lot of viral / mouth / throat problems I have just been changed from Amitriptyline to the above, (both on 20mg) doc said to do a straight swap -...
Oh Robin - I am sorry to hear this but pleased you have such a fighting spirit...Like everyone else has said, you are are a true inspiration and you have postively inspired me many times.. Hang in...
i have had this neck crackle for a year now...sometimes even does it on its own without me moving it, but I can hear it inside my head...i think i am going mad sometimes I have tried exercises, all...
Ahhhh Robin - i havent been on for a while and have missed all the updates...hope it goes well for you... Big hugs from across the ocean xxxx...
im here too and im feeling your pain...welcome to the forum, we are all friends here listening to you I've felt so welcome here and learned so much about my illness, it really is a place to come and...
i really hope mine is as simple as food - i want to believe it will be...im trying it and have just bought a juicer Hoping it might help my energy and joint pain and also my foggy head too.. Let me...
on this page they talk about juicing (mainly veggies) and how this can help you...
i wonder if you had candida? Candida can be sugar / yeast overload and can cause a lot of fibro / cfs like symptoms...Im wondering if i have this and have started to be sugar aware recently...coconut...
even though its June - you will still need warm clothing - at moment here in March its still only about 7 celsius / 44 degress farenheit...you will need cardigans etc in June as evenings go quite...
yipppeee - whereabouts are you coming to visit? I can let you know some good places...especially if you are anywhere near Windsor as thats close to where I live That is a long long trip - wish I...
i take D- Ribose and have done for several months...between 1 - 3 scoops a day depending on if i remember! It has had no effect on me whatsoever...Sometimes I feel it gives me more energy...but after...
might be CFS also - this can cause recurrent infections and swollen glands and fevers etc...like your body is always fighting infection...maybe pop over to that forum and ask there. I get the above...