Hi Lu. I have RA and fibromyalgia both diagnosed by my R. doc. Your arm pain sounds very familiar to me. It is worth pursuing a solution because the pain can be managed with the right regime. It took...
Thanks Sherrine and Robin, That poem really touched me (made me cry actually). We spend so much of our energy and heart trying to get from one day to the next that we need something like this poem to...
Hi asiangal555 I take Lyrica 150mg at night and 50mg in the morning. I found that it helps with my painfully burning feet and with Fibro Fog. I take most of it at night because it makes me sleepy...
Hi again, I do get fibromyalgia pain in that area especially when I am sitting down a lot. Pain in the groin area could also be nerve related. That area is generously supplied with nerves. Groin pain...
HI masschaos I'm not sure what you mean by " the bends of your upper legs" Neenaa...
Hi Poppy and Charteux. Just thought you might like to know that Methotrexate isn't a biologic, it's a disease-modifying antirheumatic drug -DMARD. Biologics are also DMARDs Good luck with finding the...
Hi BadDay, I'm very sorry you are going through all this. I have a similar collection of illnesses and find it very difficult at times. You have been ill for a very long time while I'm about 7 years...
Hi Joy Thanks for the heads-up about autoimmune diseases and Melatonin. I have Rheumatoid Arthritis which is an autoimmune disease. I had an appointment with my Rheumatologist yesterday. I asked her...
Hi couchtater, Luvzminis, GrammyG, Tiger Tales, Thank you all so much for your very kind and useful suggestions. I was really down and hearing from you really cheered me (and my husband) up. He...
Hi all, Here I am again, i have been wide awake all night long the past 3 days and it looks like this will the 4th! What do you guys do when this happens (besides reading a book a night)? I do all...
Hi Ratchet Sorry you are going through such a difficult time. It's hard to know what's what when you have a few issues going on at the same time. Hope the trip goes well for you. We have to keep...
Hi all. Those of you who have Rhumatoid Arthritis and Type2 diabetes might be interested in my experience with Victosa a diabetic med. When I started daily injections of Victosa for diabetes I...
Hi Don. I know you have RA but I'm not sure if you suffer from anything else. I say this because many of the symptoms you mention bring fibromyalgia to mind. I have both RA and Fibro. The fog,...
Hi. Like your mum I tried a few different meds which didn't work for me. I had great success with Actemera. After about 2 months I had my life back again. Unfortunately after about 6 months I had to...
Hi all. Is as simple as that, what do you do when the pain comes back. I have been doing relatively well with pain lately. My mix of meds were working. The filthy fatigue and fog were still there but...
It's difficult to get it right and sometimes you have no choice. I am going to a mass for my father in law tomorrow, a 150 mile drive each way, to mark the first anniversary of his death. It's 4am...
Hi Chartreux. I experience this sometimes too. Even though it can be very painful and stiff for me it goes away completely quite quickly. I have fibromyalgia as well as RA and I believe this pain is...
Hi Gator, I sympathise with your jaw/nerve pain. It's the worst. I have fibromyalgia as well as Rhumatoid Arthritis. The jaw pain I have is RA but it was sparked off by a visit to the dentist. It was...
Hi ozarker. Thanks for your response to my post. I'm guessing, because there are so many people viewing the post and only one response, that our condition is not a common one. I am on so many meds...
Hi all. Those of you who have type2 diabetes and Rhumatoid Arthritis might be interested in my experience with Victosa a diabetic med. When I started daily injections of Victosa for diabetes I...
Hi Nana Monster. I am type 2, dx about 6 years ago. I was mostly good about what I eat and am keeping my sugars in a good range. I am extremely taste sensitive to sugar in my savoury food. I find it...
Hi all. Those of you who have RA and type2 diabetes might be interested in my experience with Victosa a diabetic med. When I started daily injections of Victosa for diabetes I informed my...
Hi Debbie1225. I also suiffer from burning feet. I have diabetes, RA and fibromyalgia among other ailments. I don't know which is causing the burning verging on pain in my feet. Whatever the cause...
Hi All. I have Osteoarthritis and Osteoporosis for many years. Lately I have been suffering greatly with extreme pain and stiffness in my whole hands including tips of fingers and nails. This is a...
Thank you everyone for your kind responses. I’m sorry I didn’t explain what Solpadol is. I wasn’t at my best when I wrote the post. In the US as it’s called Tylanol #3 as TomBSCS says or Tylex. It’s...
Hi all. I hope you can help me. I am 55 years old woman. Among other illnesses I have Rhumatoid Arthritis, Diabetes, Asthma, Sleep Apnoea, IBS, High BP and Fibromyalgia. The hardest thing to get...
Hi. I know what you mean. My nails and hair went from bad to worse. I was on methotrexate coupled with a few different Biologics which didn't work for me. Then I found a biologic that did work and...
Hi Dave Before medication I would vary from 6 to 9. Mostly at night in my arms and feet. I would find myself moaning with the pain and the burning. I started on Lyrica which helped with the burning,...
Yes, just the other night I dreamt that I had pain everywhere in my body. I was extremely distressed in the dream. My husband woke me because he was worried about my "howling". When I woke up I had a...
I had a similar situation recently. My daughter of 24 who lives in her own home stayed with us after having her wisdom teeth removed. At the same time my teenage nephew was staying with us...
Hi C F. The reactions you are describing could actually be symptoms of Fibro. A lot of people on this forum report symptoms like that. Best of luck Neenaa....
Hi Amadeus 23. Welcome to the Fibro forum. I suffer from burning heat in my feet especially at night. It sometimes got to the stage that the heat was like a burning pain. Lyrica 150mg at night...
HI <3, Same here i have extreme pain in my arm while my blood pressure is being taken. I also never thought to tell medic that I have Fibro. I never asked if the pain affects the pressure reading. I...
Hi Mlinko85. I'm sorry you are finding things so difficult at the moment. I find it very hard to relate to the new unimproved version of me too. I would have considered myself to be a strong and...
HI mgabe, After two and a half years on methotrexate along with various biologic drugs my current biologic Orencia is working well. I have been nauseous every single day since since I started taking...
Today I decided for the thousandth time that I can't continue to push myself to my limits the way I have been since I first became sick. I can't seem to get the balance right. I try to pace myself,...
Hi Tracy. I have been in a similar situation for a long time. I have found two things that really help. One Activia yoghurt a day completely abolishes the terrible bloating and two sachets of...
Hi All, Does anyone else feel that Brain Fog is much too cute a name for a very debilitating condition? I have found it to be right up there with intense pain and fatigue as a handicap. I can no...
Hi Tom. I believe what is meant by progressive in the case of a disease (R.A. for instance) is that the damage caused by the disease gets progressively worse and never improves. In the case of...
Thank you Myself 09, getting by, Luvzminis, Loring, ak angel, JeepinPrincess and Rockon for your kind and informative responses to my query. I will contact my Rheumatology Doc to ask about maybe...
Hi all, I have been using 25mg of amitriptyline at night for the past two months and my Fibro pain has wonderfully reduced by about 80%. My energy levels have increased to almost normal too....
I started on 0.6mg Victoza injections in December ’13 and am on 1.2mg per day for the past 3 weeks. I was on 120mg of Diamicron (gliclazide) per day and it has been reduced now to 30mg because my...
Congratulations Don. I'm delighted for you. I am also experiencing great relief with Orencia. I started taking it in July '13. I was told that it could take up to 5/6 months to feel the full effect....
Poor poor you BadDay. This is not a good time for you at all. I'm really sorry you have to move house now with all that other stuff going on. Moving is stressful and very hard on a body. I know it...
Hi Evanescent Eden, I recognise your lovely name from the Fibro forum. I hope you don’t have both RA and Fibro now but it’s not unusual apparently. My first symptom was also pain and swelling in my...
Thanks very much Lanie, Judy2, and Sherrine for your responses. I took your advice and rang my Diabetic Consultant’s Specialist nurse. She agreed with you all that a 3.8mmol/l (or 68mg/dl) was way...
Hi all I have Type 2 diabetes for about 5 years and recently started Victoza injections. My dose was increased from the daily starter dose of 0.6mg to 1.2mg last week. I had low blood glucose level...
Hi txcola, My GP (PCP) advised me that The Mayo Clinic website is a good and dependable source for medical information on the internet. I did a search there regarding genetics and Fibro. I sometimes...
Hi karona, Congratulations on achieving a herculean task so successfully. What a concise and informative description of your struggles. I am positive your post will help hundreds of others in their...