Hi there, They offered me medicine but I declined. Mostly, I just learned my triggers, modified things in my life, and deal with it as best I can. :-/ Are they doing the biopsy on you? Jen...
Thanks, I have some actually. I'll see if they help. I appreciate it...it's been so darn cold, I have been wearing my tennis shoes. I've had trouble for awhile when standing/walking too long...but...
I hope you mysteriously begin feeling better soon!!!! I, too, am incredibly aching right now. It's funny - my ear will ache, then it goes to my wrist, then my hip, then over there. Annoying. Then...
Ugh - it feels like a bruise just in front of my heel on the bottom of my foot. And like I am standing on a golf ball - right in front of the heel. It is so bad right now I can't put weight on my...
That's annoying! The pillow trick might work. Shove some potassium down his throat, too... maybe that will help with the cramps. ;) My husband thinks he needs to be right beside me ALL night and I...
I just got back into exercising and pushed it too far on Saturday. It felt hard but... it was manageable. It's Tuesday today and I'm on the couch in my pajamas under a blanket. :( It's been a busy,...
Yep, me too! Doesn't help that my husband is hard of hearing in one ear and plays movies REALLY loud. Ugh! I have two young sons (10 and 8) and man, sometimes their voices get to me. Noise noise...
I have the tremors, too. In fact, I just took a video of it! I stirred cookie mix.... ya know, mixing in the flour? Now, of course, I'm trembling. I was coming here to see if I could post it somehow...
Sounds miserable - I'm sorry. :( I was Prednisone for only two weeks and it felt like it took over my world!!! I hope you feel better soon!!!...
PS ... Trying to explain/describe the difference between lactic acid build up (normal soreness post exercise) and this is interesting. So hard to articulate it! ;)...
Thanks for all of the support!!! So far, I'm doing ok. The swimming is hard but I really limit myself. The pilates, too ... Really easy, I stretch during the parts I know will hurt. Foolishly did...
Thank you everyone!!! I feel better just knowing these aren't off the wall symptoms. Annoying... but normal. :D Jen...
Just a little cheer! I have been SO impressed and inspired by those of you who have been able to keep with an exercise plan!!! I have been so scared to start. I'm only a week in... but so far, so...
Hi there! :) I seem to be getting worse in a few areas, and wondered if these are things you guys notice too? 1. Tremors. My whole body feels like it is vibrating, all the time, constantly. I tremor...
That is amazing!!! Good for you! I was really doing well with exercise and then May came, and wham! I haven't been able to do anything since. Took a 6-mth break from the gym, and am starting back...
It's so hard when life seems really, really full!! Here's to finding some peace! :) Jen...
These are all great! I homeschool and work from home, and tend to wear a hoodie and jeans every day! I don't mean to... and I try to wear different tops, but get sooooo cold (and achy) without a...
Thanks, Sherrine, for your kindness!! AnnaBananna - yes, there is quite a connection between fibromyalgia and Small Fiber Neuropathy! Good luck. I feel the same way. ;) Jen...
No help from me, but loads of empathy and support! I have this too and really what gets me is sitting and driving. Especially driving, having to use my right leg to accelerate!!! I so appreciate your...
Hey! So, I'm still in the diagnosis process here... After waiting 5 weeks, I finally got my results from the skin biopsy - abnormal! Woohoo! I say woohoo because it feels like an answer! Small Fiber...
Thanks, Robin! Yah, I just had a chat with him about priorities and letting go of what doesn't matter for now... if the tree is up another week, then so be it. (It was dry when we bought it, so the...
Hey all! I'm looking at my immediate future with a bit of... what's the word when something seems so unpleasant, you just refuse to take a step toward it yet? Like intentional indifference because if...
Thank you - that gives me encouragement!!! :)...
I wonder if the gas/oral sedation would be good enough for me. I've never liked the dentist...but I've never been scared, you know? I have never been in this kind of pain before though, either....
So a month ago I went to the dentist and had a cracked silver filling (from when I was 7!) replaced. I have TMJ and a small mouth, so it's never fun ... but do-able. But this lasted 1.5 hrs and sent...
Thanks, Karen! As far the emails... luckily it is a once-a-week deal. We just have to monitor student progress each week. I teach a lot of credit recovery kids so, you can imagine what a project...
Ha! I could go back and edit.... but I think the fibro fog is showing itself in my awkwardly-written syntax. I have to grade about 50 assignments today for work, and email 190 students. Wish me luck...
Well, yesterday I got the skin punch test. Three places on my left leg. The punctures didn't hurt a bit, but the shots to numb the three locations were so bad, I was gripping the bed, breathing...
I think I am in a similar place, but I go back and forth. Acceptance, then defiance. Flares don't help either. When I am feeling better (to other people it would be bad ... but good for me, right?),...
Hey all! I had a silver filling replaced two weeks ago (it was cracked). Now it's white instead of silver. But, when they gave me the shot, it really hurt on top. The tooth they were working on was...
Our propane tanks is empty so my fireplace has been off for two days. Eek! I cannot get warm!!! Between that and the holidays, I am in a flare now. :( Brrrrrr....
I don't know. The paperwork may be a good idea? I just submitted a sick day request today. I'm in a flare and using my hands to type is difficult. Fine for casual usage - but I am an online teacher...
Sorry, I should have been more clear: small fiber neuropathy. My large nerve tests came back normal, but my neurologist says that there are many people diagnosed with fibromyalgia that actually have...
Hi! My last test before I'm fully declared fibro....small fiber. From my research, it sounds like fibro and small fiber can actually be connected? My test is Dec. 3. After that, the drs say good...
Sorry for your news, though glad you know what it is you are dealing with! My neuro, internist and rheumatologist all say fibro (and have tested for everything!)...but they also say it's fibro for...
I'm hanging in there, but it's hard. I'm lucky to work from home...but I cannot say I'm always on my game. I'm thankful I do not have an audience. Can't really offer advice but perhaps you need an...
Hi! So... I said I would update after my last test. The rheumatologist cleared me for now...other than an elevated ANA (1:160 speckled), all blood work is normal. I don't show muscle damage,...
Whew! I was sooooo ill last night!! You know those scary sick, moaning and rolling on the floor types of nights? Major migraine - body was trembling - would sip water and run for the toilet. My son...
I'm sorry to hear that. I work from home (which sounds luxurious, but... well). My issue is always sitting. I use my laptop - sit on the couch, sit at the table, lay back in bed... I can never BE...
Subbing requires so much energy, too! Good for you! Enjoy your weekend. :)...
Great work! Wow!!! My husband, kids and I went to see Ender's Game last night instead of passing out candy. I'm a disgrace to Halloween. :P Jen :)...
Thanks!! We decided to play it safe and I pushed it to next week. Patience, patience. ;) Jen...
I had severe aching in my arms yesterday...couldn't figure out what I done! It finally occurred to me...I was squeezing an Elmer's glue bottle the day before, helping my kids with a sugar cube...
Hi!! I have a nerve conduction test scheduled in two days and just had a quick question. I'm not so much scared of the sensations - I really want the results of this test, so I am ok with the pain....
Actually, yes! That is the very first symptom that woke me up that something was very wrong. A limp, tingling, numb left arm - the chest pain alarmed me! I went to the ER and all was fine. I have...
Sherrine, oh no, it's not saying that at all. Actually, alot of the things we do, he suggests. Swimming, walking, relaxation. Tolerating cold weather, getting enough sleep to restore the body, diet....
David Dryland....
I read this book yesterday and was curious who else has read it, and what their thoughts were. I see where I have had symptoms for some time, but cognitively, am just embarking on this Fibro journey....
Debbie, it is so amazing to hear from someone else that gets it!!! I try to describe it to my husband and he is very sympathetic but... I feel so alone sometimes. I agree about the jewelry! Heck, I...
Sherrine, thank you - I bet you are right about the heels. I thought it was just my bones! I do wear Birkentstocks, though with winter approaching.... brrrr. :) But I hadn't considered the plantar...