Well I got to Day 12. I was having a terrible time trying to get to sleep every night. I was trying melatonin and tried Benadryl a couple times, but they didn't seem to really work. I was not getting...
Thanks for the support everyone. It's been over a week now. I feel like I wasted a lot of time forcing these meds on myself because of the pain, but I never gave myself a chance to see if I could go...
Day 5 now. Still having some restless leg, but way less severe. I can't seem to sleep though, but I'll take that over the restless leg any day. I have a full weekend serving at church, so that'll be...
Not using anything in its place. I've worked on my diet pretty well over the years and that has been my greatest step in removing the pain. I am beginning to think that most of my pain now is just...
You're not alone. I've had my share of hospitalizations and moments of having family support, but my fibro is basically an after thought that even after three years it still 'Oh yea' with my own...
Thanks for the reply! I ended up taking a Benedryl last night and got some good sleep. I feel much better today and was able to hang up our Christmas lights finally and do some light yard work. We'll...
Ive been on 100mg 2x daily for a while now, I think close to two to three years. I've always been at the same dose, sometimes it gets less effective so I try taking 50 mg or skipping doses for a...
Thanks! I completely understand!...
You'd laugh if you saw what YouTube pays for ads on monetized videos. On top of that they also prevent users from sharing specifics about what they make, probably for that exact reason. I am...
I was diagnosed a few years ago, I frequented this forum for a long time to help pas the time, learn, and just be around those who 'got me.' This past year or so I've been making lots of progress as...
Just said a prayer for you. I just heard my pastor telling us that he had a mass growing as well long ago, and when they went to operate it had disappeared. God is with you and I pray you have peace...
I took it once. Knocked me right out but four hours later I woke up feeling like you mentioned, very sickly and flu like. I never took it again. Elavil has been working a lot better for me for sleep...
I remember one year they had a bad flu strain going around, swine flu I'm thinking. Then like a month later they had a vaccine. I forbid my son from getting it, what kind of testing can you do in a...
I never ever get the flu shot. I have only got the flu once when I was like 18 and once last year. I got t right in the middle of a flare about a month after having my appendectomy. There's no pain...
Coffe gives me energy, in my bowels. #tmi...
I got it young too, and it does suck to try and explain it to everyone that I can't do certain things because my body hurts. Especially yelling it to someone over 50, haha. I got sick if the Meds and...
Cymbalta (and any med) affect us all differently. It definitely made me wide awake as I didn't sleep for almost three days. Didn't really change my pain either good or bad in the week I was on it, I...
On night 2 of Elavil. It definitely doesn't make me drowsy at all. I don't seem to have good luck in that department. Any kind of narcotic keeps me awake and gives me energy, the only thing to ever...
Interesting. I don't think that the deficiency is causing it or the other way around, but more likely whatever is causing one is causing the other? Since treating the deficiency doesn't fully help...
My GP visit went well. He have me 10mg Elavil which he said will help with sleep, headaches and the fibro, all three are my main issues anyway. He said I could taper up to 20 or 30 depending on how I...
Had an appt tomorrow for my Rhueny but cancelled because I haven't had my back X-ray done yet and he'll get gangster. I did make an appt with my GP for Monday to see what's up. Didn't wake up with a...
Just need to vent a little . I've had a headache for what seems like 4 weeks straight. Everyday I think I'll wake up without it but 90 percent of the time it's there. Probably time to go see my...
Been there too. Hopefully never again. Praying you get through it!...
I wish this headache would go away. Wouldn't mind a week no consequence food pass. Hope everyone has a great Christmas regardless if iur current circumstance....
My pain got significantly better when I stopped eating gluten. It's been almost a full year since I gave it up. I have accidentally had it I think four times or so and each time my pain gets really...
I'm not sure the exact answer but when I was on pred for other reasons it did not help my pain the slightest. I don't think it would help since it is used to rid inflammation and fibro is not an...
I always wonder what it must be that I'm going through. I find comfort in that if I can help someone else than it makes the suffering worth it....
50 mg never worked but as soon as I went to 100mg it worked really well to take the edge off. I get headaches if I take it too much then don't take any for a day or so. I did get really dizzy the...
We have 100 guys going, and the caravans are already planned out so I wouldn't be able to stop and walk around whenever I want. Based on the last 2 years I think the longest stretch is back to back 3...
In January I am leaving for the Texas/Mexico border for a mission trip we do every year. It is almost always cold there and we travel almost every day for anywhere from 3-6 hours. Last year was my...
The working thing is basically a lie. They won't approve you if you can work, that's how they denied me for 2 years until I got a lawyer and a good case for my employment while applying. They told me...
Welcome to the forums! Sorry that it's on such terrible terms that you're here but this is a great place for support, to vent, and to find information. What Meds have you tried? I definitely agree to...
Whenever it's cold it seeps into m body and makes me hurt from the inside of my bones, at least that's what it feels like. I definitely prefer and feel better when it's warm. It's a shame because I...
Good to hear you don't have some of the major things they are testing for, but at the same time I understand how frustrating it is not being able to put a name to your sickness. Prayers comings your...
Thanks for at least letting us have this thread. Good May not work for everyone, but it does for some, just like certain medications, exercise, etc may it may not work for certain people. It's nice...
Another one here. I mainly have fatigue, occasional widespread pain when my diet slips or I overdue my activities, headaches, and insomnia....
Just think of all the blessings you gave to all those children who will never know your sacrifice and willingness to give up part of your life to make theirs better. Praying you feel better soon!!...
I get all those too from time to time, usually when my diet slips or my sleep is off, which is often. I'm pretty sure I'm nocturnal. Sometimes even when I do everything right I get some symptoms here...
Praying you get some relief and find something positive to focus on!...
Glad you got through it!!...
Another for food section. Changing my diet has helped me more than any med, even though technically it's not curing anything but it is definitely making life livable for me and lots if others. Rather...
Thanks for sharing. Everyone definitely has things that work best for them and others may it may not react the same. Hopefully this helps someone!...
I fbd that the couch works for me from time to time!! Joking aside, you should definitely try and test some out obviously. The sleep number sounds like a good idea but when I tried one years ago I...
There's not much better than when a doctor actually listens and helps you out....
I can fall asleep during the day no problem, but anytime it's time for bed at night, nap or not, I can't sleep. Like others my mind races as soon as my head hits the pillow....
Welcome...
I know we're not supposed to talk about it, but if it is working for you then that's great news!! Gluten is a major trigger for my pain....
Don't worry about your income, you will adjust. We went from 2 of us working, to 1, then 0 for a while until things picked up. Now we're back at 1 and every time we adjust and move forward. We lost...
I understand your pain. My hands are pretty much shot lately too. I haven't had nearly as much teting as you, and my pain probably isn't nearly as bad but they do get bad from time to time, if I play...
There is alternatives to medication, and it may or may not work, even the medication may or may not work. If you are really resistant to wanting to take heavy duty meds you could try walking,...