Thank you Sherrine....
Can anyone recommend a good doc for treatment of my fibromyalgia in the Jacksonville or Orlando, FL area? I live outside of Jacksonville but am willing to drive to Orlando. Thanks so much....
I worked with a yoga therapist for a while. She was really helpful. Now I do yoga at home several times per week. I get myofascial release massages regularly. It hurts like heck during the massage,...
Hmmm......I take neurontin as needed for pain. Maybe I could use that as an anti-seizure med. They've given me Keppra to take until the neuro eval, but I'm reluctant to take it cause it's fairly...
Thanks everyone, for your responses....
I had never had a seizure prior to having fibro. Since being diagnosed with fibro (4 years ago), I've had 3-one 3 years ago after sleeping in a newly painted house & 2 today, after falling & hitting...
My rheumy told me that for people with fibro, sleep is the last thing to improve. For a while, I took 6 mg of sublingual melatonin, but I had horrible nightmares. Now I take trazadone. I'm not...
I use a water pillow that I got at my chiro's. It can be adjusted by adding or reducing the water in it. I've been very happy with it....
I have a lot of discomfort in my hips. My rheumy told me that toxins tend to lodge in large muscle groups, & that's why my hips hurt....
Yes, I do. I think of it as another tool in my kit. I take edibles every day because it keeps my really nasty nausea at bay. At night, I use a sublingual tincture to help me sleep. Finally, I use a...
Absolutely, for me, at least. Many times when I wake up with pain, I have been dreaming that I was being stuck with a huge amount of straight pins....
First, be very careful with paint indoors. I have never been sensitive to smells before fibro, but after fibro experienced a seizure after the inside of my house was painted. As for sleep, my rheumy...
I am 2 1/2 years into treatment for fibro. I have a couple of bad days per week, but overall I function at about 65-70% of what I did prior to fibro. My life is certainly different, but overall, it's...
Yep, phenegren can make one sleepy. However, it doesn't bother me, but I have a high tolerance for meds with drowsiness as a side effect....
Yes, nausea is a symptom for me, especially when I get tired. My rheumy prescribed phenegren, & I also take medical cannabis....
Hello. I am traveling from the U.S. to the British Isles this summer. We will be there 2 1/2 weeks. Does anyone have any experience with this? Should I begin transitioning to the different time zone...
Yes, I & my rheumy agree that leaky gut can be a huge part of fibro. After being tested, we discovered I have no lactobacillus at all. I'm currently trying a protocol to help heal my gut (hopefully)....
Yes, my rheumy is adamant about this. I take VSL #3....
Yes, I get them when I'm typically headed into a flare. Also, my rheumy told me that my insomnia will be the very last thing to improve as I work thru my treatment plan....
I try to exercise every other day-either walking or yoga depending on the weather. I don't mind being sore if I feel good otherwise, if that makes any sense. I think yall are right-I just need to...
I'm a believer in the benefit of exercise. However I struggle with knowing when I should push myself to exercise, in particular, when I have another activity planned on the same day. For instance,...
My rheumy recommended that I use a chicken-hatching lamp. Sounds odd, but it has helped....
I get a myofascial release massage every 4-6 weeks. It is very painful, but I get some serious relief for several days afterwards....
My flares are triggered by: travel, not getting enough rest, anything that changes my body chemistry in any way, such as flu shot, dentist appt, when my house was painted, etc....
My rheumatologist says yes. He has me taking a generic Zyrtec every morning, whether or not I'm having sinus problems....
I've had IBS for 35+ years. What I eat when I can't eat anything else:sourdough/French bread, graham crackers, plain baked potatoes, English muffins. The best prescription med I've ever taken is a...
I use a very low dose of neurontin when I am experiencing pain. I find it to be quite effective. It is particularly effective when I combine it with two Motrin. I'm not a medical professional, but my...
While I have symptoms in all different parts of my body, I tend to experience more achiness on my left side. Also, I tend to sleep more on my left side. My rheumy told me that I might be holding more...
My rheumy encouraged me to have mine replaced. I did, but as a part of a fairly intensive treatment plan, so I can't determine if it made a difference or not. I've been doing so many other things...
Myofascial massage & activated charcoal tablets....
I take a Zyrtec daily as part of my regimen to ease any allergy symptoms. I don't have any problems at all....
I agree-everyone has to decide what's best for them. I have gotten flu shots for many years, with no reaction, except for some mild soreness at the injection site. Since I was diagnosed with fibro...
I think it's all about finding a balance that your body can handle. We committed to give this treatment plan 12-18 months. Michael told me that the hope is that after this treatment plan, I will have...
Let's see if I can articulate a couple of thoughts.... I did try to increase my Vit D too quickly & felt awful, but not really nauseous. However, I would think it might affect people differently. So...
AnnaB-I think I may be receiving treatment at the same place as you. I am also on lots of supplements, a few prescriptions, but nothing really for pain. I have been seeing them since March of this...
I like neuromuscular massage. It hurt when I was getting it, but I felt much looser for a while afterwards....
I gave myself oxytocin injections for several months. I no longer have periods (hysterectomy a long time ago), but I thought the injections helped until I got further into my treatment. Then I...
I have never had kidney stones, but I know fibro has magnified my pain response. Previously, I had a very high tolerance for pain. But now....hit knee on chair & my leg ached for the rest of the day,...
My rheumy told me today that he believes that this might be beneficial to me to help curtail my fibro symptoms. I've done some research on the Internet. Does anyone have any experience with this?...
When I am lightheaded or experience vertigo, I know that a flare is imminent. I try to cut way back on my activities & rest a lot more....
Thanks. I'll try to find it....
I have two & they're very old. The rheumy doesn't think the mercury caused the fibro, but he thinks it adds to the problem of the toxin level in my body....
My rheumy recommended that I get my mercury fillings removed, but my dentist said he didn't think it would help. Has anyone had any experience with this? Thanks so much....
Oh my- I just noticed this week that I feel exactly that way prior to a flare. It's some comfort to know that others feel that way. Thanks for sharing....