I came out of a 7 month flare up a couple of weeks ago. I was so sick that I felt like I was dying. I have the opportunity to work 15 hours a week now for $10/hour cash helping out at a thrift store...
Have you considered taking something for your anxiety? I don't think it's all in your head. However, I think that anxiety and stress can affect your health. I've had LPR for about 3.5 years and my...
Hi Natik, so sorry you are feeling lonely. I moved to Solvang, CA (2.50) hours away from LA two years ago and I understand! I only have three friends here and no family. Fibro alone can leave you...
I'm going to be getting these supplements, and I'm wondering what brands are best and where you get them. Thanks, Michelle...
Has anyone tried or noticed that HRT has helped with fibro? My rhuemy mentioned it and then I saw some info about it online. I'm in menopause now, so I might give it a try. Thanks, Michelle...
Hi LymeRebel, yes...I feel like I'm dying when I have a flare up. I'm 3 months into one right now, and it's wearing on me physically and emotionally. I'm so, so sorry you're not doing well. Keep...
Hi, I've had internal and external vaginal itching for the last two months. It's driving me crazy. No yeast, bacteria, trichinosis or other STDs. No discharge or smell. Had hysterectomy in 2010. They...
I've experienced severe constipation and weight gain on it, but those could be from something else I guess. It hasn't helped my fibro pain at all. I take 60 mg, and I've been on it a year. I recently...
Hi, I live on the Central Coast of California, and I'm looking for a Lyme literate doctor. Thanks!...
Hi, I've been sick for 3 years, and I'm getting much worse. I was diagnosed with Fibromyalgia, but I'm now wondering if I have Lyme's. These are the tests I've had, which were all negative: Lyme...
Yep, every flare-up I have starts with a sore throat and ear ache....
Thanks everyone for the info. Sherrine...good to know. I've always known malaise to be illness. I do take vitamin D and I live in California, so it's not due to vitamin deficiency or cold weather. In...
Take long walks. Get plenty of sunshine. Just don't think about it. I thought you'd be better now that you live in California and you're in love. I know a lady who had it for 6 years and then her...
Huddie, what environmental toxins made you sick? I just heard a story of black mold illness looking like fibro and CFS....
The longest I've gone between flare-ups is 4 months....
So you're not referring to body aches when you say you have flu like symptoms?...
Malaise actually means a general feeling of illness...it's not fatigue. Also, I'm not talking about the aches and pains we feel all over our bodies, I'm talking about a feeling of illness like when...
Hi there, I'm starting to feel like I have something other than fibro. I'm in a 3.5 month flare-up, and I have body aches with severe malaise. This general feeling of illness is so severe that I feel...
Hi Betsy, I feel your pain...literally! Ha! My grandma will even tell me that I "sound better" today when I talk to her on the phone...even when I feel like I'm dying!!! It drives me crazy! I'm just...
I'm on Cymbalta. Started on 30mg and now up to 60mg. Helps with depression, but not at all for pain. Reduced dose to 30mg for a few days and got nausea, dizziness and diarrhea....
I don't think a second opinion is ever a bad idea!...
Hi Mike, I didn't read all the posts after yours...but I have a few thoughts. The irritability, inability to concentrate and rushed thinking could be ADHD. I'm wondering about myofacial pain syndrome...
Hi myself, I'm not working right now and don't do that much, but probably am pushing myself more than I should. Thanks for the reminder. I'll really, really take it easy now to see if that helps....
Thanks ladies! I've got my head on straight now...this will last a week or so until I break down again...and then get my head on straight. I'm going to see an endo and rheumo soon. Take care everyone!...
Hi, I'm actually in California, but it was a little cooler than usual here today. I'm going to get into a warm bath now. I hope that helps!!! Thank you Ljm I hope you have a good day tomorrow as well...
Hi everyone, the severe aches and malaise are almost unbearable tonight. I'm wondering again how I'm going to continue like this. I've been in this flare-up for 2.5 months now, and I just don't know...
Dear Ashley, hang in there kiddo...I'm 44 so I think I can call you that, right? I'm so sorry that you've had to go through all of that, and that you are feeling so alone. Please remember that this...
I agree with the bright lite therapy. My doc prescribed mine when I lived in MN, and my insurance paid for it. I used it every morning for 30 mins. If you can afford it, go buy yourself a nice bundle...
TD, I agree as well...go live with your aunt. NOTHING is more important than your health. Take care now and maybe in the future you will be able to do more...but remember pacing is very important...
I say go for it...and I will do the same. I'm starting to wonder how long I can live with this pain, and I've had a few fleeting thoughts of I'd be better off if I wasn't here. I don't have a plan,...
I have this same thing. It feels like I have the worst flu ever. I can handle the body aches, but it's the severe malaise that is almost unbearable. I actually feel like I'm dying. I too had the...
I get this really bad when I have flare-ups, which sometimes last weeks and months. Feel like I have the worst respiratory flu ever. Went to doctor many times before I was diagnosed and they never...
Also, Northwoods MN...can you tell me more about your experience with hyperparathyroidism? I've been wondering if I have that too. I had Graves and then RAI...now on Levothyroxine....
Hi there, I just moved from Minnesota to Central California. The weather is lovely here. I finally just left my job a few days ago. I was on a medical leave before that, so I've been off work for...
I've been sick 9 out of the last 11 weeks...I'm ready for it to be done!...
LOL...I needed that. Hey, that's a good part-time job idea. I wouldn't have to shower or anything. Stinking, etc. would just be considered "really getting into the role." YES! I'm geting on...
Kyro, you are amazing! I don't think I could take care of 4 children, as I can barely take care of myself during flare-ups! Be kind to yourself. I've had many, many down days myself, and I usually...
They always say that fibro and cfs are silent diseases and you can't tell by looking at someone that he or she is sick. However, when I get a flare-up I actually look like I'm dying. My face is pale...
I got a referral to an endo finally. Thank you!...
Hi Karen, you can take it either in the am or pm, but your body can only absorb 500mg at a time...so if you take a 1000mg tab...divide it in two. I heard somewhere that calcium helps with sleep,...
Reply to momof2, I don't eat gluten. For breakfast I have things like greek yogurt with any kind of berries I have, a hard boiled egg and fruit or a smoothie with greek yogurt, banana, blueberries,...
Good...mom of blue turned back to mom of 2! Glad your day was better after you picked up your kids. I get down too, and the I pick myself back up. We are only human and we deal with a lot. Be gentle...
Hi Plentyofpain, I'm sorry you are in so much pain. I'm not sure what is going on, but I do know that inflammation isn't part of fibromyalgia. When I had a different job that required me to be on the...
Hi, I have CFS and it wouldn't stop me from spending time with someone I like. In fact, I just moved across country to be with my boyfriend. I can't speak for her, but it might be something other...
My FT4 is 1.73...
I forgot to mention that I had Graves Disease in 2002, then radioactive iodine to kill my thyroid...now hypo on levothyroxine....
Jen! A stripper is a great idea! ;) Too bad my 44 year old achy, sick body doesn't agree with me. Shoot!! Any other ideas?? Hope you feel better soon....
Oh no!!! :) I'm tired of this bug! How about we wake up tomorrow and feel good?!?!?!?! I do have to say that I've been taking 500 mg of magnesium along with 1000mg of calcium before bed and it helps...
Diane...I'm sorry that your children weren't supportive and didn't help you. It's hard when the people you love aren't there for you like you need them to be....
Loring, I'm proud of you...12 years with only a few good days is a long time. I hope you find more good days in the future....