I suffered from constant migraines and tried everything too. I tried the DHE as an inpatient for 5 days. It helped and bought headaches down to a 2-3. This was a huge break for me. It last only for a...
This happened to me. I live in CT so I'm not sure if the laws are different. I filed for FMLA. I believe it was called intermittent FMLA. SO anytime I called out sick regarding my illness ( fibro)...
Low magnesium can definitely be an issue. Mine is low and when I was in the hospital for my migraines they always gave me magnesium. I've had daily migraines for 8 weeks straight and when I go for IV...
Hi and welcome If your migraines have been getting worse u may want to see your neurologist and try preventative meds. I am on Nortriptyline ( also fo Fibromyalgia) and nadodol (sp?) overall they had...
Thank you so much for your reply. I will look into that. The blood patch didn't work so I ended up back in the hospital and they are trying a few medications....
Hello, This will be long, I apologize in advance... I'm new to this forum but I am usually on the Fibro forum. I'll try to be quick but a lot has happened this past week. A week ago Friday I was...
I don't mind at all. I will say majority of knee replacements are wonderful and really can change a persons life . I unfortunately am not one of them. My implant kept getting loose. It wasn't the Drs...
Hello, Yes, I have had this surgery. I have had a full replacements and 3 revisions to it. I just had my last revision, and most painful on June 4th. I've known my surgeon for a very long time.. This...
One day at a time..I hope you start to feel better and the pain decreases.. I, like you, haven't posted in a long time but read what people have posted. After may major knee surgery in June it has...
Sorry to be responding late to this post. I just had major knee surgery and haven't been on here in a little while. I had cervical surgery on my C5-C6 I had a disectomy and fusion. A plate w 4...
I didn't suffer from Childhood abuse but have had many surgeries starting in high school. ( I was always getting hurt growing up too) I have had 19 surgeries. 5 major surgeries from 2010 to 2012 than...
Wow!! Thank you so much for this information!! I am having major knee surgery oh June 23rd. I've been nervous about how this will effect my Fibro. The standard recovery is 2-3 months since this is my...
This would be my dream!! I understand why you feel guilty. I think it is only natural. BUT your husband supports you and wants to see you feeling better and not in so much pain. I also think, since...
The 2 summers before I was diagnosed with Fibro I had a positive test for Lyme each summer. I was treated w doxycycline. Two rounds of it each time...I never had a rash or saw a tick. I have been...
Thank you everybody! I did go in the water ALOT and didn't reapply every time. I tried not to "wipe off" the water w my towel but more dab. I was trying to not take off the lotion. I will definitely...
Thank you almost medfree! Funny you should say that about the sun being stronger because I had that exact conversation with my 16 year old son😀 he was the one one who reminded me of the fact about...
Hello Everyone, I went on vacation to Florida last week. It was great and relaxing. We go just about every year and I live on the shoreline in CT so I am use to the sun. This year I had a severe...
I'm not sure if this is available in a lot of areas but I have the Grocery Store Stop & Shop. They now offer a service where you can place your entire order on line. Including meats, fresh vegetables...
Wow Sherrine you are such an inspiration !!! I absolutely believe a positive attitude can change how you feel. I guess I've been in a rut. I do worry financially, but like you said worrying about the...
Thanks Debbie! I did think of that as well. Maybe I could sub?? Thanks for the idea!!...
Thank you Stacey. When I had to quit my last job I too was so stressed I had a flare. My employer at the time actually said it was ok for me to just leave that day and not have to stay the 2 weeks. I...
Hi everyone, I know it has been awhile since I posted. This will be long so it may make up for it. First, I would like to thank all of you who are in this group and give me a place where I know...
The statin drugs made my husbands muscle pain so much worse. He did go off the statin drug for cholesterol and started to Coq10. His pain decreased a lot but unfortunately his cholesterol went back...
So sorry to hear about your daughters migraines. It is heartbreaking to see you kids in pain. I get migraines a lot as well. I am on nortriptyline to try and help prevent them but when I get one I...
Welcome Mumma K, You have found an amazing group here! It's ok just to read posts sometimes and not post, but never be afraid to post! Reaching out can be very helpful! I am on Lyrica and find it is...
Bunny I am so sorry to hear what a difficult time you are having. It is a vicious cycle. The stress of work causes the flares but u have to work in order to survive which is stressful too. Your life...
OMG - ALittleLoopy- that is what my husband said to me last week when I was having a flare! I was furious. Yes I have gained a lot of weight over the last 7 years. I had lost 100# but have gained 60...
Alice, I am so sorry to hear of your difficult times. When it rains it pours ( or should I say snow!) it has been a terrible winter on the East Coast. You and your husband will be in my thoughts and...
Faith, I'm glad u r feeling a bit better. U came to the right place to vent! We all get it. Like you I don't want to burden my husband or son so I keep it to myself a lot then come here before I...
I live in CT and we have been having huge weather changes. Deep freeze now. I do feel the barometric pressure makes a difference w fibro and my migraines. The cold makes me tense and my body hurts. I...
I also have bronchitis and I have a sinus infection. I am on an antibiotic and prednisone with an inhaler. I think the prednisone has actually helped with the fibro pain. In the past when I have had...
Ashaline - I definitely get that sudden extreme exhaustion. I use to nod off at work and then catch myself! I would go to my car and lay down for 15 min. It was the worst. I have tried to explain...
So sorry you had such a bad experience. I hate when the Drs at ER's dismiss you and don't actually take the time to listen. My husband was in a major car accident yesterday and the ER Dr spent 10 min...
This is why I love this place!!!! Being able to laugh at ourselves and share our stories is priceless. We all can relate to these" miss haps" though I haven't eaten dog biscuits yet! I laughed so...
Welcome Faith! You have come to such a wonderful place for great advice and support. You have been given great advice. I wanted to just give my opinion on your knee. I have had 13 knee surgeries and...
I do get the chills but I would double check it's not a virus too. It's that time of year. I hope you feel better. Try a heating pad if you have one. They help a lot . I am fighting a virus now but I...
I love these Fibro Fog "moments" they make me laugh and remind me I am not alone! I have done the contact thing a few times. Just tonight my son told me I told him the same story 3 times! I can't...
How ironic. Just this week I have come off all narcotics. I was on dilaudid. Before that hydrocodone. I have been on narcotics for at least 6 years. Not all due to fibro. Actually, mostly due to knee...
Hello, I do what Sherrine does. I see my doctor every three months. She will write me 3 scripts for 1 month each. Outdating them one for now, one for a month from the date of my appt and one 2 months...
Thank you Sherrine! How scary for you and your daughter. I am so happy the Dr figured it out and your daughter is healthy!! The Dr said they may never know what has caused her platelet count to...
Hello, I just wanted to give you all an update on my niece again. First I wanted to share something...I told my sister ( her mom) how I belonged to a forum and asked for prayers for her. I told her...
I hope you feel better. Please let us know how your appt. went. Being sick is terrible and can cause flares. Try and rest and don't push yourself....
I just went on a family vacation to Va to Buscg Gardens and the water park. 8 hour drive and we left at 2 in the morning...I was excited by so nervouse. My best advice is if you gave a busy morning...
I do!! I am a comfort eater, but when in pain it is much worse..for instance I dropped two huge candles on my fractured foot today :( cried for a few hours and just finished some great icecream !!...
Thank you all for your prayers! They worked!! Although my nieces platelets count are 1/2 of what they should be. The Dr assured her she does not have leukemia!!! She will be monitored closely and...
Thank you Barb. I will definitely keep you all posted . I did take a muscle relaxer tonight...hoping it helps! Dawn...
You all have been so wonderful with the loss of my best friend, and my recent fall. It's been a tough month. Can I please ask for your help, encouragement and prayers again. My 18 year old niece, had...
Wow! This is so me! I am afraid people will think I have been drinking and I dont drink either. This has been happening to me a lot lately. Just yo might I tripped on my sons rug. We just laughed....
Sore2thecore - I am so sorry to hear about your friend. It is so hard to watch a loved one live their last days out. I hope she is comfortable now and not in a lot of pain. With my friend Lori, I...
Thanks everyone! Slept the weekend away. My son and husband couldn't believe it when I would fall asleep midsentence! I made it to work today and will continue to do so. <3 like u said I come home...