I will be getting a back brace to wear for a few hours a day for chronic back pain. I have a colostomy and my stoma would be under the brace. What type of protection do you use for your stoma?...
Jack, I have tethered cord syndrome and have pretty much the same pain symptoms you report. However, I have been dx with spina bifida and have had a previous surgery to untether my cord...but it...
Does your nose hurt?? I used to always say that "at least my nose doesn't hurt", when everything else was going wrong/hurting. Made me laugh a little. I'm sorry you are in so much pain. And yes, the...
Medical stuff sucks!!!! I'm so sorry you have to deal with so much junk! I wish I could take some of it away. They say that God never gives us more than we can handle....you are such an amazingly...
My best friend is going to be having a 4 level ACDF fusion soon. She insists that her spine orthopedic doc is the best choice for doing the surgery. I'm very concerned as I have heard that a...
So happy you are getting such great relief from it!! Was thinking of trying my tens unit again for my back. Has been a couple years since I tried it and am rather desperate for relief. Do you know if...
Sounds like there is something else other than IBS going on. Your GI doc can give you meds to slow/stop the diarrhea hopefully. When you see the GI doc, be sure to tell him/her everything that's...
Hi Rocckyd, Good to hear you are still alive and kicking, but so sorry you are not doing too great! I had the manometry done too, and it's not fun! Hopefully it will help you though. Just wanted to...
Thanks for the feedback. My only question about that is why would a CT scan show a specific point of a small bowel obstruction if it was just an ileus? I was pretty confused about it all, partially...
I have a colostomy. I recently had surgery on my foot and following that, I developed an ileus (gut stopped working) and that lead to a small bowel obstruction. My question is whether having one...
I use waterproof tape around the edges of the wafer. Works well to keep it from peeling off in the water. Just be sure to wait until it's somewhat dry before peeling off the tape and peel slowly. I...
Hi Everyone, I have a permanent colostomy. Last week I had an ileus following anesthesia (for a foot surgery). I developed a small bowel obstruction and was hospitalized for 5 days w/ an NG tube,...
I had part of my colon removed in Jan 2015 to fix problems with complete fecal incontinence, resulting in a permanent colostomy. However, I continue to have severe constipation. It has gotten so bad...
Thanks Sherrine. There is a fibro support group here, just never got to going. I'm very socially anxious. It would be really helpful for me to talk to them. About the Lyrica. It was working pretty...
My fibro is really acting up and I don't know who to turn to for help. I had seen a rheumatologist 2 years ago when trying to figure out a diagnosis. He wanted to put me on meds for inflammation even...
Congratulations!!! Good to hear from you and to know that things are going well w/ the ostomy!...
Thanks all! I talked to my pain doc last week and he is recommending adding Percocet to help w/ the foot pain. And my insurance said that they will cover the cost of renting a scooter and/or walker....
I have an appt 2/20 w/ my ostomy nurse to discuss 3 problems. 1. Pancaking has been happening more and more lately and is really frustrating. When the stool builds up there (right on top of the...
I do not have IBS/IBD, I have other neurological issues w/ bowel. ANYWAY, I also have chronic nausea. Mine started 2 months post surgery for a colostomy. It happens on and off, several times a day...
Vdahl, Just stopping in to say I hope your surgery went well and I'm praying for a speedy recovery! I have constipation and had a colostomy done 2 years ago to resolve issues of fecal incontinence as...
Pain during recovery: I'm concerned about pain management post-op. I do have a pain doc right now for my back problems and that is going pretty well. However, I was told by the foot surgeon that I...
Thanks so much for the help! @Seashell: I really appreciate your advice about the scooter. I am definitely going to get one prior to surgery so I am somewhat used to it before needing it. @Straydog:...
Hi All- I am in need of foot surgery. It's scheduled for March 30. Problems stem from spina bifida (birth defect) and deformities in my foot. I've gotten away without surgery up until this point...
I have had RFA done for my back multiple times over the past few years. Never had much pain following the procedure, until now. I had RFA on my left lumbar spine (3 levels) this past Wednesday. Since...
I get botox every 90 days for chronic migraines and blepharospasm (mostly in my right eye). I am due for another round in 2 wks. Due to insurance guidelines, I can't get the botox done any sooner....
Hi Karen, Thanks for the suggestion. I agree that certain products might not agree with my skin, etc. Like I said before, I know there is no leak, and I have a vent in my bag, but occasionally I just...
Thanks Sherrine, I hadn't thought of that before!...
I had been going to Fibromyalgia Center of Wisconsin, but my doc from there left the practice and no one else there will take over because she put in my chart that I was "discharged". I think it was...
Happy Birthday to you, Happy Birthday to you, Happy Birthday dear Rocckyd, Happy Birthday to you! Now blow out the candles and make a wish!!...
Oh Rocckyd, So sorry to hear you are back in the hospital. Hoping and praying that you get a non-surgical resolution to your problems. I also just want to throw out there that having an ostomy can...
Hi. I am dealing w/ those 3 things (in the subject line). Not sure if they are all related. Have a pH study and manometry in a month. Need help. Frustrated. The worst for me is the nausea. Have had...
I hope that you are able to get what you need, and to start feeling better, at least getting some of those worries off your back! Hoping that things stay stable for you too! For myself, I spoke too...
Is there "remission" in fibromyalgia? I feel like it was really bad for a while, and now my all over pain and fatigue is 70% better. Is that possible or do I not have fibromyalgia?...
YES!! Right now the lower part of my pelvic bone hurts so intensely and so deeply. I always think about what I would do to soothe it. Might be weird, but that helps me. I guess lots of times I feel...
Have been getting emails from: Sue O'Dell ([email protected]) for a couple of years. I have not had any treatment for SI joint problems, I have other issues w/ my back. But, contact her if you want....
Happy for you that you can enjoy life just as much as everyone else…I have that feeling some days too. When I get to about 4-5 days of no output, it's a big problem for me. Because we are having such...
Talk to your doctor....
Thanks. I like the Mindful website. Pretty cool stuff. I really really appreciate the support from you guys. I feel a little more accepting of today....
I guess I feel like I need to be near a bathroom because my guts are so unpredictable. I go from having no output at all for 3-4 days to days of having my bag go from empty to nearly blowing up in...
Yesterday, on a higher output day (along w/ sores on my butt from discharge), I took a chance and went to an outdoor play. There was a port-a-potty nearby, but not so easy to function in one of those...
Thanks for all the responses. Just been having trouble lately accepting that this is my life, not the life I was SUPPOSED to have. I guess if I want something different I need to get off my couch and...
I sometimes feel like I need to pass gas from my "back end" but then I remember I can't, and even though it feels weird, I try to just ignore it. I'm 1 1/2 years post surgery but still feel that...
I agree with Eucalyptus. I have had chronic constipation for my entire life, and those are the things that work well. Try it. I was born w/ a birth defect known as Spina Bifida, so my bowl issues...
Feel like I have no one. My only connections are my parents (gone for the next wk), and one friend (busy for the next wk). I pretty much always feel alone, but especially now. This is when i want to...
I know from my experience that fibromyalgia has those kind of symptoms (and more fun stuff too!) Check out that forum…and especially the "Fibro 101" section. Not saying that's what it is, but at...
Hi. Sorry you are suffering so much. Chronic pain and other medical issues can really screw up a person's quality of life. In regards to you not getting out, what if you went to a store w/ your...
So very sorry for your loss. We are here when you need us....
Wishing you below a 5 on the pain scale....
Just wondering who takes what, and how it is working for you. (I did search for meds and treatments on HealingWell, just didn't find quite what I was looking for.) Yes, I know all of us have...
Was going to skip my walk today…but I couldn't…my body was calling me to go for a short walk! I am shocked. I have not "wanted" to exercise since I played sports as a teen. So there I was, out there...