I take Magnesium Glycinate per my neurologist suggestion. He said it is the best to take - absorbs the with no digestive side effects. I've been taking it for several months now and it's working...
Yes, I get this too. It's a weird "nervy" feeling. Sometimes it's in my arms, sometimes legs and sometimes all over. I feel like it comes on if I'm cold or in bed trying to relax. It's a very...
I definitely think that Fibro pain is in part due to restricted blood flow to the muscles so this article fell right in line with that for me. I'm just glad it is being studied more - its a start!...
I took Gabapentin in the beginning and it really did help with the nerve pain and as a added bonus - I felt better mentally too. If I remember correctly, it used to be used as a antidepressant before...
Almost Medfree, thank you so much!...
Almost Medfree, Yeah...I'm definitely considering that. What's sad is that I don't live in a small town. It shouldn't be this difficult to find good treatment....
I called every rheumatologist in my town and none of them treat Fibro.:( I'm sorta being treated by my neurologist but I don't think he's that knowledgeable with it either. I know that he still...
Thank you so much for sharing! I love that. So true....
Hi and welcome! I'm still pretty new and this group is great. I've learned a lot and these people are very supportive!...
Karen, thank you. I've started journaling again and I think that helps me relax. Jenni, I can imagine that would be frustrating. I feel like I'm always running the restroom as it is! My pregnancies...
Also, my neuro explained that this also might be caused from tension in the neck. The tension puts pressure on your occipital nerves in the back of your head which can cause those burning sensations...
Yes, I get burning and shooting pains in my scalp. They only last a few (or less) seconds but - ouch!, it hurts.:(...
Thank you for posting this and I agree with it 100%. I also think that is how my fibro was "born" so to speak. I have been reading a lot of books on the connection between mind and body and it makes...
I'm not on any medications. Sounds like it's just me dealing with this. Hopefully I will have some answers soon....
Hi everyone! Hope everyone is having a good Summer so far! I know the vitamin D has definitely helped me feel a bit better.:) So, this is an awkward question and please delete if not allowed - but...
I've been through the same thing with doctors. So many doctors just look at the test results and treat you like it's all in your head. It's hard to find a good one that still cares about their...
I definitely get into cycles where my anxiety gets pretty bad. I'm pretty good now with being able to calm myself down so that it doesn't turn into a full blown panic attack. My anxiety had been...
Yes, I started getting the electric shock and pin prick feelings a few months after my symptoms initially started. I still get them every now and then. Sometimes it just feels like my entire body's...
I never had any stomach issues until after I got Fibro. About a year after is started - I developed gastritis. I'm thinking probably from stress of having Fibro that first year. It has improved so my...
I get scalp pain too....but mine is nerve pain. I get burning sensations that travel around my scalp. The good thing is that it doesn't last long. I might feel it burning for a few seconds at a time...
Hello! Welcome! I'm not on a ton because of my busy work schedule and having 3 kids/husband but I try to check in as much as I can because I love all the support here!...
I'm going through the same thing! I thought is was one of my molars, went to the dentist and he did a bunch of tests, X-rays, ect... Not my tooth! He asked me..."have you been stressed out lately?"...
I get nerve pain occasionally in my toes and it's usually at night when I'm trying to sleep....
Costochondritis was my first fibro symptom. It took forever to heal! I still get flare-ups every now and then but not very often....
Aside from pain that moves around all over - my Fibro effects my nerves more then anything else. I get occassional tingling and burning nerve pain in my lower legs/feet and sometimes my scalp. I also...
Love this idea! And, I've never seen a blue bird either! Hope I get to see one some day!:) For me - Work has been picking up which is GOOD! I'm a full-time freelance make-up artist and I'm getting...
Hello there! You sound a lot like me. I'm 37 and have had fibro for almost 2 years now. Most of my Fibro symptoms are neurological. I DO have pain but mostly neurological symptoms more than anything...
Myself, Yes...I'm definitely an overthinker too! That certainly makes sense and I think it IS hard when we have this condition that still doesn't have a lot of answers. I'm definitely an "answer"...
Julie, that's a good point and I agree. I really hope that they continue to dig deep to find what the cause of this is and hopefully even a cure. It's very difficult to have a syndrome that many...
Myself, I looked up magical thinking and I guess I don't quite understand how it has to do with my post. Clarification please?:)...
Thank you so much everyone for your replies! This board is really great and SO helpful. It's nice to know that I am not alone.:) Myself, that's interesting. I'm going to look more into this "magical...
Thanks, Karen. I think I get like this when I feel overwhelmed you know? We just moved into a new home and my grandma passed away last week. I saw my dad for the first time in years so....yeah....my...
Does anyone else struggle with this? I find myself obsessing about looking for answers. Some days I'm fine and I accept my diagnosis. Other days I don't understand how I went from living a completely...
Hello! Welcome! Well, how frusterating. I wonder why your rheumy didn't think it was fibro? I can relate as far as missing the "old" me goes - but it IS manageable! I really hope you are able to get...
I'll check that out! Thanks Purple lynx!...
That's a really good idea, Jen. I think I will take it slower next time with more breaks....
Well, I went for a walk tonight because it was absolutely gorgeous out today and when I got back home I started to flair up. I got very tired and felt a little sick. :( Ughhh this sucks! I just want...
Occasionally I get random burning sensations. Usually somewhere on my legs or toes. And, it's usually a small area that will burn. It's just my nerves going haywire since I developed Fibro.:( The...
Jenni, That is very helpful! I'm going to look into that because I get pain there all the time! I've never heard of that but it definitely makes sense....
Yes! This just happened to me last night...totally started to panic! But, I can breathe just fine. I also get weird diaphram hiccups sometimes too..it kind of feels like an involuntary breath. But...
Pain in arms, legs, neck, chest, shoulders, jaw, and head. The pain waxes and wanes through-out the day. And, the pain moves around. All tests came back normal. MRI's, ultrasounds, and a lot of blood...
Thank you everyone! I think I'm going to try and start a gentle workout regiment right after Easter and see how it goes....
Yes, I sometimes wonder about that as well. I've been tested twice - both times negative. Because I have health anxiety I have to try and let this rest or it will drive me crazy with fear. I'm really...
So, I've had Fibro for almost two years and have not worked out aside from swimming and yoga. Is getting back into shape pretty much out of the question? Summer is right around the corner and I'm so...
Typically I try to keep moving. I usually clean, organize, bake, cook, surf the web, ect... Anything to get me to not focus on my symptoms during the flair up. Hot baths also help as well as massages...
I get migraines too so I feel her pain. Im so sorry for her and you! Migraines and flares are both awful!:( Praying that relief comes soon for both of you and that you are able to get answers soon.:(...
I have also read that tinnitus is very common in Fibro because as we know - fibro effects the nerves and we have auditory nerves in our ears. I guess I'll find out if it's the fluid or not after I...
Loring, I'm not sure. She's knows that I have Fibro. I told her my symptoms and she checked both ears and my left has fluid in it and that's the ear that's bothering me. That's also the ear that I...
I went to the dr's this morning and it turns out that I have fluid in my ear! Yay for having an organic REASON! Lol...
I take magesium every day but thinking I could up my dosage to see if that helps. :/ Joy, no hearing loss...just ringing and plugged or a full feeling that comes and goes....