I've not had it bad for a couple mos and bam, back twice in a day. This type of pain makes me want to do bad things to myself. And man I feel like I've tried everything. Nothing happened that I know...
Haha! Well no. Yes. My mycotoxin levels are very high. The house I grew up in has had the basement flooded a few times, some leaks in the roof in a few places, and when all our bathrooms were redone,...
Does anyone have a building biologist that assesses mold they can recommend in Illinois?...
My lyme doc gave me the BR and AR versions. Ive heard some it's really helped, and some, one or the other made their tummy pains worse. Just a little trepidatious to start it....
Interesting. I'll bring this up to my doc. I'm suspected of having bart and babesia.Also have heavy mold illness....
Someone else told me it may be bartonella. I've been treating for 2.7 years and nothing. I had them b4 treating, off and on. But I thought they were normal. I know the one when falling asleep is...
I know to an extent, falling asleep, this is normal. I was in bed listening to calming noises, getting tired, the a whole body spasm. Which I've had before. During the day sometimes I'll have limb...
I agree. However I'd like to be as smart as possible. I wasted over 500 for a 1st appt with a 2nd opinion Dr in IN Who I never went back to. Bc she said she was about kill kill kill and I'm not....
Ahh. I thought he was not taking new patients. What I liked about Dr W was he knows genetics as well as mitochondrial issues, which I may have....
As far as I know my email Shouid be there. It's enabled to show in settings. What is fdl?...
I found out there are 2 Dr ws. So not sure if we mean the same person. Ugh. God this Dr secrecy and conspiracy sh*t are so annoying when we just wanna get well!...
I was on gabapentin for bone pain b4 nerve pain started. At first seemed to help that, then got odd nerve sensations. But no idea what triggered what, if anything. I'm s ared to start again bc ppl...
Thanks for the replies. Yes was 54 for 90 tabs. Girlie... What was hurting with the ldn?...
I've heard good things....
I'm going to start low at . 5 mg, halving the 1 mg pill. My main complaint is nerve pain and some bone pain. I also have the means to get my med cannabis card. Anyway, I'm nervous. The nerve pain...
Anyone else tried this? Yes I'm On colostrum too--igg 2000. I dunno if it's helping....
I talked to the med place that referred me to the doc that gave me my dx. And he said terpenes are the most important. For me, to most likely get indica w/certain terpenes for my symptoms. And that...
I'll try the quercertin again I suppose. Also the Lion's mane. It was suggested elsewhere that that helps nerve repair. Though I don't know if I need repair. But still... sebreg: I just got approved...
I'm Scared to go on again due to side effects, and having to up the dose bc of tolerance. Plus going off and having the pain come back. Seems many lymies don't suffer from nerve pain that I've seen...
It's mg sorry. I'm On about 8. When I first started feeling nerve pain in 2016 I thought it was due to the 50 mg B6. So I stopped. It went away for a few mos and came back. I've only recently stated...
I was on gabap b4 my dx for bone pain. Sort of helped. I went off when I started getting odd nerve sensations. But I dunno if that was the cause. I dunno of any change. The newest things I started...
I've had nerve issues since 2016 but just today I had 2 intense stabbing/burning pains. It was once every 2 weeks for 4 weeks. I am looking into getting mold testing and will be seeing a...
I agree. I got just pure tribulus, nothing else. Not many brands carry just that. Organic as well....
Girlie---I just heard a fellow lymie say it on FB. I have no idea where she got her info. I thought it was a joke but I think the post was serious....
I do take zinc piccolinate. And mag glycinate. I had been on lithium orotate for a long while but was taken off. What are you saying that lyme actually creates? And a friend posted recently that Dr...
I was actually dx'ed with low Testosterone. My LL put me on Tribulis. I have not started it yet however. I have gained 15 lbs over 6 mos w/no change in diet or exercise. Most of my hormones were...
So not many lymies are low in carnitine? Or does it mean I don't have bacterial infections as well? I am actually taking Phosphatidylcholine. Maybe I should see what my choline levels are. I have...
Been treating since about May 2016. Seems not well known about, which is a shame. From reading up on it, it causes a lot of disabilities and illnesses....
My Lyme doc thinks I may have mitochondrial issues b/c of this. She wants me to see a mitochondrial specialist, and there are very few of them. I'd have to go out of state. I'm on about 400 mg of...
Thanks Goshawk Yes true. I just dont know if that's what this is. I also don't know if I've really killed any of my infections yet. If you do herx, and back off, won't you herx again once you up the...
My Lyme doc recommended not to...
I started samento at one drop every other day, for a week, then every day. Then the following happened: -Sharp pricks feeling right foot, 2nd to last toe, when doing Epsom bath. I had gotten rid of...
Any other thoughts on dose?...
I dont think it's necessarily damage, perhaps inflamed, aggravated. Myelin being 'eaten'. My lyme doc says actual damage can only be healed via stem cell. I dunno if I believe that....
Wow thank you. All. I'm going to look up the things/ppl you mentioned. I do happen to be christian too. My ND (not my lyme doc) says that in their training, there is one guy, I dont know his title,...
Well yes. But I'm looking for what the cause is. Def seems nerves yes. But I dunno why I have it....
Well, thing is it's usually 3-4 am after waiting an hour after taking everything. so I cannot wait really longer than that....
I have read that. My lyme doc didnt mention it. I did have my eyes tested not long ago however....
I've heard recently from my ND and a lady who has just done a lot of research, that the body can heal itself and keeping positive can help your body heal. And that there are blocks in our minds, of...
My lyme doc is putting me on this, 200 mg 2x/day for my recent bone pain and joint pain. Dunno if I have babesia however. I saw in another forum a few ppl cannot even tolerate 100 mg/day at first....
My caps are 560 each. So I take over 1000 mg an hour after all my food and supps....
Well I assume that too. But what's causing it?...
Is 2 caps of act. charcoal enough? I've been doing that for about 2 years....
So can bart cause sialadenitis? Which seems to be inflammation of the salivary gland....
That's my guess too. It's random and sometimes takes days to stop....
Just pushing w/the pad of my finger on the tip of my pinkie. Is this due to bart? It just happened randomly. In the past, Ive had areas where it felt like there was a splinter....
I saw my pcp...and she thought I have sialadenitis (salivary gland inflammation and stones). Which I guess i can see. But she said it's caused by not enough hydration (which I don't think is me)....
I'll be starting it soon....
I had upped my houttyinia by one drop for 3 days, stopped when I got more nerve symptoms. And I went back down around 7/11. Nothing else has changed....
Not tried lymph massage in the past b/c I didnt think I had any issues there. And it hurts to touch this part of my jaw, so dunno how they'd massage it. I've been on the houttyina since March I think...