Hi marklipton I will be starting treatment with medical cannabis soon. I don't know what it will do for me but it has recorded results in helping greatly. I'm hopeful....
I'm actually going through withdrawal from Cymbalta now. I was on 90mg for about 4 years then tapered to 60MG. I had ridiculous hot flashes from the drug and it was not helping enough with the pain...
Thanks for that info. I checked on the Revised McDonald Criteria. I already tested positive for Hashimoto Disease and Pernicious Anemia. I'm stable for both now using meds. I meet the criteria from...
Hi Yes I would still like to know. My GP said it is likely the early stages of MS. I don't know what he means by early stages. I'm in Canada do I have no idea when I'll see a neurologist. The GP did...
Hi... I'm new here. I just got my MRI result. 4 lesions on my brain. For several years I have been diagnosed with fibromyalgia. Now it appears that it's not fibro and likely is MS. I'm waiting on...
Hi again.... so the MRI results showed 4 lesions on my brain apparently in the area typical for for MS. Brain lesions along with my other symptoms suggest MS. I've been referred to a nuerologist now....
Thanks Sherrine. I am getting checked. I just had an MRI a couple of says ago. They are looking to see if I have MS. I've also reduced my dosage of Lyrica from 900mg per day to 300 MG per day. That...
Thanks for the responses. I understand that moving to a new country could be a cruel thing to do to my husband. I told him this morning that we won't do that. I really want to but if he's unhappy...
I have been struggling for a couple of years with the continuous flare ups I get during winter months. I live in Canada so winter is a LONG time. There are about 9 months of the year that are too...
They diagnosed the chronic fatigue before the fibro but only a matter of days apart. I had swollen glands and the back of my throat was bright red. It hurt too. That's a telltale sign of chronic...
Hmmmm. .. I don't like how the article frames how isolation happens. Personally, I didn't build a wall because I thought socializing would hurt me. Socializing DOES hurt me. I wish very much that I...
The fatigue has ruined my life. It's paralyzing sometimes and just plain sh**ty the rest of the time. Even if I could push past the pain the fatigue is always there waiting to steal every bit of my...
You are a star couchtater! I couldn't have done what you did and still be upright. Your family are lucky to hAve you....
Hi Joy. My sympathy for your loss. I agreen with Sherrine in that you are being piled on. I sure feel for you. I got vitiligo too, after so much stress from the other illnesses. Like you I'm very...
You should look up the legal side of Duty To Accommodate for employers. I'm not sure if it's the same for you; I'm in Canada. However, if it is then your employer is legally bound to accommodate...
There is a lengthy and interesting thread about where is the best place to live for fibro. It would be great to hear from people who actually moved and how things worked out. My hubby has agreed to...
Thanks for the feedback everyone. Sherrine is correct that I have serious cabin fever. I will focus on keeping occupied and positive. As for the move, I'll keep you posted. Perhaps we will start that...
Thank you for the input. You all gave good suggestions. I should have mentioned that my husband and I share 1 car. I don't usually have it during the day and driving isn't easy for me anymore. Lack...
I work part time from home but can't work full time anymore. I've been working from home for 4 years and lately I feel extremely restless and understimulated. It's not that I don't like my house but...
Hi Sherrine, Wonderful advice. I really appreciate it. Sometimes the toughest thing is feeling alone in this illness. It helps tremendously to have this forum. I think your advice about just...
Before I got sick I remember seeing or hearing about stories where a person had an accident and was suddenly disabled. The person had a very tough time accepting the new condition and massive...
I'm sorry to hear that the fog is getting worse for you. I experience the same thing. A few months ago someone asked which neighborhood I live in and I couldn't remember. Blank. Completely blank....
Hi Sherrine I was diagnosed with Pernicious Anemia prior to becoming vegetarian. I still do eat dairy and eggs. Pernicious Anemia is when the body no longer produces enough Intrinsic Factor (IF)...
I haven't noticed any health benefits from being pescatarian. I stopped eating meat (aside from fish) because I didn't want to eat animals anymore. I don't think diet affects my fibro either...
Hi Grammy G. I've been pescatarian since April of last year. I have an autoimmune disease called Pernicious Anemia. It means that my body doesn't absorb B12 and I am deficient in that. I get a shot...
Isolation is the black hole of this disease. I think we all go through it. I have those feelings on and off on a weekly basis. Friendships are difficult to maintain because I have to cancel plans so...
Hi Tiger Tales. Thanks for posting that link. I have been a pescatarian for almost a year. I would go fully vegetarian and maybe vegan but my doctor said that my health condition won't tolerate it....
So today I came across this clinical study that was published in 2014, Fibromyalgia and non-celiac gluten sensitivity: a description with remission of fibromyalgia...
Hi Thanks for the advice. I will talk to my doc. I haven't tried anything else. I take a combination of things at the moment for various problems on top of fibro - just a collection of autoimmune...
I was a size 6 before I started taking Lyrica. I didn't think I was so vain but now I'm a size 14 and it's hard to accept. I don't recognize myself and feel super self conscious. I'm only 5'5" so the...
OMG i need a little vent. It is day 2 of no sunlight where I live. Seriously, no sun. The sky is completely overcast and dark as though it is the end of the day. Yesterday i had the start to a...
I use Dr. Ho's device. It works really well to alleviate pain for me. It doesn't get rid of pain altogether. .. like everything else.... but it helps....
Massage Chair Electronic pulse device... works really well. Not sure if I'm allowed to post the name here. Hubby massages... he can get my neck pain and headaches soothed. Hot baths... jet tub gives...
I need to sleep in a cool temperature. I think this is mostly due to my meds. I get hot flashes and night sweats. I sleep in our basement bedroom which is always the perfect temp for me. My husband...
My boss was the same way. I was really disappointed because I thought that I would be treated better. I gave a lot to the job and worked very hard. In the end it didn't matter to the boss. He just...
Loring, do you mind sharing how much weight you gained on Lyrica? I have gained 45 - 50 lbs. I'm on 450 mg per day. I'd like to go off of Lyrica but really don't know.of another drug that will help...
Hi Louise. Please let me know how it goes for you. What country are you in? I'm in Canada so wondering if you're from here how long you had to wait to get the procedure done? Best wishes tomorrow! I...
On the national news here in Canada yesterday was a story about Spinal Cord Stimulator surgery and its efeffect for relieving pain. The neurosurgeon from Toronto said this is a treatment not widely...
If you have pain from your buttocks down to your knee I wonder if your sciatic nerve is being aggravated. I've have sciatica as a result of a fibro flare and it's painful! It may not show up on an...
I agree with AnnaBanana about getting a new doc immediately. Question: How the heck is anyone supposed to lose weight with this illness? My pain is so bad that I'm exercise intolerant. I weighed...
I often have pain during the night while I'm sleeping. The pain will become part of whatever I'm dreaming. It's so weird! Last night I dreamed I was somewhere and had to walk to get somewhere else...
You guys are so great! What amazing support! I did book the time today. I found a lovely condo in California and even have a view of the ocean. The area is very walkable so I can go out every day....
If you needed to be away from harsh winter conditions and spend time in a sunnier climate in order to manage your pain, would you do it if your spouse couldn't go with you? This is what we're...
I have weak and painful legs and hips. My understanding is that is typical for fibro. The backs of my legs and behind my knees are the most frequent pain areas. I bought a second hand massage chair...
About 6 weeks ago my Lyrica dosage was increased from 300 mg per day to 450 mg per day. Suddenly 2 weeks ago my horrifying back pain all but disappeared. Seriously. I've had this pain for over a year...
I get night sweats too. For me it's from taking Cymbalta. Side affect. Sometimes I wake up and change my pajamas because they're soaked. I recently started sleepkng in our guest room in the basement....
Has anyone ever tried sleep meds? I've been diagnosed with both insomnia and periodic limb movement disorder (my muscles twitch strongly and it wakes me up). I take a sleep aid that is prescribed....
Today has been a painful one for me. We had a big weather change and I woke up feeling it. I always know it will be a bad day when I wake up like that. I wish we could move to a warmer climate. I...
I live in Calgary, Canada. The constantly.and severely shifting barometric pressure and cold weather makes winters brutal for me. I get very painful flare ups with the barometric shifts. My doc says...