There are many online support groups for getting off these types of drugs. The change the brain so that it can take a long time to normalize and we often think it is our old stuff coming back so w...
I took it and it stopped working - tapered off over 2 months and then went into total hell withdrawl that lasted 9 months - never again...
Part of understanding any health condition is to classify for proper treatment. Fibro is a functional disorder as there is nothing most doctors know how to test for in spite of all the miserable...
I have had a bad case of the flu for 5 weeks now and it prevents me from doing my fibro recovery routine. Anyone else had this flu long term Thanks Andre...
Probably one of the more frequent questions asked. The truth is if you want drugs for symptom relief any of them who is loose with a prescription pad. Fibro is the sympathetic branch of the nervous...
I took it for 6 months and gained 35 pounds - when my insurance ran out and I stopped it the withdrawals were insane for 5 months. I would say it helped about 25%...
I want to read posts but when they are just one long paragraph my fibro brain wants to scream. Yes, please use paragraphs. It's so easy to get lost when it is one long paragraph. I put two spaces...
Look up pelvic floor muscle dysfucntion...
This has been known for over a decade but researchers at Colorado Med University have shown that opiates and synthetic opiates absolutely make pain worse over time You can research it here...
I live in the same town as this doctor and I have seen her. Her "fibro" was from over work, bad habits and eating crap - once she cleaned up her life she recovered. What she does have right is that...
I often hear the myth repeated that “we don’t know what causes fibromyalgia.” Recent physician surveys reveal that most doctors still don’t know how to help their fibromyalgia patients—in spite of...
I have homes in Oregon and Arizona and the pain is no different - the Arizona sun is more mentally uplifting until it get to 120degrees...
Before fibro my whole life was using my body - I was an ultra athlete doing adventure sports - running - climbing - paddling - skiing you name it I used all my free time to be outdoors in aggressive...
Have to remember this class of drugs were designed to teat seizures and as such to globally shut down all brain transmissions There was not a huge market for seizure drugs so they got it approved for...
Many ( most) of the medications used to treat fibro dry out the mouth - combine this with the fact that we tend to mouth breathe when in pain and we often have chronic dry mouth. Bacteria and fungus...
You can tell by my gender that menopause is not an issue for me....however my fibro pain seems to be increasing as my testosterone drops - certainly the stiffness is. For women and less so for men...
I don't know about fibro fog but my ability to remember facts, names and other info is more than frustrating. My neighbor came over this morning - a man who I have lived next to for 25 years and I...
I still have fibro - the diagnosis was a inoperable brain tumor causing vertigo. The correct diagnosis was I had an inner ear nodule pressing on a nerve - 30 minute office operation and it was gone -...
Want to know if your doctor knows how to treat fibro...ask him if he has Heart Rate Variability test equipment in his office...99% chance he does not. Once it was concluded that fibro and CFS is...
I live close to Portland Oregon one of the foremost areas in researching and treating fibro. Oregon Health Sciences Medical School has the world respected Dr. Robert Bennett he was the President of...
A form of Paresthesia. Fibro is a central nervous sensitization and it can express itself in more than one hundred symptoms. Becoming sensitized to touch is a common form. I had it so bad coming off...
If someone says "Fibro is all in your head" they are being factual. It is a central nervous system issue and the CNS is in our heads. Now if they are intimating it is a made up condition that is not...
It has been pretty well concluded that fibro is caused by the central nervous system that is part of the stress activation system stuck. There are many psychological, behavioral and habitual issues...
I have stated this previously - anything you buy in a package or bottle are not vitamins. They are products made through chemistry that are a chemists best guess of what a vitamin looks like. At this...
If the initial side effects are well tolerated these are two areas to be cautious of: Patients who have discontinued gabapentin have reported symptoms of anxiety, diaphoresis, irritability,...
I have the pain and the fibro fog and most of other nasty fibro symptoms but one i don't see talked about is muscle stiffness...and not just in the morning. I am so stiff I can hardly walk down a...
Lets keep this simple - it is called psychological dermatological condition. I have had it and a great example is my wife. She is extremely strong and emotionally grounded. Her work was only 6 blocks...
One possibility is the amount of concern you have for the new condition- one thing that helps keep fibro alive is if we are concerned, worried or focused on the symptoms and condition. This keeps the...
One of our local group gained over 80 pounds in 7 months - switched to neurontin and still gained I had not seen her in months as we winter in Arizona - she gave me a hug and wondered who the heck...
Dr. Oz on today's show said that brain fog is caused by cortisol so I did a Pubmed search and sure enough they found fibro people had high levels...
I did 9 years for a Phd in medical psychology and graduated magna cum laude - now I am not sure what I had for breakfast. I have been athletic all my life - no problem doing a marathon or lifting at...
I am confused - Osteomalacia and fibro share almost no symptoms - if you have porous bones why would someone suggest fibro ???...
Almost every person in the USA over the age of 30 has EBV titers...and many younger - the test is meaningless...
Basic research can take a long time to filter down to organizations like the Mayo and American College of Rheumatology and much longer to practicing clinicians....
What the research has shown is small amounts of stress reaction over long periods, especially in the years zero to 25 are enough to reset the nervous system This is especially critical in childhood...
In the past five years all the major research on fibro has concluded it is coming from a stuck CNS arousal system being stuck in the on position Here is one more...
What is more distressing is when the doctors use physical appearance to dismiss your suffering....
Another reminder - anything you get off a shelf or in a bottle is not a vitamin. They are chemical analogs that are the best guess by a chemist of what a vitamin looks like. Food based vitamins are...
If you chose to be a pedantic vegetarian you probably wont be taking many medications or injections. Most medications in both pill and capsule forms use lactose as a filler derived from cows...
I had severe fibro many years ago for about 4 years - then fully recovered. I was doing 100 mile bike rides and hiking all day - lifting weights. Then 3 or 4 years ago I was given a terminal medical...
If you are over 40 years old almost every person in the USA has EBV titers - next wrong conclusion...
The truth about anxiety is that you have a sensation - then you make up a story about what you "Think" the sensation means....usually a scary story Then your story causes the nervous system to...
I know many people with fibro are drug and chemical sensitive. There are two main reasons for that. Number one is that stress makes the blood brain barrier more permeable so that it allows in...
I went to the University of Oregon Health Sciences Fibro Research facility in 2010 and had muscle biopsies done in 5 locations - I was one of their lab rats. Large needle was no fun. Tests came back...
The good news is that opiate like drugs do not have the months to years potential for withdrawal like tranquilizers, antidepressants, hypnotics like Ambien and neuro drugs like gabapentin. The bad...
Since traditional medicine can only offer chemicals that don't cure I know many people use alternative techniques like: meditation - Chi Gong - Stretching - diet - self hypnosis etc. What are you...
This information has been available for over 10 years – this is further evidence that how you are raised sets to stage for psychiatric and other health issues vulnerability....
If you go to the web site: anxietycentre.com and read the list of anxiety symptoms these you mention are all included. I dislike the term anxiety disorder - sounds too neurotic. A more realistic name...
Reading some of the latest research on fibro is the connection to low testosterone in both males and females. Female receptors are much more sensitive to tt so they need far less - Google the...
My basic is fruit - yogurt - kefir - nuts and seeds of choice - coconut oil - wheat bran - flax seeds and honey if you are not diabetic or hypoglycemic You can then work in tiny amounts of vegetables...