I agree Barb about the degrees. If and when I have tried ignoring it, it only gets worse. Thank you Both for responding. I try what I can to dig and research but with my condition, it takes alot out...
Hi everyone, has anybody tried the guaifenesin protocol for fibro ? Has anyone read http://www.fibromyalgiatreatment. I am curious about your experiences or opinions about it. Thanks....
Thanks for sharing Sherrine , I will have to try the curamin....
I buy the turmeric powder and make a turmeric tea. It helps ease pain and it makes me a little relaxed, drowsy. I only drink when flared up not everyday. I thought that it would be a more mild use to...
Hi , I wear the tommie copper compression socks. They help alot with night so I don't wake up earlier with achy feet and ankles. I do wear them during the day too. Just depends on the pain that day....
Hi Grace, yes I have . My pain actually started with my first pregnancy. My understanding is that fibro is so different from person to person. My pain has progressed over the years. So when I was...
Hello, I haven't been on here for awhile now. I know what it's like to have fibromyalgia/chronic nerve pain and having babies . My pain started with my first pregnancy. After emergency c-section, the...
Yes, I do as far as hormones. I get the moodiness, fatigue and pain two weeks before my period. That has increased over the years because it started with a few days before, then a week, and now it's...
Sommertime, I'm so sorry you are going through this and I pray you will have some relief soon. when I was 30 my child was born and since I have had chronic debilating nerve pain in my lower body....
The doctors don't understand what's wrong, that's discouraging. I feel misjudged by friends and family. But I have a word of encouragement and I wanted to share with you. 1 Samuel 16:7 But the Lord...
Yes most definitely! I had cramps before fibro but now I don't think I even feel cramps anymore just intense nerve pain. For awhile it started a week before my period now I can count on it two weeks...
I recently started taking turmeric but I do not take Savella . I take Gabapentin and it seems to work fine so far with the turmeric ....
If it's muscle pain vs nerve pain , a foam roller may help. I've used a foam roller for tight muscles from my SI joint pain. Tailbone, hips, hip flexors, front of thighs. If its nerve pain deep in...
Yeah I also felt more nerve pain in my feet and ankles when I taking lyrica. I know that's a different med than opiates. But I just wanted to throw that out there....
Hi, I just wanted to add, yes I agree. Sometimes exercise makes it worse. A little over a year year ago , I was exercising everyday for Anouilh a month , Pilates, and went into a major flareup. I...
Hello, I am wondering how you were diagnosed and what type of doctor treats this. I was diagnosed with fibromyalgia over 6 years ago but I would like to look further . My chronic nerve pain started...
Hello, Has anyone been diagnosed with arachnoiditis? I have been diagnosed with fibromyalgia but I am identifying with symptoms of arachnoiditis. My pain is nerve pain on the lower body where the...
Hello, I'm having a bad flareup now . I'm sure not all of you have the same issue but I want to ask if Any of you do or have ever heard of this . I feel like I'm having one of those light bulb...
I have what I call (sizzling pain) nerve pain. Lyrica did not help me but Gabapentin does . Maybe you should ask your doctor . I read here the lyrica helps some people while, Gabapentin helps others...
Hi Loring, it's nice to hear from you again, but I'm sorry you've been going through hard times . I hope you get feeling better soon....
I take amitriptyline for sleep and Gabapentin for nerve pain. I know the vicious cycle of pain, no sleep, more pain, less sleep. Have you tried chamomile tea or essential oils like lavender ? They...
Hello, I want to tell you that you are not alone. I was diagnosed with fibro 4 months after the birth of my first child. I had a C- section and seemed to be healing fine but I was experiencing...
Hello, I don't get tingling in feet while walking but I do get a lot of nerve pain in my feet and ankles. That is one of the most painful areas of my fibro. Mostly on the top of my feet but not...
Hello, had anyone tried vitex supplement? If so how did it affect your thyriod?...
I sleep on my side and before I would toss from side to side from hip pain . Now I take amitriptyline at night and Gabapentin . It is a deep nerve pain close to the bone and socket....
Hi, I could be way off here but I thought I would share anyways. When I was first diagnosed with hypothyroidism and put on levothyroxine , I had vibration like , skin sensations all over my body...
Hi everyone , I just wanted to share a recent discovery for me that has been helping my nerve pain. Helichrysum oil . It's an essential oil that comes from a flower in the Mediterranean. Anyways, at...
Thank you Sherrine. I'll look at those...
Hi everyone. Has anyone tried using essential oils for fibro symptoms? If yes, which ones and what for?...
Hello and yes, I call mine "sizzling" pain. When it hits hard it's like a constant electric shock and I'm paralyzed. I started taking Gabapentin last summer and it works for the sizzle pain. I...
Hello, lyrica didn't work for my pain but Gabapentin does. So my opinion is that you try lyrica. your body may react better with the lyrica. I do want to mention that Gabapentin does not take all the...
Oh, I forgot to mention that I take amitriptyline at night for sleep....
Hello, I have hip pain too. And I know it can be debilitating. I've been diagnosed with fibromyalgia and SI joint dysfunction. I have been bedridden many times due to the hip, tailbone and pelvic...
Hi, I believe I have a battlefield with hormones and fibro . I've always seen a connection between the too . My fibro symptoms intensify 2 weeks before my cycle(ovulating?). I'm 36 and have asked my...
Hi everyone. I want to say thank you for your prayers and support during my sadness. I am doing alot better ! Also, I got a few devotional books and started reading one called "the God of all...
Thank you, Luvzminis...
Thank you Chuzzle and Sherrine. I definitely get more emotional with PMS too. I believe The Lord is allowing this to happen for a reason . I hold onto Romans 8:28, his word ....
Sometimes I feel so isolated with this condition. I've been carrying on managing symptoms, taking some advice from people on this forum . Not letting IT consume me. But there are times when it shows...
Thanks Rockon. I feel like I am alone on this one. I wore my SI belt yesterday and it helped some. I wasn't aware of the other forum , so I'll check it out . It's tempting to think of an injection...
Physical therapy seemed to make the pain worse not during but later that day, I would have flareups and increased pain. I could do the stretches fine without pain and didnt know that I stretched to...
Hi Vicki , my diagnosis came from othropedic, physical therapist, and chiropractor . I did buy a SI belt recently and it helps with walking , mopping. My joints are lax so I would be hypermobility...
Hello, I normally post on the fibro forum . I would like to know if anybody has SIJ dysfunction along with fibro. And what type of treatment are you using. My pain can be debilitating, can't stand,...
Hello, does anyone else have fibro along with SI joint dysfunction . This pain can be debilitating. I opted out of the injections because of concern with fibro. Has anybody had the SI joint...
Well, I have SI joint dysfunction along with fibro. Both issues occurred during the same time when I was pregnant. Maybe the SIJD did cause the fibro. I opted out for the injections. Sometimes the...
Apple cider vinegar Has anybody tried regularly consuming this for fibro symptoms? From what I've read there is not alot of research done. But I read that it can help with weight loss, so I gave it a...
Hello, I also use amitriptyline (elavil) for sleep. I first started with a 10 mg cut in half and now I have a 25 mg cut in half. It works good for during flare ups, so I can sleep through the pain....
Oh, also my new addition is the sjoint belt/brace. I bought on amazon. Because I have alot of hip, tailbone, pelvic pain. It really helps when I am doing things like mopping, exercising ,etc. it...
Hi, as far as meds, I take 200 mg of Gabapentin every night for nerve pain. I also take oxycodone during the day for deep aches. With flare ups I've been taking Gabapentin during the day as well. I...
http://nationalpainreport.com/the-health-care-industry-finally-recognizes-fibromyalgia-8827637.html I was reading this and thought I would share....
Thanks everybody. Boy, I feel stupid alot with fibro . I forgot one of my own tools for flareup. I took amitriptyline last night and woke with groggy but that's ok that pain is calmed down. Why can't...