My husband is allergic to almost everything. (Think Bubble wrap needed) He can have eggs, pan fried without lots of oil, scrambled, omelet, quiche, and in baked goods, but boiled eggs make him sick...
Due to legally unavailable for CBD oil in my state, I purchased Cannibis Essential Oil from Edens Garden Made from hemp. (legal in all 50 states) I found it works for me. I rub it with either coconut...
I am also a shallow breather. Can fibro affect our lungs? I seem to always be short of breath. My back has had me more sedentary for a while now but going up 7 steps makes me short of breath....
I go through bouts of eyelid twitching or my eye twitching. I have found for me it is an indication that I need to up my magnesium supplement. Once my magnesium is up, it goes away and stays away...
fibrocushie, not knowing what is available to you in your area what I am suggesting might not work. Epsom Salt baths are good for helping with the tight aching muscles. Taking a supplement of...
I have muscle twitches and take magnesium supplements to keep it in a manageable amount....
I read an article a few years ago and don't have it book marked, but it was about how many fibro people do get a lactic acid build up with exercise and can't release it. If I exercise, I am in a...
Fibro patients also seem to have Interstitial Cystitis. It is another immune thing to win in the lottery of life. :) I have had bladder issues my entire life. It goes in spasms and the infection is...
Has anyone here tried low-dose naltrexone to help with the Fibro? At my dr. visit last week, he suggested that we try starting a low-dose naltrexone RX to see if that will help with the pain control....
I twitch like crazy. I think that most of us have found that taking pretty high doses of magnesium help with the twitches....
I found this to be interesting and encouraging. At least there are studies and maybe help in the future for us!...
I get a pain in my lower right side. I was in the hospital 4 yrs ago with a bleed............spastic colon and they gave me Bentyl for as needed. If i start hurting in that area, I take a pill. With...
I am always terrified when the fog gets bad. My mom did 1 yr and 2 days ago from Alzheimer's. (Her mother and 1 of her sister's died from it too.) My husband has been really bad lately (He has fibro...
Are you a Snowbird or relocating for year round living in FL? The reason I ask, we had a very hard time when my husband was in the ship yards for 6 months and we moved to the Gulf Coast. Once people...
Check and see if there is a way to set it up online for automatic refills. This way the computer should catch it at the pharmacy and help get rid of the lag time. It doesn't always work, but they...
I may be mistaken, but I seem to recall a dr on television saying that the last place that shows deficiency is the blood stream and that it is possible to be low in other areas. (I could be...
It happens to me a lot, but I have apnea. Have you ever had a sleep study done?...
I was on Cymbalta for a few years and just never saw it really helping. My dr. had me slowly decrease over 2 months time before I stopped and I did have a few bad days of being dizzy, but I got off....
If my Bvitamins are up to a good level, I don't get these. I used to get them all the time. Since I take B12 shots, I haven't gotten them in a while....
I have muscle relaxers, but I try my best to never take them. I have pain pills and I put them off until I can't take it anymore. Everything like that causes me to be so drunk and out of control that...
Have you ever tried taking Magnesium to help with the insomnia? (not a cure, but it does help) I have recently discovered putting essential oil on my big toes and it helps. I put 1 drop of lavender...
Thank you. She has a good care team right now. There is just not much that touches her pain. We are trying essential oils because Tramadol 3x a day and the anti depressant were like eating candy. She...
Costochondritis? When I get so inflamed, I hurt with each breath and it burns in my back. I also experience tingles and vibrations............I had MS ruled out, but I seriously wonder if the 2 are...
My daughter has Ehler's Danlos. She is always in pain. She can not work out because it causes so much damage. None of the PT here know how to help her and they actually caused damage. She uses a...
I haven't had a problem with it, but I rub it in very well when I use it....
I have some Voltaren and it works well, but I have an aspirin family allergy so I go without using it often. I will stick with Turmeric Essential OIl for now....
I believe you are referring to my reference of using Turmeric Essential Oil. You can get it at a health food store, online or through a multi level company that prob. sells in your town. (I can't...
That is so frustrating! I am sorry you are in such pain. I have back pain and sleep problems.........I recently tried putting a drop of Turmeric oil on the sciatic area and it helped me. Sunday my...
I hope your flare passes and you get over your infection quickly! Those drinks are not good for anyone to take. I know when I get too much caffeine I feel so lousy the next day. I try never to have...
If you really want to do a yarn craft that doesn't require too much counting, look on Amazon or google for a Knitting loom. (they have all different shapes for different projects. ) About $20 and you...
I take magnesium and it has helped with pain. I also bought slippers that have memory foam in the soles to help with the loss of padding on the bottoms of my feet. I drop things all of the time. I...
Your knee popping out of socket/joint is not fibro. You need a different dr. Possibly and orthopedic dr....
There are some other Fibro facebook pages that you might could ask to participate. (I took your survey, but I think some of your questions are very limited and can be open for many different results....
Thank you <3. We have been so worried about her health that we would do anything we can to help any of our kids to stay independent....
My husband and I are working on training our daughter's dog to become a certified service animal. (He is a shelter rescue. Part Lab/Dane and is 100 pounds now. He is only 16 months old, so he still...
When we got our case approved, it was limited to less than $4K that the lawyer could keep by our state law. That being said, should you become in dire straights with threat of foreclosure and other...
Donna, I have often wondered if we all grouped together and wrote to Project Runway, we could get them to design some outfits for fibromites. If there was a soft, hugging collection, I would buy it!...
A year or so ago, I started telling my dr. that my nose and upper lip will feel numb.............not tingling like it is asleep, but more like when you go out in the cold during winter and come back...
I have had bad costochondritis in the past. I also have a muscle that twists no and it looks like one of my ribs moves out of place. If I get too tired, I get the chest pains and the ribs feel like...
(((sammieeox1))) no hon, you are not crazy. They are professional people that have a 'practice' and most of them are not very good at it yet. Sad, but true. Many of the symptoms that you listed were...
My youngest daughter has been officially diagnosed with Ehler's Danlos. It is very painful and she falls a great deal to her joints dislocating at the slightest movement. We are training a service...
I do not have any words of wisdom. I just wanted to tell you that I heard you. I am sorry that your husband has decided to leave. That has to be scary! I was going to suggest a 'cripple'...
I am sorry that you are having the pain and no answers! That is so frustrating. The twitches my husband and I have are discounted, but they are so tiring and to be asleep and twitching is so...
Try and rest and recoup! I hope your family is ok by now! Are you from Augusta? I was just back home visiting my Mom at the nursing home in Aiken, SC. Those are long hard trips you made. Sitting on...
Document, document, document and make copies of all of your medical records (2 if possible.) I don't know any drs in your area. We are up in Birmingham. Do not skip and accept the Motrin and return...
I looked up the SPN mentioned and found this to be very informative. I hope it helps some of you out. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3086960/...
Some days I don't feel the buzz, but others I feel like other people should be able to hear it because the feeling and the sound is so loud to me....
The verdict should be the same if they told you that you won. ;) I pray that holds true for you!!...
Have you Vets been in the Gulf? What you are mentioning sounds very much like my husband's health issues. We first started out with stomach issues after he came home from the Gulf area in 95. (I...
I did not see this posted anywhere. If it has been discussed, please feel free to delete. I found this interesting..............sad that the test is not covered by insurance, but interesting none the...