Hello Pink Grama and everyone else that could possibly remember me. My husband Jerry was diagnosed with Cerhosis in February 2007. You all were my life for 2 and 1/2 yrs. Jerry received his liver...
Joyce I can relate to what you are going through. I don't even remember how many times this happened to Jerry. I do remember one time that I went 3 nights with no sleep because he was like that. And...
tnspirit I have never heard of that much fluid drained at one time. That is a lot of volume at once. Watch his blood pressure. Don't be surprised if he gets muscle cramps. Hang in there. JoAnn...
tnspirit If you are in Tn my husband has his transplant at Vanderbilt. I know they run a really tight ship but their list is small. When Jerry got his transplant there were 130 people on the list. A...
desi My husbands legs did the same as your husbands. The fluid just weeped from his legs until they slpit. Then we couldn't get them to heal because of the weeping. ONe of his hospital stays I...
Mike I feel for you. My husband went through EVERYTHING you are going through. Look back at some of my old posts. I think at one time they drained 20 liters from him in one week. That caused horrible...
Rainbeau PLEASE e-mail me its on my profile. PLEASE JoAnn...
Amy My husband has his transplant 8/3/09. He is still taking 500 mg Cellcept twice a day. The only problem he is having with the Cellcept is joint pain. Its really hard getting out of a chair...
Connie and PG I can't beleive you said that about the donor because we also thought it may have something to do with the donor ha ha. It was good hearing from you two. I will keep in touch. Hey PG...
Bostonmike We found the liver specialist do not check your blood ammonia as a rule. They just go by how you act. BUT our gastrointerologist would check it frequently. Jerry said he could tell...
Just a reminder about the protein. Its much better if you stick to soy protein because of amonia problems. I would make my husband smoothies with soy protein. That helped a lot. JoAnn...
Hello everyone, I know its been a long time since I have posted. Really don't have a good excuse. I just wanted to let you all know Jerry is doing good. Its been a tough road but well worth it. Its...
Hello All We are still at Vanderbilt. Back problem solved. First of all they diagnosed pneumonia. Whte could elevated. The fluid was on the outside of his lung between the lung and that sack that...
Hello Everyone. Spent 12 hrs yesterday in the ER. I'm here to tell you all after 3 yrs of ER experience we can really see what a huge problem our health system has. Ofcourse I don't think ANY...
Hi all. Its been an rough week. One entire day in the ER (local). The Dr. in the ER talked several time to Vanderbilt and so did I. ABsolutely nothing determined. They sent us home with pain meds and...
JUne Jerry was told my his Dr. a year before his transplant that his liver was functioning at about[b] 10%. I have no idea how they know it. But that just goes to show that you can live quit a while...
Amee I'm with you, They will take good care of her in ICU. You need to rest while she is there so you can help later. If it makes you fell better Jerry pulled everything out including his central...
Connie Jerry's itching has lasted about 2yrs. Vanderbilt has tried everything. When they took him off the Bumex and put him on lasix after about a week it was so much better we were jumping up and...
Penny We just got back from Vanderbilt. They removed the stent they had put in for the bile duct leak. It went well and they said he had healed well. No more leaks. They took Jerry off the Bumex...
Penny You are right I'm getting more comfortable with the red flags. Each time it happens I get a little better. Jerry is actually showing signs of having more energy. I really think if he would not...
Amee I am so excited for you. You are right at this point I was so grateful. I don't think I was all that scared. Expecially while they are in ICU. They take such good care of the patient. about this...
Amee I have not hear of the new drug but I'm curious to learn about it. Jerry is on Prograf and he is having problems with his kidneys. That really concerns me because right after his surgery his...
Fever is gone for now we are headed to the lab to donate blood. He gets labs every Mon and Thurs. Maybe it will show something. I did give him some tylenol last night. He's allowed 2,000 per day. It...
Here we go again. Jerry has been compaining about not feeling good for two days. Said he can't put his finger on it he just doesn't feel good. Tonight started running a low grade fever. I'm sure its...
Penney Well it hadn't even been an hour when I read your last post and Jerry hit his arm on the banister. The skin just peeled back. IT looks horrible. So besides wrapping his legs because the...
Child 4 My husband got his transplant on 8/3. He seemed really good and calm at first then wam they had to put him in restraints. It was the prednsone. He is normally a very calm person so I did get...
Hi Mer To tell the truth I have had 12 hrs of sleep that last two night YEA Ofcourse they were not uninterupted. But I'll still take them. The appt with the orthopedic surgeon went really good....
Connie No, Jerry is not on blood thinners. That is exactly my thinking. I'm just wondering if his blood is still think from the bad liver. Maybe it hasn't had time to thicken up. I'm not a nurse but...
Hello All I'm sorry its been so long but I have been crazy busy. As you all know Jerry got his new liver on 8/3. Was released from the hospital on 8/13 but had to stay in a hotel (because we live 3...
Hello All Well, we got to go home last Fri. So excited because we had only been in the hotel a week. And in the hopital for 10 days. Jerry was doing really good. It felt so good to sleep in our own...
C4 Jerry is doing OK I don't think we are out of the woods yet. His legs started swelling Thurs evening and they haven't stopped. From the knees on down. They are huge today and they hurt to touch....
Child 4 Do you feel like you have witnessed a mircle!! My husband got his new liver on 8/3, We just got home today and I'm exhausted but feel so lucky. We only received two calls prior to the good...
PG That is so great about John. I hope he will get his transplant. I have some good new!!! Vanderbilt let us come home today. We can't wait to sleep in our own bed for the first time in 3 weeks. They...
Mer I don't understand anything about the seizures. Jerry did not have that problem. I can try explain other things to you. If you want just e-mail me. Its just alot to take in but I will try. Just...
Mer All I can tell you that Jerry was on the same dose of Lactalose as your husband yet he still had a lot of amonia problems. So they put him on Neymison! That really helped. I think it is an...
Quick update--For some crazy reason Jerry woke up Sat morning hungry and he hasn't stopped eating since!! Its crazy. He is getting stronger every day. I am trying to do my yoga in the hotel room...
Penny I used to read all your posts over and over when Harvey got his transplant. I was so thankful for the info. Now here I am where you were then. What a miracle! I'm glad to know that others had...
HepCDaughter Yes we are in Nashville. Jerry had his transplant at Vanderbilt. There are several Liver specialists there. If you can get your dad there I would highly recommend it. They are so good....
Oh PG I see that now. I'm so happy you heard from John even though you didn't get to talk to him. Thank you all for you love. I'm knee deep in all kinds of meds, cleaning incision, drain tubes,...
THANK YOU, THANK YOU ALL I have not had a spare minute to write. Had a few horrible days. He was released from the hospital this afternoon. What a journey. All that medicine. I know I can do it...
Hello Everyone. Well, we got the call last Monday at 4:00 AM. Didn't go into surgery until 4:00 PM. Lost a lot of blood due to scar tissue that they were not expecting but he came through it. Was off...
OK Everyone Today is my birthday and you all know what I am wishing for. I started out the day sad because I'm officially no longer young!!!!! Then I had this crazy idea that my daughter was going to...
Hello Everyone I know it has been a long time since I have been on the forum. I remember when I first started ==I think it was 2yrs ago. I wanted to hear from someone that had received a transplant....
Hello Everyone I'm here I'm here. Didn't even realize anyone would miss me. Thank you all for your concern. You guys are the best. I sure could use a John Fix has anyone heard from him. JoAnn...
Sue That story was priceless. That is so awesome you can laugh now. I just wanted to let you know I think about you. Please let us know exactly what happened with Dough when you can. Thanks you and...
Penny Thank you for the explaination. That just makes me sick. My husbands MELD is a 12 and he looks like he is going to die any minute. Don't get me wrong he is still functioning but barely. They...
Hep93 I think I was just trying to read more in to it. I'm so used to living on egg shells. Every little change scares me! More blood work and Dr. appt today. The story of our life. Thanks for the...
M OMG I can not immagine what you are going through. Your mother must be a fighter!!! I can only tell you I think the surgeon is writing a letter to UNOS to get more points added to her MELD. I think...
I was wondering if anyone could shed some light on a new problem Jerry has. He is having several BM's a day with NO lactalose. We had to slow way down on the lactalose because he is going so much....
June I don't know if this is any help but Jerry's Dr. are certain that every time his Creatinine goes up his Amonia also goes up. Just a thought. It was good to hear from you. Seems like it has been...