Hi Starboard....My husband has Hep C and Cirrhosis from a transfusion 42 years ago also. He showed no symptoms until about 5 years ago. Since then he has shown every symptom that is in the books. He...
Ladies, Sometimes I think when this is all over and he's either somewhat healthy or called to heaven my fear is that something will happen to me, and I would have stopped living back in 2005....
Connie, Everyday I come to work and cry and cry. He just doesn't get it, how much pressure this is for me...he says things like "why are you so depressed, your not dying". Or he insists that I take...
/community/emoticons/confused.gif Hello everyone....it's been over a year since I posted. I needed to vent....again. It has been about 2 years of shear HELL for me as a caregiver and wife. I am...
Hi Pink Grandma, I haven't posted in quite a while. My husbands disease is progressing. The symptoms change everyday. His body hair is now falling out, his joints hurt so bad when he does get up it...
Pink Grandma, Thank you for your thoughts. You are right this is not the man I married, and I know it's not him that is doing all this stuff. The one thing keeping me around is the guilt, what if I...
Trish & Connie, Yes, the thought is in the back of my head to leave. But the caring part of me says...where will he go, what will he do. He has no family or friends. (this should have been a huge...
Oh Trish, I took a motorcycle class to get my license and he showed up there, making an ass out of himself and embarrassing the heck out of me. When I was riding with the class he'd sit in the bushes...
Trish, Jeeze what is he doing to himself? I can clearly see why you would feel a HUGE weight lifted off your shoulders! My big problem is he accuses me of wanting to sleep with every man that is out...
Hi Trish, So Sorry to hear of the termoil in your life. You and I have alot in common when it comes to the actions/reactions to our sick patients. I never in a million years thought it would be so...
Hello Burns, My husband went thru that itching for a while. Are you getting regular blood work done. The Dr. perscribed Hydroxyzine HCL for Pruritus (itching). That helps him ALOT!!! Pati...
You know one of the things I read on here is that Liver Disease is very isolating. Family and Friends stop coming around. I think I've figured out why that happens. They don't want to see the person...
Hi, I haven't been posting for a while. My husbad Lee has been in the hospital with a whole gammet of problems. They did a lymph node biopsy thru the liver to get to the lymphs behind it. They did...
Hi Pinkgrandma, I'm so sorry for your loss. Please continue to post as much as you can, you were such a support and the knowledge you have will help so many people! Hugs, Pati...
Hello, My husband has ESLD. He is also very very difficult to deal with. He has made comments to me like why do i keep him prisioner in the house. He is on pain meds (oxy) for 3 compression fractures...
Thank you Connie! I'm feeling rather hopeless lately. /community/emoticons/mad.gif ...
Hi Doug, Good to hear from you. Yes, he has started taking that along with the xifian. Both are supposed to make you go to the bathroom. The latulose he hasn't complained to much about. I'm starting...
Connie, They gave lee prednisone in the very beginning, the HEP specialist said that was the worst thing they could do and took him off right away. He was never a "heavy" drinker, he drank when he...
Hi My husband, Lee, is on the transplant list at the University of Pennsylvania. They have discussed with us accepting a "non-perfect" liver. Has anyone discussed that with your family? They told us...
Hi Doug, No one ever mentioned to us the use of a "non-perfect" liver either. I think they wait until the MELD score gets higher, or the quality of life decreases. Which Lee's has. In Lee's case, yes...
Hello everyone, We had our appt today with the Philadelphia Hospital Transplant Team. They want to lower alot of Lee's meds, they feel they are not helping the confusion he sometimes has. (knew that,...
Hello and welcome. I'm sorry to hear about your mom. My husband has HCV/Chirosis. He is on the liver transplant list. I'm here to tell you that I know exactly what you are talking about when you say...
Doug, I know that all Dr's have different opinnions. Our Dr, is totally against Herbs, tylenol, even vitamens. They say a low animal protein diet is best for Lee. Living in PA, meat is a big part of...
Hello Everyone! Teresa, I'm so glad Mark is doing well, isn't it just amazing the difference and how quickly we notice it. I can't believe he's up and walking in the neighborhood. That is just...
Does anyone know if pain in the joints...knees and feet are part of this? Lee retains alot of fluid in his legs, he does have back problems so i'm just not sure if the pain he has is attributed to...
Thank You Doug, Yes he has lactulose. He just got that perscription and hasn't tried it yet. Lee tried the interferon & pegasys, however, he only lasted 7 weeks on the therapy. He got extremely...
Hi Doug, I would love to hear your perspective. My husband says I don't understand. In some ways I guess I can't. He was always very active and is having a really hard time not being able to do...
Hi Laura, My husband has had paracentesis a couple of times. This is a very simple procedure. The Dr. puts a needle in the side of his abdomen (w. local anesthia) and a tube is attached to the end of...
Trish, Everything you said strikes home...you could be living with me...lol Lee also tried doing his meds, boy the exact same thing...ran out of them before it was time to get refilled. And the...
Oh Ladies, you have no idea what a relief this is...(perhpas you do). Teresa, I'm so glad Mark is doing well. It must be such a load of both of you now that he can heal. Prayers are with you! Lee is...
Hi Thresa, Lee's MELD Score is at a 13. He is actually going for blood work tomorrow so we have it before we go to Philly On the 30th for a check up. Lee's sleeps alot during the day, sometimes, and...
Pink Grandma, I know I should be thankful he's even on the transplant list, however, they keep telling me he's not "sick enough" to get the transplant yet. They take none of the side effects into...
Hello, I'm new to this forum. My husband was told he had hep c in 2003. We've tried interferon/pegasys, but he couldn't continue with the treaments after 7 weeks. Talking to him now is like talking...