Jenna44, I am so sorry you are going through this, not just with your sister being ill, but with the entire family. I can only repeat what others have said: keep a notebook and write down all the...
Confussled, read everything you can and ask the doctors again and again until they answer all your questions. ESLD is different with every person, so the more you learn about the disease the better...
Thank you for your kind words. It's still so new and raw....we thought we had more time; we were so focused on the transplant that we didn't stop to think about problems that might occur beforehand....
I've read many of your messages since my husband was diagnosed with ESLD and want to thank each of you for the help your posts provided. I don't remember who said it, but part of the problem with...