After finally getting thru the coordinator and getting to a dr, the dr says Bk's MELD is at a 10 right now ( I dont see how, they have not been watching what I have been seeing but they are the smart...
I can understand the weight loss fears, my hubby webt from an obese 210 lbs to a skelatal 148 in mere weeks when he was first diagnosed then held stable. When he moved in over here he started...
Hi John When the Dr. put my husband on 500 mg of neomycin 3 x a day I was worrried about him developing a yeast infection. I asked the dr if he could drink the Danactive to help replace the good gut...
thanks for the kind words, shoot if things slow down any more we will be walking backwards lol The truss has done wonders for my husbands mobility but it also forced the hernia south, so he has to...
Calla I am so sorry you are having to go thru this. 1 thing about him going to the hospital, he will be medically managed and cannot drink, keep your fingers crossed that they keep him a few weeks :)...
John, I was reading this post to my husband and asked him if he had ever gone thru that, and he said yes, the same exact thing! Hours and hours, the dr gave him hemmoroid cream to soothe the burning...
This is the email conversation I have had with our coordinator. Most of you already know the circumstances and what I have been going thru. The Coordinator has out and out LIED!! I am furious to say...
Hi John That sucks about the insurance. I would fight the decision as if I were fighting for my life, which you are. I am interested in the Ascites Purge also???? We go weekly to drain Bk of his...
talk about waiting til the last moment............ Finally got a call back from the coordinator, she said we still had some labs and the transplant psyc to see and that is all we needed before...
lol cary, I had bought that stuff in one of those value box things, had the shrimp, beef, chicken, seafood, etc etc, it ended up being expensive but it was just me so I figured what the hey, spent...
Hi Annmae There are alot of shoulders here to lean on when things get tough and some of the most caring people in the world type their advice and words of wisdom on this forum. You could not have...
Joann, I hope you can get it figured out with the hernia, My husbands hernia has never gone in and stayed in. You push it in and as soon as you remove the pressure it pops out. It now pushs his...
Lets see, the weekly trips to Houston to try to get my husband on the transplant list, parking fees, occasional food if they keep him to long, weekly trips to town to have the fluid (ascites)drained...
Now all we have to do is talk with the transplant psychiatrist, if we can ever get the number to set the appointment up. It gets so frustrating, I put a call in 2 weeks ago to the coordinator and...
One place I read about the dialysis said that it had been in use in San Antonio at the Texas Medical Center since 1999! As fast as they put new things out and advertise them, you would think, with...
I have had several people mention this to me the last couple of days, I had never heard of Liver Dialysis but apparently there is such a thing. What I dont understand, if there is something available...
We got him a truss a couple of weeks ago shelly, all the hernia did was drop down his scrotum instead of staying inside like it was supposed to. We did ask his dr here ( internal medicine) about...
Shelly, We can push the hernia back in, but as soon as we take our hands off of it it is right back out. He cant strain while having a bm, it pushs the hernia out and he can actually feel the matter...
John, thank you so much for reminding us that each day that we open our eyes is another beautiful day. We never know how many we will have so we should cherish each day, good or bad. The weather here...
Confussled, I have been reading your posts and following your trial thruout your mothers illness, I am afraid that is what I will be facing with my husband so your posts have been a tremendous help...
Joann, so glad it helped :) Right now we are going thru the itching torture even with all the meds because he cannot eliminate waste, therefore he cannot release toxins, they have no choice but to...
Sorry to leave ya'll hanging, lastnight was a rough one. Bk finally had a bowel movement ( cowpatty) at about 11 lastnight, good thing too, that portion of his intestines that is protruding thru the...
My husband has the inguinial hernia that has descended to his scrotum. Before it started its descent, it would be uncomfortable and hurt if he moved around to much but he would relax and it would...
The hepatologist has his taking 500 mg of Neomyacin 3 times a day to prevent infections as well as to kill off the bacteria that causes the itching and the ammonias increase. The grit is specific,...
Another Update We got his first MELD yesterday, he is at a 20. The transplant dr said he was going to ask for 3 exceptions(?) to the requirement of some classes to speed things up. The exceptions he...
Hi Joann and June I am going thru the same thing with my husband. The intense itching is his bodies way of releasing the toxins, Ask your dr about cholestyramine. The hepatologist in houston put my...
We have a very good hepatologist named Dr. Vierling, he is the one that sent our info to Dr. Goss to get started with the transplant process. We saw him for the first time on March 13, actually that...
When he first got sick and finally went to the ER back in sept last year, the local ER did some bloodwork, gave him some lasix and antibiotics and told him there was nothing more that they could do...
My husband and I have been back together for about 6 weeks or so ( cant really remember, days run together anymore). In all of that time, his dr has not ordered any labs. The dr in houston pulled...
just a thought, when the fluid stopped filling my husbands belly, it went to the sac around his lungs. They have taken as much as 3.8 liters from 1 side. He had alot of shortness of breath and now we...
We spent the last 2 days testing, labs, counselor, coordinator, chest xray etc. We have no answers and dont know if we are any closer to getting on the list. I have no idea what his meld score would...
I have the full line of Mrs. Dash in my pantry, I love the stuff. I think his taste buds are burned up from all the years of the cheap wine, MD 20-20 and Thuderbird. He has always been a meat,potato...
From what you posted, If I understand correctly, Medicaid will not pay for live donor transplant, correct? Why do you insist on a live donor transplant? We just went thru 2 day so f testing to try to...
just came back from St Lukes in houston, the dietician told me to feed my husband as much of whatever he wanted, the higher fat/calorie/protein the better as he is losing weight drastically, 9 lbs in...
Thank you for your words of wisdom. Sometimes I almost feel as tho I am bipolar, with so many ups and downs lol Actually, rereading my daily notes ( journal) I can pinpoint the highs and lows, they...
thanks shelly, yes it does make sense. The local dr stage he was end stage, level 3 but we go to St Lukes Hosp next week for the testing toget on the transplant list so hopefully we will get a MELD...
Just wondering, Does the disease progress in this order or is it possible to have symptoms from different stages that surface and then disappear? The reason I ask, I have seen the asterixis, and...
Thank you so much for listening to me vent and for your advice. Yes we are still married and yes he has always been very controlling, he is even more so now and because I am the sap that I am I...
As a caregiver, I feel my most important duty is to make sure my husband is comfortable, I cater to him and wait on him hand and foot,his every whim. I am exhausted with this disease that is so up...
Hi joann My husband stopped drinking back in sept last year, he has been clean for 6 months but he also went thru rehab and attended the AA classes...
thanks for the info. My husband never did have much edemia and he has been having to have his lungs drained every week for the last 2 months when he first started having his stomach drained, the...
when I first learned of my husbands disease I started looking for insurance and what I found across the board is that preexisting conditions are not covered during the first 2 years the policy is in...
I dont know if this is a symptom of the disease or not. For a while now, since my husband got sick, off and on it would seem like he would have an esophageal spasm when swallowing food, very seldom...
A truss is like a girdle/sanitary pad holder in one, It goes around his waist and up between his legs riding on either side of his thighs. It has removable "Knobs" that are adjustable. Let me tell...
thanks for the welcome and all of the advice. Yesterday after reading posts he was asleep so I ran to walmart and bought all kinds of goodies for a smoothie or shake. I made him a nice steak dinner...
thank you so much for the tips. He takes a myriad of meds. Lactulose- 30 ml 3 times a day, Nexxium- 40 mg 2 xs day, Spironolactone-25 mg 2x day, Neomycin- 500 mg 3x day, Cholestyramine- 1 9gram...
Hi I am new to this site and am learning as much as possible about the disease. My husband has end stage liver disease. We had been seperate for the last year. He was diagnosed back in sept last year...