Wanted to stop in and say I miss you all and hope all is well! Congrats, to you Connie for your new position here on the forum. You have always been very helpful and a wealth of knowledge that has...
Just wanted to update on Dr's. apt. We talked to the Dr. fianlly yesterday about[b] Wil's MRI and all he could say is the Radiologist say's that the lesion on his Liver has grown but, NO CANCER!...
It has been a few weeks sence I have updated on my son Wil. I took him and his new bride to Shand's in Gainesville for his 6 month visit. Wil, had AML Leukemia at 16mths of age after going into...
/community/emoticons/smilewinkgrin.gif First off I want to say so sorry for not posting in such a long time. I truely have missed you all and pray for you daily! I see there are alot of newbies here...
Hello All, Thank you for the prayers and support it is very much needed. Will is doing better, stress has definatley taking it's toll on him and Me as well! I actually think he's also going thru...
/community/emoticons/sad.gif Hello All, Well it has been 1 yr. that We found out Will would be needing a liver transplant! All your prayers and thoughts have been answered as Dr's. said by end of...
I haven't posted in awhile as I have been very busy at work with weddings! Just want everyone to know You are all in our thoughts and prayers! Health wise he looks good and he's finally gaining a...
I have been out of touch for awhile myself, just wanted all to know Will is doing great! He has been doing alot of soul searching the past few months and with him holding stable for now he has made...
[color=orange>Butterflythree, I] Take care and know you are also in my thoughts and prayers! [b][color=#ffa500>Huggs] Toni [img]/community/emoticons/tongue.gif ...
Connie, what you overheard about[b] the living donor Liver Transplants are correct. Wil's dad was wanting to donate a portion of his Liver, in April we were told that it was not an option as...
momyfor2, So sorry you have to go threw this! We are all praying for you and your family! I can tell you God works in mysterious ways! So keep in mind if mom is still in a coma she is sleeping so her...
Thank you so much for the responces. Hope you all have a great fourth of July!!! Toni ...
/community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif I'm still doing the happy dance!!! [img]/community/emoticons/yeah.gif...
Hello Nikim19, Welcome to the forum! Sorry to hear about your mom! You have definatley come to the right place! My son Wil is also in need of a transplant and from what I understand they do have to...
I'm going to write more tomarrow.Goodnight and Thankyou for sharing your story, and i'm sure that's just a tip of the iceburg.Prayers have been sent to All! HUGGS AND SMOOCHES Toni...
I SEE YOUR IN CAROLE, HOW ARE YOU DOING TONIGHT?CAN'T SLEEP EITHER! TONI...
Hey PG and Connie, I just got it as well never know the little things you miss! Good news Wil and Ana have decided to move the wedding date to Feb.09 WHEWWWWWWW! Not sure what got into them but, they...
Hey Carol, DUHHHH! They do check him for that everytime we go! One good thing is we are 4 1/2 hrs. from Shand's so we make one day for testing and next day we get results. In reading his last report...
Hello Carol, I'm on! But, between customers....
What exactley is AFP levels? When you say his tumors grew fast? How fast? and how long did he have them? I am very well aware everyone is different and in Jan. Wil's was found to be Huggs and...
I've done a little research on this lactulose, for some reason they give it to Wil to take 4hrs. before his testing I'm sure it is to clean his system. But, he does not have to take it regularly....
Hope you both are doing well! I am up late as my husband is on an airplane headed for Dallas, Tx. won't get in til after midnight so can't sleep until I know he's landed safely. Anyway June we were...
Good to here from you! We have missed you bunches! Here in my world it has been a rollercoaster ride of ups and downs this year as well! I know what you are dealing with. Just know you have been in...
I do understand as I get confused and frustrated and I am not the sick one! It is really hard as a mother not to be able to help your children when it comes to their health. Yes, I am almost...
I have been trying to catch up lately as I have been really slow these days at work. No drama between the love birds this week Thank God! I read you have talked with Shelly, Please let her know she...
My reason for asking your age is this. My son Wil is 22yrs.old and from what I understand is the reason he contracted HEP B was from his chemo and/or bloodtransfusions in 1987 as he had AML...
[color=purple>Pennielane, it, the symptoms can be related to many different illnesses STD, MONO, LEUKEMIA just a few. My suggestion again if your not satiafied with the results get 2nd opinion go to...
Hi Pennielane, Welcome to healingwell! I am only a caregiver not a patient, seems to me that if Dr's. have ruled out Hep/HIV you are a lucky person as this is not the diseases of choice to contract....
I can only say from a caregivers views that you will always worry even about[b] the little things but, it will do you no good as it can make you sicker! [color=#800080>As] My son Wil is 22 yrs. old...
Just read your post and boy do you have your handsful! I'm soory to hear Terry is not feeling well. I can't emagine having to take care of two sick people, living in the same household! I know how...
Huggs and smooches Toni...
I'm doing the HAPPY DANCE!!! [img]/community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif I am Not going to be a grandma Yet! I think miss needed a little attention...
Thank you so much for your responces. Of course I've been very busy this weekend stressing out and trying to read as much info as I can to help educate these two Adult Children. I talked to the kids...
Hello All, Pink Grandma, Shelly, Connie??? Anyone, Will has been sick to his stomache alot lately and very tired . Well, you know I wrote a few weeks back that he is now engaged to be married and set...
Welcome to the site! I have a 22yr.old son that was diagnoised with chronic Hep B esld, in 8/2002. He contracted it from a bloodtransfusion in 1997 16 months old he had AML leukemia.10 yrs. in...
Toni ...
Hey Shelly Thank You, Honesty is always the best policy even if it hurts! I do want to say you put it in a different perspective for me! I am thrilled with the fact my son is in love and that he has...
Hi Shelly, I have tried to email you personally and beats me where it is. I pertnear wrote you a book but its lost in lalaland. Anyway, I have noticed Wil, and his weight lose is of concern to me. He...
John, You remind me of my Wil, you both always see the upside in everything and a witty responce to follow in any situation. People always say to me that that is a good thing! Wils been sick most of...
Goodmorning Joann, Will, is only 22 yrs. old Diagnosed with Chronic Hep B in 2002 contracted in 87-88 from AML LEUKEMIA / BLOOD TRANSFUSIONS. We checked into the Live Liver Donor in April and talked...
You are up early or should I say late. Yes, I also have my concerns about[b] this upcoming union but, I have to let these two figure that out for themselves. I'm afraid if I push the issue they will...
Welcome back Connie, Hope you had a wonderful trip! I've been trying to get caught up! Thank you both for replying talked with RN and she said pretty much the same. That GNC carries a Weight Gain...
It sure is good to know everyone is feeling well this week! Yes, I'm excited my son has someone to share his life with! He is extremely happy! Now it's just getting the out-laws on the same page and...
It has been a long time since I've written and I do apologize as it has been CRAZZZZZZY!!! Will, is still going strong alot more tired these day's and he's down to 140lbs it is scary to see him so...
I wrote to you earlier today and somehow I see it never made it! With my brain fog I may have hit cancel. Anyways here we go ! Mischa, Wills dad has lost 75lbs since Christmas, He did alot of...
Hey Shelly and Dansbrother, /community/emoticons/sad.gif No Will has no insurance! As long as he's been sick he has been covered under Healthy Kids threw the school at 18 that stopped . Because he is...
I have contacted an attorney! Will has to be denied 3 times go threw a formal board appeal which they have 120 days to respond! Will has his own apt. he works because he has to! Of course sence Oct....
We got back from Shand's hospital after 2 day's of testing ct I'm sure you all know the drill! Well we got good news, bad news and discouraging news! First, Will's CT came back he has 2 small...
I haven't written in a while as I have been very ill! Down with a Broncile viral infection for about[b] 2 weeks! When it comes it comes in 3's. I'm Done for the Year! Anyway's just wanted to update...