John I hope you are doing ok with the new treatments I have missed talking to you. My computer was down for a few weeks(seemed like months) I know you are tired but try not to loose your zest of...
Hi everyone I finally have the computer working I really missed u all I have to go thru all the old posts to see how you all are doing,but thank God for Joann she has tried to keep me afloat on whats...
Cely I cant tell you how sorry I am. Please know we are all sending you love and we are here to listen. Please take care of you...
HI JOHN I have been catching up on posts from when i was in hosp. you sound like you have had a rough couple of weeks. I am really sorry what happend w/ pet scan? Have you talked to dr about getting...
La Bunna How is your hubby doing hope things are starting to get better for you...
Connie What great news /community/emoticons/yeah.gif It is so good to hear about your test results. KEEP UP THE GOOD WORK!!!!...
Hi everyone I sure have missed you guys! I am tring to catch up on everyone Four days seems like a long time. I had another rejection and had to go in for steroids and blood and whatever bag they...
La Bunna yeah!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Heating pads are wonderful !!!!!!!!!! I hope u didn't think I was being nosey but in one of Joann's posts she said alot of people were using her...
Johnct Hi john how are you feeling i know you said you had a bad day Sat Was it pain or something else I have been worried about you Did u decide about moving yet? HUGS AND HOPE JOELENE...
Butterflythree Thank yu joelene...
Thank you all so much- you do make me feel better like i have someone cares.Anything I can do for any of you please feel free to ask. Labunna how is the heating pad working? Again thank you all for...
Connie I did not realize until tonight u had a transplant. Are you back on the list? How long did this transplant last Joelene...
PS LABunna What is your husbands name Joelene...
LaBunna I am so glad u got the heating pad I had to start using it again after my last rejection when the pain got bad again praying it works for him Joelene LET ME KNOW...
Connie Thanks for your support and i am glad you had a good day! How are you feeling? Hugs& Hope joelene...
Hi everyone Hope everyone is doing ok and hoping as much as possible being able to enjoy the holiday weekend. I just came in from outside sitting on a chair looking at the beautiful sky. I am alone...
La Bunna Sorry to hear Jerry has so much pain. When I had my first transplant I lived with my heating pad !!!!!!! It was the only way I could lay down. Also had to get hospital bed so I could put the...
hi JOHN hOW Are you feeling I am ok just more tired than usual i emailed you yesterday. Hope somehow you are enjoying the holiday weekend feel better joelene...
/community/emoticons/tongue.gif /community/emoticons/turn.gif /community/emoticons/tongue.gif /community/emoticons/turn.gif [color=purple>Judith Joelene ...
Butterflythree Sorry i meant to say grandson I have 3 g.sons 15-8-2 what are your g.sons names? Mine are Zack-Devon-and the baby is Brady. How long has your husband been this sick? I am at the point...
Butterflythree Thank you I hope all is well w/ you. How is that new granddaughter of yours? Again thak you hugs & hope Joelene...
hi everyone forgot to tell what the dr said yesterday about tingling they think its from my lyme disease that i just got done w/ 4 weeks of treatmnt w/ amoxocillan they are think about 4 more weeks...
John just read your post cant believe it, but you know better than anyone thats what this disease like to do.It throws as many punches as it can at you.You have to be stronger and keep fighting back!...
John ditto on LaBunna's post am starting to worry also Joelene...
Hi Connie are u close to the storm my stepmother lives in lakeland fla. she said it is fine there although they have gotten alot of rain. I have never seen a tropicalstorm,tornado or hurricane I cant...
LaBUNNA /community/emoticons/tongue.gif /community/emoticons/tongue.gif /community/emoticons/tongue.gif /community/emoticons/tongue.gif YEAH...
Lucy I have had the cramps but now i have this i have decided to tell dr. I just get so sick(lol pardon the pun) having something new wrong every time I turn around. Still waiting on test results...
pink grandma thank you for looking into it for me. joelene...
Connie thanks so much How have you been doing?...
PINK GRANDMA thanks for answering so quickley i have a drs appt tomm and was just wondering if i should mention it. hope you are having a better day!!...
PINK GRANDMA its veiw active posts not veiw live oops...
hi all hope everyone is hanging in ,there does anyone have this awful tingling problem/ WHEN I TRY TO LAY DOWN AT NIGT IT FEELS LIKE JOLTS OF LIGHTNING GO thru my legs and arms it makes my whole body...
la bunna it sounds like normal after transplant stuff to me so dont worry i went thru 2 major and 1 minor rejections in the 1st 2 weeks. and it took 2 years until we found the right immunosuppresion...
Pink Grandma I need some help in getting around forum i can't get veiw live every time i click on it it says unavailable am i doing something wrong joelene ...
johnt i know all will be well pleeeease let me know what happens today.led zepplin is a good choice!!!!! joelene...
johnct i was glad to hear you had a great visit w/ your parents!! how is your fever? the biopsey is no big deal i have had 2 for thyroid they give you a local and you dont feel a thing except a...
pink grandma i am ok waiting for test results from cat scan and mri both white and red cells are low have to get shots of epogen and nupogen yuk! last time i heard from joann was the 12th ,since i...
hi all i hope everyone is hanging in there. i heard from joann 3 days ago and they were on vacation but she said jerry wasnt feeling well i am a little worried. joann if u r reading this let me know...
LA BUNNA I am so happy .you should be happy the staff is right on top of him the 3rd thru 5 days are the toughest. you should get some sleep and let them do their jobs (smile) are they giving him...
La Bunna i am so happy for the 2 of you i was in icu for 5 days so dont be alarmed its all uphill from here get some rest you deserve it joelene...
hep93 and caryf how did you guys get thru it i found out he has been chating almost 2 years it just got worse and worse with him not coming home. he has been gone almost 2 months now. he call every...
[color=red> ] joann i hope u are all still going to the beach house.i can not believe this [img]/community/emoticons/mad.gif ...
hi karen i am going to lay down for a while good idea. my husband has left and is with another women but he calls everyday and will take me to appt. i think because people have been giving him a hard...
/community/emoticons/sad.gif hi everyone had an mri and cat scan my liver and spleen are getting huge. will get results mon.my hep c level has gone up to 44 million no wonder i feel lousey and...
LaBunna Once a person gets called in for transplant they normally are the first ones to be called when another one becomes available. dont loose hope it will be real soon...
JOHN i am so happy for you!!!!! i pray a liver comes for you soon. it must be great seeing your parents joelene...
EXHAUSTED KEEP ON THE COORDINATOR WHO SETS UP THE TESTS FOR YOUR SON,IT SHOULD ONLY TAKE A MONTH AT MOST WE FOUND OUT IN 3 WEEKS. YOU CAN DOUBLE OR EVEN TRIPLE SOME TEST SUCH AS BW XRAYS CAT SCANS...
DEAR SUE THANK YOU SO MUCH FOR ANSWERING SO QUICKLY WHAT HOSP IS YOUR S/O AFFILIATED WITH? I GIVE YOU LOTS OF CREDIT BEING THE CAREGIVER I KNOW IT MUST BE HARD SOMETIMES BUT I AM SURE U HAVE NO IDEA...
I HAVE HAD THIS TWICE THEY WILL GIVE HER MEDS TO CORRECT THE SWELLING AND JAUNDICE DID THEY SAY ANYTHING ABOT A TRANSPLANT I AM WAITING ON MY SECOND IN 3 AND 1/2 YRS...
a friend donated to me. worked well for about[b] 2 weeks i have been sick ever since. meld #24 but now also have an enlarged spleen on top of the esld. i go to westchester medical center love the...