I regret if my posts have offended. It was not my intent. I wish all well in their desire to seek well meaning advice. Moderators, please delete my username & access to this forum....
Hi Rocky, Yes, I have scleroderma too. My problem is with the soft connective tissue in my body, its hardening. I know Drs. tell folks they can eat soaked bread a couple weeks after Nissen, but I...
Hi Rocky, I know you are frustrated but I see lots of progress and forward momentum with your new Nissen. It is still very early days, it is likely swollen and will take longer to heal than the first...
Hi Thoreau, Others here have sometimes taken my well intended advice for personal attacks. I have no ill will, only encouragement for all here who struggle with chronic pain while also attempting to...
Hi Concept, I am an US/AUS dual so I've had the pleasure of learning to navigate both health care systems. The Royal North Shore Hospital is the teaching hospital for Sydney University, has a medical...
Fingers crossed for your esophagus Roccd! I bet she's ready for a good result and that this is your last swallowing surgery. Please let us know when it is declared a success. Also, love a little...
You don't say why the suggested surgery is required, important info! I am fused C0-T2, & T3-T7, performed to provide stability otherwise I might have become paralyzed. It did not solve my pain...
I stand behind mrsm. You have many conditions, no diagnosis. Your CP journey is just beginning, yet you are in agony. You need to learn the ropes to achieve any success with PM. A good start is...
We are being punished for abuse by others. All druggies say they got hooked on narcotics by doctors even though pill mill crack downs are old news. If there were that many ignorant reckless...
I'm on fentanyl patches, insurance pays....
M&G is right. You can try but you will be denied. I don't know of a single person who has prevailed with a non-cancer related fentora appeal. You best bet is to try different medication....
Realistically, I'd guess your surgeon is not too happy with your progress as you showed up in ER just hours after discharge. You can try and ask for more meds but most likely you will need to wait...
I know better than to complain about freezing temps in the 60s & 70s. Vickie, maybe you will back me up when I say it feels REALLY cold to us :-) I have a real fireplace and hope to fire it up...
To clarify my position: Fusion is the overall goal and indeed the very reason for having surgery. Post op, however, there are critical short term goals that must take priority; they are pain control...
Do not fall! This is paramount to your recovery at this point. Now you know how easy is it to become wobbly. Shower using a chair. Rest. Err on the side of caution....
WOW, multi-level ACDF is now being performed as an outpatient procedure? I guess we should have seen this coming! You mentioned you were very active, this needs to change immediately, remain inactive...
HT, I am a AUS/US dual, where are you? Which University professor are you seeing? Cary...
I respectfully disagree with Cgunther full stop. An ortho might be a good idea in this case as the specific neuro in question does not seem to wish to pursue it further. Regarding the discussion of...
Hi Joanna, You've received some great advice. I can add that I have a similar experience. It took 25 years to get my diagnosis of hemochromatosis, a genetic mutation whereby my body hoards iron. This...
Take it as positive that you don't require fusion. PT is expensive, whatever you can do yourself is good, stretched are especially welcome I feel. This may help reduce your pain & strengthen your...
My intent is not to minimize your experience or critique your surgeon. I am not a medical professional and have no idea of your personal condition or circumstance. Your recovery sounds like that of a...
Why no fusion when bone was removed and you have nerve damage? Apparently, someone thinks your cspine is stable enough otherwise? I would want to understand the rationale behind this. If you will...
I second Roccyd's suggestion, a rheumatologist is a good next step....
As an FYI - I was able to extend my 30 days PM refill visits to 60 days apart. I don't suspect altruism on the part of my PM, rather greed as he is in very high demand during our "season" and can...
I'm sorry to hear of your situation. After 8 years of Oxy you will experience withdrawal. Contact your PCP immediately & explain what happened. This is a suggestion based on my personal experience,...
Thank you M&G for the extra effort on this one. Just wanted to say I really appreciate your contribution to this site. Your unique perspective and associated postings are very helpful. If you haven't...
Enter naltrexone in the search bar & see if there are any comments that may be relevant to you....
Is the LDN for detox & withdrawal? Its not a pain management strategy. I think you've answered your own question. There's a direct trade off when taking meds concerning quality of life. Go back on...
You will not get hassled by customs. Your biggest threat is theft. Always keep your meds on your person and if your handbag is not with you (as in a TSA check), keep an eagle eye on it. I've had...
Thanks for sharing in all your holiday fun! If you remember I too, have a Nissen. It has been a complete success for me in terms of "curing" my reflux. I no longer belch up mouthfuls of undigested...
I haven't given up burning my nerves if it offers any relief....
I think the point here is that (re)-filling Schedule II meds is not a last minute activity. Nor is it one that we can count on any assistance with. It requires a deliberate proactive stance and the...
I concur with the others that responded to your first post. There is nothing remarkable about your findings. You do not need surgery based on the findings you've presented. Of course the best person...
Want to remind everyone to be extra vigilant with our meds this holiday season. Make certain they are not available for children, pets, other guests or family members to get into. We don't want any...
Pinky, Ask your surgeon how he's threaded the rehab needle in the past. I'd really push for it. Take all the help you can get. You may experience lots of pain, numbness, any number of lovely side...
Well done Pinky! Way to put your ducks in a row. I also commend Abilene for the suggestion to look into a rehab facility for your recovery & Pitmom for encouraging you to let go of your hair; both...
Hi Pinky, Sorry to hear of your impending surgery. I can attest to the fact that such a fusion can succeed, albeit with an intense path to the finish line. I am fused C0-T2 & T3-T7, not all at once...
Not to hijack your thread, just to help better inform As CPers we need to understand the therapies we considering and especially to watch our pocketbooks when non-scientific methods are being...
Your argument does not resonate as one that is in complete compliance. It appears as though you are being tapered....
I am a feminist. I have spent my life encouraging people to speak up for equality and equal rights. I have fought for change. Now, I am a CP patient. I have changed my tune with respect to this...
Magnets are a fad, alternative medicine type therapy. I've not tried it so I can't give a personal review. Not telling you what to do, just encouraging you to hold onto your pocketbook. Hope you feel...
Sorry Chart, Your visit sounds absolutely dismal. I'd suggest taking all the dishes, a form of payment for your distress. lol Hope this helps. Cary...
We're not Drs., nor are we qualified to diagnose anything. That said, I'd guess something auto immune. Get yourself to a clinic that works in teams like Mayo or Cleveland or a teaching hospital. The...
Vickie, Who is your PM? I am getting vibes mine is unhappy/considering retirement. YIKES. Thanks, Cary...
Wow, really? This is not venting, its flaming IMO. Flaming is not allowed here. My opinion, however, is of no concern or consequence in this matter. I respectfully defer to the CP moderators. CP...
Hi Rocc, Are they going to remove the Nissen altogether? As in cut it out & sew the ends together? Then do a bypass? I like it! It could work & help with the pulmonary problems as well. Will this be...
M&G is right on. Be prepared to be dismissed. It doesn't matter how the pills went missing, you are responsible for them. Short of filing a police report you are SOL in that category. Sorry you had...
No bed should wear out as fast as yours do. I would have complained to Sealy & asked for a replacement. After that I would have done the same with Stearns & Foster. Any bed that wears out in 4 months...
Call the hotel, they'll give you all the info about the beds they use. I got a Marriot bed this way....
Rocc, I get the Nissen, the pain & panic when it gets stuck. I am on fent & the Nissen pain is not even touched with the pain meds I take. Its indescribable & mind numbing. There's nothing to be done...